A5078089907- Cleft Lip and Palate Research
- Craniofacial Disorders and Treatments
- Tracheal and airway disorders
- Nasal Surgery and Airway Studies
- Tumors and Oncological Cases
- Congenital Anomalies and Fetal Surgery
- Reconstructive Surgery and Microvascular Techniques
- Dental Health and Care Utilization
- Child and Adolescent Health
- Body Image and Dysmorphia Studies
- Cancer and Skin Lesions
- Digital Imaging in Medicine
- Burn Injury Management and Outcomes
- Head and Neck Anomalies
- Airway Management and Intubation Techniques
- Head and Neck Cancer Studies
- Congenital Ear and Nasal Anomalies
- Delphi Technique in Research
- Organ and Tissue Transplantation Research
- Spinal Dysraphism and Malformations
- Eosinophilic Disorders and Syndromes
- Infant Nutrition and Health
- Cerebrospinal fluid and hydrocephalus
- Birth, Development, and Health
- Vascular Tumors and Angiosarcomas
Birmingham Children's Hospital
2010-2022
University of Birmingham
2016
Selly Oak Hospital
2008
St Andrew's Healthcare
1996
University of Oxford
1993-1995
John Radcliffe Hospital
1993
Derriford Hospital
1992
<h3>BACKGROUND:</h3> Patients with cleft lip and/or palate can undergo numerous procedures to improve appearance, speech, dentition and hearing. We developed a cleft-specific patient-reported outcome instrument facilitate rigorous international measurement benchmarking. <h3>METHODS:</h3> Data were collected from patients aged 8–29 years at 30 hospitals in 12 countries between October 2014 November 2016. Rasch theory analysis was used refine the scales examine reliability validity. Normative...
Abstract Objective: Several methods of treating babies with Pierre Robin sequence have been described since the condition itself was first documented in 1923. The main aim treatment has to relieve upper airway obstruction. Treatment used range from positioning baby invasive surgery. this article describe assessment, treatment, and monitoring for referred (PRS). Setting/Patients: From December 1995 May 2000, 22 consecutive patients were admitted Birmingham Children's Hospital PRS. Their...
Objective: Pierre Robin sequence (PRS) involves the triad of micrognathia, glossoptosis, and cleft palate. Neonates with PRS suffer from two problems—airway obstruction feeding difficulties—but severity these problems varies greatly. The resultant varying definitions have resulted in inconsistent management those babies given diagnosis. This turn makes comparison published data communication between clinicians difficult. Historically at Birmingham Children's Hospital, team only identified...
Background: Measuring the patient perspective is important in evaluating outcomes of cleft care. Understanding how treatment vary depending on type may allow for better planning treatments, setting expectations, and more accurate benchmarking efforts. The CLEFT-Q a patient-reported outcome measure patients with lip and/or palate. Methods: 12 scales measuring appearance (i.e., face, nose, nostrils, lips, scar, teeth, jaws), function speech), health-related quality life psychological, school,...
Pierre Robin sequence results from a cascade of events that occur during embryologic development and frequently presents with cleft palate. Some studies have shown speech outcomes to be worse in patients after palate repair.A cohort who all required an airway intervention nasogastric feeding the neonatal period were identified assessed at 5 years age. A cleft- sex-matched non-Pierre sequence, palate-only comparison group was also same institution study period.A total 24 nutritional support...
Several methods of treating babies with Pierre Robin sequence have been described since the condition itself was first documented in 1923. The main aim treatment has to relieve upper airway obstruction. Treatment used range from positioning baby invasive surgery. this article describe assessment, treatment, and monitoring for referred (PRS).From December 1995 May 2000, 22 consecutive patients were admitted Birmingham Children's Hospital PRS. Their nutritional status assessed continuously...
Objective: This unit has reported management of infants with Pierre Robin Sequence (PRS) and upper airway obstruction using nasopharyngeal airways nutritional support until enough growth takes place for the infant to thrive. There was a mean hospital stay 60 days. long in-patient prompted review our protocols consideration treatment at home. paper reports experience managing PRS home nasogastric feeding tube reviews whether such reduces while remaining safe effective. Design: Retrospective...
Objective: Babies born with cleft lip and/or palate are followed-up throughout their growth in childhood. During adulthood, they may require further functional aesthetic treatment. Adult multidisciplinary clinics have been place the West Midlands, U.K. since June 2000. The aim of this study was to review number and nature problems these adult patients had types treatment required. Design: All seen 2004 were identified. Case notes reviewed for patient epidemiology, at initial presentation,...
