Informal carers are central to the achievement of end life care and death at home policy aims enabling patient choice towards life. They provide a substantial, yet hidden contribution our economy. This entails considerable personal cost carers, it is recognised that their needs should be assessed addressed. However, we lack good research evidence on how best do this. The present position paper gives an overview current state carer research, its gaps weaknesses, outlines future priorities. It...

Dementia is a life-limiting condition that increasing in global prevalence line with population ageing. In this context, it necessary to accurately measure dementia knowledge across spectrum of health professional and lay populations the aim informing targeted educational interventions improving literacy, care, support. Building on prior exploratory analysis, which informed development preliminarily valid reliable version Knowledge Assessment Scale (DKAS), Confirmatory Factor Analysis (CFA)...

To develop a reliable and valid dementia knowledge scale to address limitations of existing measures, support evaluation in diverse populations, inform educational intervention development.A five-stage, systematic development process was employed construct assess the psychometric properties Dementia Knowledge Assessment Scale (DKAS).Data for study were generated an online environment during clinical care placements from Australian (n = 1,321) international respondents 446).Volunteers...

The number of people with dementia is increasing rapidly worldwide. Commensurate population ageing, the use nursing homes in Australia (known as residential aged care facilities) for individuals growing. As a terminal condition, best managed by instituting palliative approach to care. A good knowledge dementia, including its progression and management, among staff families living essential clear decision making provision appropriate Yet there limited information regarding relative levels...

Family caregiving towards the end-of-life entails considerable emotional, social, financial and physical costs for caregivers. Evidence suggests that good support can improve caregiver psychological outcomes. The primary aim of this study was to investigate impact using carer needs assessment tool (CSNAT), as an intervention identify address in end life home care, on family A stepped wedge design used trial CSNAT three bases Silver Chain Hospice Care Western Australia, 2012-14. consisted at...

Introduction: The Carer Support Needs Assessment Tool encompasses the physical, psychological, social, practical, financial, and spiritual support needs that government policies in many countries emphasize should be assessed addressed for family caregivers during end-of-life care. Aim: To describe experience of terminally ill people intervention home-based palliative Methods: This study was conducted 2012–2014 Silver Chain Hospice Care Service Western Australia. article reports on one part a...

Care for the person with dementia requires understanding of person’s perspective and preferences, integrated knowledge dementia’s trajectory appropriate care. Version One Dementia Knowledge Assessment Tool addressed such in care workers; Two is families as well staff. Content validity was established during development. Revisions clarity, time completion, reliability. When 671 staff completed before an education intervention, internal consistency reliability estimates exceeded 0.70. Validity...

Abstract Huntington's disease is a genetic, neurological disorder characterized by mid‐life onset, involuntary movements, cognitive decline, behavioral disturbance, and inexorable progression. The impact of devastating for individuals their families as it with long trajectory; many young people are aware that they may develop the illness years before there obvious symptoms. There therefore ample opportunity to plan choreograph care supportive services families. present study was conducted...

Parkinson's disease (PD) is a chronic, progressive, degenerative disorder of the nervous system, causing substantial morbidity and has capacity to shorten life. People with PD their families can find devastating. Nevertheless, this population patients not usually considered group be supported by palliative care specialists. But nature illness challenges managing its many physical psychological effects raises questions about potential benefits approach. The purpose project was describe...

To compare the psychometric performance of Dementia Knowledge Assessment Scale (DKAS) and Alzheimer's Disease (ADKS) when administered to a large international cohort before after online dementia education.Comparative analysis with pre- posteducation scale responses.The setting for this research encompassed 7,909 individuals from 124 countries who completed 9-week Understanding Massive Open Online Course (MOOC).Volunteer respondents DKAS ADKS (n = 3,649) 878) completion MOOC.Assessment...

Escalating numbers of people are experiencing dementia in many countries. With increasing consumer needs, there is anticipated growth the providing diagnostic evaluations, treatments, and care. Ensuring a consistent contemporary understanding across all these groups has become critical issue. This study aimed to reach consensus among experts from English speaking countries regarding essential knowledge about dementia. An online Delphi was conducted examine expert opinion concerning with...

Background: Participatory action research (PAR) is a credible, culturally appropriate methodology that can be used to effect collaborative change within vulnerable populations.Aim/objective: This PAR study was undertaken in Western Australian metropolitan setting develop and evaluate the suitability, feasibility effectiveness of an Aboriginal peer-led home visiting programme. A secondary aim, addressed this paper, explore describe for provide recommendations its implementation other similar...

To explore the perceptions of older patients who re-presented to hospital within 28 days discharge from an acute medical unit (AMU), their family caregivers and appropriately experienced health professionals.Hospitals are increasingly using AMUs provide rapid assessment treatment for patients. Evidence efficacy is building, however in-depth exploration experiences re-present soon after AMU, those care them, appears be lacking.A qualitative, descriptive design was used.In 2007, our team...

Current research identifies advanced dementia to be the terminal phase of this progressive and incurable condition. However, there has been relatively little investigation into how family members people with understand their relative's In article, we report on semi-structured interviews 10 dementia, in a residential aged care facility. Using qualitative, descriptive design, explored members' understandings whether they were aware that it was condition, ways developed understandings. Findings...

The ageing global population has seen increasing numbers of older people living with chronic health problems, declining function, and frailty. As seek to live out their years at home, family members, friends neighbours (informal caregivers) are increasingly relied upon for support. Moreover, pressured systems shorter hospital length stay mean that informal caregivers can find themselves supporting the person who is still unwell after discharge. Further Enabling Care Home (FECH) program was...

The challenges of developing new and valid instruments specific for use in nursing research practice can be complex varied. In this paper we identify a number innovative approaches achieving content validity based on our instrument development work. These include ways identifying the conceptual domain, role literature reviews key experts, processes used to confirm clarity content, feasibility process exploration pertinent ethical issues. review issues covered here may provide guidance nurses...

Background Delirium is common in older patients. Little known of support needs families hospital patients with delirium. Aims and objectives To inform nursing practice, we sought to describe families' experiences, understanding delirium care, needs. Design Descriptive mixed methods. Methods Review questionnaire items used people terminal informed development a new evaluate the our study population. In tertiary unit, recruited 17 family carers (non‐terminal) respond this questionnaire. Twelve...

Background: Systematic assessment of family caregivers’ support needs and integrating these into service planning according to evidence-based research are vital improving outcomes their capacity provide care at end life. Aim: To describe the experience with feedback nurses on implementing a systematic caregivers in home-based palliative care, using Carer Support Needs Assessment Tool. Methods: This study was conducted during 2012–2014 Silver Chain Hospice Care Service Western Australia....