A5064420040- Cerebral Palsy and Movement Disorders
- Family and Disability Support Research
- Infant Development and Preterm Care
- Autism Spectrum Disorder Research
- Child Development and Digital Technology
- Neonatal and fetal brain pathology
- Liver Disease Diagnosis and Treatment
- Family Dynamics and Relationships
- Alcohol Consumption and Health Effects
- Research in Social Sciences
- Early Childhood Education and Development
- Hepatitis C virus research
- Respiratory and Cough-Related Research
- Chronic Obstructive Pulmonary Disease (COPD) Research
- interferon and immune responses
- Demographic Trends and Gender Preferences
- Labor Movements and Unions
- Neurogenetic and Muscular Disorders Research
- Attention Deficit Hyperactivity Disorder
- Child and Animal Learning Development
- Genetics and Neurodevelopmental Disorders
- Cell Adhesion Molecules Research
- Health Policy Implementation Science
- Intergenerational Family Dynamics and Caregiving
- Eating Disorders and Behaviors
Inserm
2023
Université Toulouse III - Paul Sabatier
2023
Sykehuset i Vestfold
2023
Centre de Recherche en Sciences et Technologies de l'Information et de la Communication
2023
European Foundation for the Improvement of Living and Working Conditions
2020-2022
Icelandic Heart Association
2018
University of Iceland
2009-2016
National University Hospital of Iceland
2014
Federal Medical Centre
2010
Norwegian University of Science and Technology
2010
We describe the cognitive profile in a complete national cohort of children with cerebral palsy (CP). One hundred and twenty-seven Icelandic (67 females, 60 males) CP, born between 1985 2000 assessed ages 4 6 years months (mean age 5y 5mo, SD 6mo), were included study. IQ was measured using Wechsler Preschool Primary Scale Intelligence (WPPSI) developmental quotient (DQ) obtained various scales. Physiological classification CP was: spasticity, n=104 (82%); dyskinesia, n=14 (11%); ataxia,...
Aim The aim of this study was to describe speech, expressive language, and verbal cognition children with cerebral palsy (CP). Method A population included 152 Icelandic congenital CP (74 males, 78 females; mean age 5y 5mo, range 4y–6y 6mo). Children who spoke in sentences, phrases, or one-word utterances were categorized as verbal. Speech classified normal, mild dysarthria, severe dysarthria. Cognition reported IQ (Wechsler Preschool Primary Scale Intelligence – Revised) developmental...
Aim To describe behavioural and emotional symptoms among Icelandic preschool children with cerebral palsy (CP). Method Children congenital CP, assessed the Child Behavior Checklist/1½–5 (CBCL/1½–5) Caregiver‐Teacher Report Form (C‐TRF), were enrolled in study. A comparison group was recruited from general population. Thirty‐six (53% males) CP at a mean age of 4 years 11 months (SD 5mo, range 4–6y); 26 (72%) had bilateral distribution 32 (89%) spastic CP. Thirty (83%) Gross Motor Function...
In a study of ADHD symptoms in the relatives probands diagnosed with ADHD, validity self-reported and informant-reported childhood adulthood was investigated semistructured diagnostic interview, Schedule for Affective Disorders Schizophrenia School-Age Children (K-SADS) adapted adults, as criterion. The participating were 80 women 46 men aged 17 to 77. Rating scales based on Diagnostic Statistical Manual Mental (4th ed.) completed by participants informants. Internal consistency interrater...
To describe trends in cerebral palsy (CP) prevalence, severity, and associated impairments among 139 Icelandic children (65 males, 74 females) born from 1990 to 1996 (period one) 1997 2003 two).A population-based study using systematically collected data on motor functioning of with CP. Mean age at assessment was 5 years months (SD 7.68 mo) period one 10.44 two. Infants postneonatal CP were excluded.Prevalence per 1000 live births 2.2 2.3 two (p=0.862); it decreased 1.5 0.9 for term, stable...
Aim To evaluate the prevalence of co‐occurring autism spectrum disorders (ASDs) among children with cerebral palsy (CP), and to describe their characteristics. Method The data 1225 CP cases from four population‐based registers (Iceland, Sweden, two in France) one surveillance programme (North East England, UK) participating Surveillance Cerebral Palsy Europe Network (SCPE) were analysed. ASD diagnoses systematically recorded using category F84 International Classification Diseases, 10th...
Aim To compare the prevalence of gastrostomy tube feeding (GTF) children with cerebral palsy (CP) in six European countries. Method Data on 1295 (754 males, 541 females; mean age 5y 11mo, range 11y 2mo, min 6mo, max 8mo) CP born from 1999 to 2001 were collected geographically defined areas countries; four covered whole country. Distribution was unilateral 37%, bilateral 51%, dyskinetic 8%, and ataxic 4%. Sixty classified Gross Motor Function Classification System (GMFCS) levels I II, 6 level...
Total joint replacements (TJRs) should be considered as one of few definite endpoints in osteoarthritis research. We analyzed factors associated with late-life prevalence and risk for incidence TJRs due to a population based cohort. After exclusion inflammatory arthritis fractures causes TJR, 5170 participants the AGES-Reykjavik Study (mean age (SD) 76.4(6), 58 % females) were included studies. Three thousand hundred thirty-three them had follow-up visit 5 years later. The having at least...
To report on prevalence, associated impairments, severity, and neuroimaging findings in children with ataxic cerebral palsy (CP).
In 2010, the Icelandic government introduced a new cost-saving policy that limited reimbursement of fixed inhaled corticosteroid/long-acting β₂ -agonist (ICS/LABA) combinations.This population-based, retrospective, observational study assessed effects this change by linking specialist/primary care medical records with data from Pharmaceutical Database. The took effect on 1 January 2010 (index date); for year preceding and following date were analysed in 8241 patients controlled/partly...
The article presents the final part of an Icelandic research project on parents and children divorce, focusing grown-up children's experiences equal time-sharing arrangements, ETSA, after their parents' divorce. It consists a quantitative analysis firstly nationally representative sample mapping frequency experience 18–59 years old individuals ETSA secondly qualitative 16 long interviews with divorce reflecting experiences. Both analyses indicate different this type arrangement. reality...
This article presents the results from a research study on children and divorce exploring experiences, views, values of parents grandparents. Participants were randomly selected. Long interviews conducted with 45 family members in 16 families. Parents characterized into 3 categories according to custody, style parental cooperation, emphasis child as reflected different arrangements, coherence, awareness child's needs. Grandparents expressed worries regarding new transformations children's...
Schimke immunoosseous dysplasia (SID) is a rare, pleiotropic disorder compromising spondyloepiphyseal dysplasia, nephrotic syndrome, defective T-cell-mediated immunity, and vascular changes which can lead to cerebral infarcts. The cause unknown but an autosomal recessive inheritance pattern has been suggested. Understanding of the clinical phenotype evolving; however, neurologic spectrum not well known. We report on 17-year-old woman who presented with behavior changes, developmental...