A5089888303- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Grief, Bereavement, and Mental Health
- Patient Dignity and Privacy
- Family and Patient Care in Intensive Care Units
- Homelessness and Social Issues
- Patient-Provider Communication in Healthcare
- Family Support in Illness
- Childhood Cancer Survivors' Quality of Life
- Health Systems, Economic Evaluations, Quality of Life
- Intergenerational Family Dynamics and Caregiving
- Dementia and Cognitive Impairment Research
- Ethics in medical practice
- Economic and Financial Impacts of Cancer
- Mental Health and Patient Involvement
- Health Policy Implementation Science
- Global Cancer Incidence and Screening
- Empathy and Medical Education
- Health Sciences Research and Education
- Interprofessional Education and Collaboration
- Religion, Spirituality, and Psychology
- Cancer survivorship and care
- Chronic Disease Management Strategies
- Religion, Society, and Development
- Optimism, Hope, and Well-being
University of Victoria
2016-2025
Canadian Institutes of Health Research
2013-2016
University of British Columbia
1997-2016
Creative Commons
2016
Fraser Health
2014-2016
Providence Health Care
2014-2016
Trinity Western University
2014-2016
Michael Smith Health Research BC
2014-2016
AIDS Vancouver
2016
McMaster University
2016
Because of the prevalence and expense congestive heart failure (CHF), significant efforts have been made to develop disease management (DM) programs that will improve clinical financial outcomes. The effectiveness such in a large, heterogeneous population CHF patients remains unknown.We randomized 1069 (aged 70.9+/-10.3 years) with systolic (ejection fraction 35+/-9%) or echocardiographically confirmed diastolic (HF) assess telephonic DM over an 18-month period. Data were collected at...
Informal carers are central to the achievement of end life care and death at home policy aims enabling patient choice towards life. They provide a substantial, yet hidden contribution our economy. This entails considerable personal cost carers, it is recognised that their needs should be assessed addressed. However, we lack good research evidence on how best do this. The present position paper gives an overview current state carer research, its gaps weaknesses, outlines future priorities. It...
Much of what we understand about the design healthcare systems to support care dying comes from our experiences with providing palliative for cancer patients. It is increasingly recognized that in addition cancer, high quality end life should be an integral part provided those other advancing chronic life-limiting conditions. A "palliative approach" has been articulated as one way conceptualizing this care. However, there a lack conceptual clarity regarding essential characteristics approach...
Family caregiving towards the end-of-life entails considerable emotional, social, financial and physical costs for caregivers. Evidence suggests that good support can improve caregiver psychological outcomes. The primary aim of this study was to investigate impact using carer needs assessment tool (CSNAT), as an intervention identify address in end life home care, on family A stepped wedge design used trial CSNAT three bases Silver Chain Hospice Care Western Australia, 2012-14. consisted at...
Despite access to quality care at the end-of-life (EOL) being considered a human right, it is not equitable, with many facing significant barriers. Most research examines EOL for homogenous 'normative' populations, and as result, experiences of those differing social positioning remain unheard. For example, populations experiencing structural vulnerability, who are situated along lower rungs hierarchies power (e.g., poor, homeless) will have unique needs face barriers when accessing care....
Healthcare providers are considered the primary conduit of compassion in healthcare. Although most healthcare desire to provide compassion, and patients families expect receive it, an evidence-based understanding construct its associated dimensions from perspective is needed.The aim this study was investigate providers' perspectives experiences order generate empirically derived, clinically informed model.Data were collected via focus groups with frontline interviews peer-nominated exemplary...
This ethnographic study examined the social context of home-based palliative caregiving. Data were composed observation field notes, interviews, and textual documents, analyzed using constant comparative methods. Findings show that caregiving resulted in life-enriching experiences for many caregivers. However, assumptions about dying at home health care reforms some caregivers feeling "pressured" to provide care, consequently, left them their obligations exploited by system. Shifts toward...
The purpose of this paper is to describe the variations in and factors influencing family members' decisions provide home-based palliative care. Findings were part a larger ethnographic study examining social context caregiving. Data from participant observations in-depth interviews with members (n=13) providing care patient at home, bereaved (n=47) health providers (n=25) subjected constant comparative analysis. indicate characterized by three types. Some caregivers made uninformed...
Dying at home is a goal promoted by many healthcare providers and governments as way to enhance the dying experience for cancer patients their family members. A key element realizing this availability of member who willing provide care home. Little research has been conducted on factors that influence caregivers' ability cope with providing end-of-life The purpose qualitative study was describe influencing such care. An interpretive descriptive design guided study. Semistructured interviews...
Introduction: The Carer Support Needs Assessment Tool encompasses the physical, psychological, social, practical, financial, and spiritual support needs that government policies in many countries emphasize should be assessed addressed for family caregivers during end-of-life care. Aim: To describe experience of terminally ill people intervention home-based palliative Methods: This study was conducted 2012–2014 Silver Chain Hospice Care Service Western Australia. article reports on one part a...
Background: Family caregivers are assuming growing responsibilities in providing care to dying family members. Supporting them is fundamental ensure quality end-of-life and buffer potentially negative outcomes, although frequently acknowledge a deficiency of information, knowledge, skills necessary assume the tasks involved this care. Aim: The aim inquiry was explore how describe learning provide palliative patients. Design: Secondary analysis data from four qualitative studies ( n = 156)...
A patient’s ability to be cared for and die at home is heavily dependent upon the efforts of family caregivers. Considerable stresses are associated with such caregiving, including physical, psychosocial financial burdens. Research has shown that unmet needs dissatisfaction care can lead negative outcomes While many caregivers also report caregiving as life-enriching, some they would prefer alternatives home, primarily because these Little known about which interventions most effective...
All too often, palliative care services are not responsive to the needs of those who doubly vulnerable, being that they both in need and experiencing deficits social determinants health result complex, intersecting concerns. In this article, we argue for a reorientation explicitly integrate premises equity. We articulate philosophical, theoretical, empirical scaffolding required equity-informed draw on current study illustrate such an approach people experience structural vulnerabilities.
Abstract Background A key pillar of Canada’s healthcare system is universal access, yet significant barriers to cancer services remain for people impacted by structural vulnerability (e.g., poverty, homelessness, racism). For this reason, diagnosed at a later stage, resulting in worse patient outcomes, reduced quality life, and higher cost the system. Those who face access are under-represented control Consequently, these inequities result dying from cancers that highly treatable...
Previous studies involving palliative patients suggest a preference for dying at home. The purpose of this paper is to examine, prospectively, patient and family caregiver preferences for, congruence with, location death hospitalized with cancer end-stage medical conditions. Questionnaires were administered 440 eligible in-patients 160 caregivers in five hospitals across Canada. This reports results 138 patient/family dyads who answered question about death. that only half all report home...
Aims and objectives. Based on a secondary analysis of data from large qualitative study cancer care communication, we address the question: what do patients with advanced identify as helpful in their communication encounters health providers? Background. Communication is critical importance to cancer. A better understanding such nurses other providers seems creating evidence‐informed recommendations for best practices. Design. Secondary interview data. Methods. Data 18 participants...
To explore healthcare provider perspectives and experiences of perceived barriers facilitators compassion.Compassion is considered a component quality health care that providers are increasingly expected to provide. While there have been some studies exploring facets providers' on the providing compassion, comprehensive understanding based direct reports from lacking.Data were collected via focus groups semi-structured interviews. Data was analyzed in accordance with Straussian grounded...