The qualitative research on young onset dementia is providing insights about the 'lived experience' of patients and caregivers. However, findings from these studies have seldom been integrated into descriptive overviews. Our aim was to search research, integrate findings, offer an account lived experience for caregivers.The formed part a broader comprehensive literature investigating salient measurement issues in psychosocial research. Five electronic databases were searched (Medline,...

Objectives: An exploratory investigation is reported into the role of spirituality and religious practice in protecting against depression among older people living rural villages Bulgaria Romania, two neighbouring countries with similar cultural, political histories, but differing levels current religiosity. Methods: In both countries, interviews were conducted samples 160 persons 60 years over socio-economic status. The Hospital Anxiety Depression-D scale Royal Free Interview for Religious...

Objectives: The aim of this paper is to report a pilot study in which participants who had recently received diagnosis dementia were randomised either 10-week group intervention or waiting-list control.Method: Memory clinic staff with limited previous experience therapy trained lead called 'Living Well Dementia'. Fifty-eight participants, all whom Alzheimer's disease, vascular Lewy body within the 18 months, receive treatment as usual (waiting-list control). Data collection occurred at...

Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims this study were (1) to investigate and compare QoL self- proxy reports a sample YoD patients caregivers using different conceptual assessments (2) examine the relationship between caregiver both burden mental health.There 52 participants (26 patient-caregiver dyads). design was cross-sectional part larger longitudinal prospective cohort caregivers. Primary measures included...

Aim: Psychosocial research on the lived experiences of young-onset dementia patients and caregivers has identified salient issues about their care, however, views care from perspective healthcare professionals is less well known. The aim this study was to investigate identify important in provision a provider perspective. Methods: design an exploratory qualitative interview study. In-depth semistructured interviews were conducted with clinical expertise drawn medicine, nursing allied health....

Objectives: This paper reports two related analyses of verbal material from seven Living Well with Dementia groups: the first examines changes in behaviours participants across course sessions all groups; while second contrasts therapist behaviour groups. Methods: In analysis, recordings three each group were transcribed and participant descriptions dementia analysed using Markers Assimilation Problematic Experiences (MAPED) rating procedure. weeks 2 8 groups (F G) was Hill Counsellor Verbal...

This study aimed to determine whether the Markers of Assimilation Problematic Experiences in Dementia scale (MAPED) can be used identify way which participants talk about dementia changed during group. All eight sessions a LivDem group, were attended by recorded and transcribed. An initial analysis identified 160 extracts, then rated using MAPED system. Inter-rater reliability was 61% following resolution meeting, 35 extracts discarded, leaving 125 with an agreed marker code. as producing...

Within the word recognition literature, word-frequency and hence familiarity has been shown to affect degree of repetition priming. The current paper reports two experiments which examine whether also affects priming for faces. results Experiment 1 confirmed that did moderate in a face task. Low faces were primed significantly greater than high terms accuracy, speed, efficiency processing. 2 replicated these but additionally, demonstrated moderates name as well recognition. These can be...

This study's aim was to produce a measure of the cognitive and affective impact bereavement investigate psychometric properties potential utility measure. Using mixed correlational comparative design, experiences widows who had time anticipate their partner's death were compared with those no such time. In first stage this two-stage study, seven completed semi-structured interviews regarding bereavement-related cognitions affect. A set statements derived formed Bereavement Experiences Index...

The incidence of dementia remains high, but the impact this diagnosis on those diagnosed with under age 65 (younger-onset), and their carers, is poorly understood, little known about Quality Life (QoL) in group. This study uses compares quantitative questionnaires assessing QoL related factors, involving 26 young-onset patient respective carer participants. Research Questions: 1) Is similar when comparing self-ratings to caregiver proxy reports? 2) Are for patients caregivers? 3) ratings...

Post-diagnostic care in young-onset dementia (YoD) varies, from something that is occasionally structured, to improvised, frequently non-existent depending on geographic region. In a few regions England, nurse designated helping families may exist. This study aimed describe this seldom-observed nursing role and its content. It used an investigative qualitative case design based the analysis of two YoD clinical specialists (CNSs) describing work they did providing post-diagnostic service...

Abstract Background Dementia can negatively impact the well‐being and quality of life patients informal caregivers. Digital self‐management tools have potential to support those living with dementia. The aim this review was identify digital used in dementia care, investigate how they users, highlight pertinent clinical psychosocial outcomes. Method Six databases were searched (i.e. CINAHL, EMBASE, MEDLINE, PsycINFO, Web Science, Cochrane Review) using free text equivalent database‐controlled...