Abstract Objects To describe the range of surgery used to repair lip and palate in UK with specific interest sequence/timing complete unilateral cleft (cUCLP). Setting Sample Population The Cleft Care study, a cross‐sectional study 268 5‐year‐olds, born from 2005 2007, palate. Materials & Methods Information on was extracted medical notes by surgeons during research clinics transcribed onto standardized questionnaire. Results Surgical data were available for 251 (94%) children all...
Objective: To describe the impact of completing CLEFT-Q appearance scales on patients with cleft lip and/or palate and to identify demographic clinical characteristics scores associated reporting a negative impact. Design: International cross-sectional survey. Setting: Recruitment took place between October 2014 November 2016 at 30 craniofacial clinics located in 12 countries. Patients: Aged 8 29 years palate. Main Outcome Measure(s): Participants were asked 4 questions evaluate field test...
Desmoplastic trichoepithelioma (DT) is a rare benign adnexal neoplasm considered to have follicular differentiation. It usually presents as an asymptomatic, firm, annular plaque with raised border. The most common site of occurrence the face, on cheek. Females are more often affected than males and age range patients previously reported 8-79 years. We present case congenital desmoplastic trichoepithelioma. A girl was born at term healthy mother after uneventful pregnancy noted widespread...
Tissue expansion of the scarred chest following burns results in a poor breast mound shape with little projection or inframammary fold, since expander, like normal developing tissue, is kept flat by skin envelope. We present case that demonstrates adequate and formation an fold can be achieved if extensive release grafting contractures over are performed after expansion. Maintained will act as stent reducing secondary contracture grafted-areas.
As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation cost-effective multicenter audit and research projects. The aims present article are to outline discuss establishment multidisciplinary collaborative in context cleft lip and/or palate (CL/P).The Cleft Multidisciplinary Collaborative (CMC) was formed April 2016 under overarching supervision National Institute for Health Research. Membership CMC is open all members CL/P...
Objective CLEFT-Q is a condition-specific patient-reported outcome measure (PROM) for patients with cleft lip and/or palate (CL/P). The aim of this study was to examine the cross-sectional construct validity scales. Design Construct assessed through prospective that tested hypotheses regarding correlations scores other PROMs related constructs. Setting Seven centres in Canada, USA, and UK were involved. Patients/Participants Patients aged eight 29 years CL/P. Interventions Before undergoing...
The aim of this study was to examine internal responsiveness and estimate minimally important differences (MIDs) for CLEFT-Q scales.In prospective cohort study, participants completed the appearance health-related quality life (HRQL) scales before six months after cleft-related surgery.Seven cleft centres in Canada, USA UK participated.Patients were ages 8-29 years with CL/P.Patients underwent rhinoplasty, orthognathic or lip scar revision surgery.Internal examined using Cohen's d effect...
To investigate whether sodium supplementation increases weight gain in babies with grade 3 Pierre Robin sequence if their urinary is low.Retrospective review of all medical, dietitian, and nursing notes admitted from 2000 to 2007, inclusive.Tertiary center for cleft care.A total 33 requiring nasogastric nasopharangeal intubation were identified. Those whom weights could not be measured accurately (n = 4) excluded further study.Urinary was low poor 21 the remaining 29 (72%), oral given...
Objective: It was hypothesized that lip repair protocols in children with bilateral cleft and palate (BCLP) would affect development of bilabial consonants /m/ /b/ /p/. This study compared speech outcomes 2 surgical groups. Design: A retrospective case note investigation. Setting: UK Cleft Centre (2000-2009). Patients: Forty-nine complete BCLP, whom 26 had a 1-stage 23 2-stage repair. Interventions: One-stage versus 2-staged Main Outcome Measures: Bilabial consonant production at 18 months,...
To estimate both the association of surgical variables in complete unilateral cleft lip and palate (cUCLP) UK with outcomes at age 5 years, secondary speech surgery, volume surgeon same outcomes.The Cleft Care study, a cross-sectional study 268 5-year-olds, born from 2005 to 2007, cUCLP.Information on was extracted standardized questionnaire. Dento-facial were derived dental casts arch relationships. Three - intelligibility, structure articulation using Audit Protocol for Speech-Augmented...