A5070237775- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Adolescent and Pediatric Healthcare
- Cancer survivorship and care
- Family and Disability Support Research
- Pediatric Pain Management Techniques
- Economic and Financial Impacts of Cancer
- Family and Patient Care in Intensive Care Units
- Infant Development and Preterm Care
- COVID-19 and healthcare impacts
- Central Venous Catheters and Hemodialysis
- Ethics and Legal Issues in Pediatric Healthcare
- Nursing Diagnosis and Documentation
- Medication Adherence and Compliance
- Child Development and Digital Technology
- Health Sciences Research and Education
- Child and Adolescent Health
- Neutropenia and Cancer Infections
- Acute Lymphoblastic Leukemia research
- Bacterial Identification and Susceptibility Testing
- COVID-19 diagnosis using AI
- Bipolar Disorder and Treatment
- Menopause: Health Impacts and Treatments
- Meta-analysis and systematic reviews
Primary Children's Hospital
2016-2025
University of Utah
2016-2025
Center for Cancer and Blood Disorders
2020-2025
Oregon Health & Science University
2023
Huntsman Cancer Institute
2018-2023
Thomas Jefferson University
2023
University of Vermont
2023
National Center for Advancing Translational Sciences
2023
National Institute of Nursing Research
2010-2023
Intermountain Healthcare
2023
Symptom management research is a priority for both children and adults with cancer. The UCSF Management Theory (SMT) middle range theory depicting symptom as multidimensional process. A analysis using the process described by Walker Avant evaluated SMT attention to application in involving Application of studies has been limited descriptive testing only portions theory. Findings these have provided empiric support relationships proposed within SMT. Considerations future include measurement...
Studies addressing physical and psychosocial symptoms among hospitalized children adolescents with cancer are limited. Understanding commonly occurring their associated characteristics across the hospitalization is needed to guide symptom management strategies.This study described experience of cancer. The explored frequencies individual severity, duration, distress during course hospitalization.Participants completed Memorial Symptom Assessment Scale 7-12 each 12-hour shift 3-day/3-night...
Background The aim of this study was to evaluate the feasibility and acceptability a computer‐based symptom cluster heuristics tool designed explore clusters experienced by adolescents young adults (AYAs) with cancer. Computerized Symptom Capture Tool (C‐SCAT) is newly developed iPad application, which combines graphical images free text responses in an innovative approach symptoms clusters. Procedure Seventy‐two AYAs (13–29 years age) cancer at five institutions across US completed C‐SCAT...
To explore the feasibility and acceptability of use a smartphone medication reminder application to promote adherence oral medications among adolescents young adults (AYAs) with cancer. .23 AYAs cancer from Children's Oncology Group-affiliated children's hospital National Cancer Institute-designated comprehensive center in Salt Lake City, UT. .Participants were asked for eight weeks. Data on usage obtained cloud-based server hosted by developers. Weekly self-report questionnaires completed....
Abstract Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during treatment. Because the typical approach to symptom assessment does not easily reflect of individuals, alternative approaches enhancing communication between patient provider are needed. We developed an iPad‐based application that uses a heuristic explore AYAs' experiences. In this mixed‐methods descriptive study, 72 AYAs (13–29 years old) receiving myelosuppressive chemotherapy used...
This cross-sectional study described how school-aged children with cancer represent their symptoms and associated characteristics using draw-and-tell interviews.
We investigated insurance coverage among adolescents and young adults (AYA) with cancer before during the COVID-19 pandemic. AYAs diagnosed 15-39 years of age were identified using Utah Cancer Registry records linked University electronic health records. Poisson models calculated incidence rate ratios (IRRs) pre-pandemic (11/4/2017-3/5/2020; n = 2,140) pandemic (3/6/2020-7/6/2022; 1,894) periods. Prior to pandemic, gaps higher (pre-pandemic 16.40%, 13.73%; IRR 0.84, 95%CI 0.71-0.98); more...
<sec> <title>BACKGROUND</title> Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during treatment, yet few developmental relevant resources have been developed to help them self-manage their symptoms. Empowering patients a more active role in self-management treatment may lessen symptom severity distress. </sec> <title>OBJECTIVE</title> This project will test an intervention designed improve self-management, the Computerized Symptom Capture Tool...
Purpose/Objectives: To describe nighttime sleep-wake patterns during a 12-hour night shift among school-age children with cancer receiving inpatient chemotherapy and relationships sleep, environmental stimuli, medication doses, symptoms that shift.
Purpose: Adolescents and young adults (AYAs) with cancer need self-management strategies to cope multiple symptoms. Self-efficacy, self-regulation, negotiated collaboration are key theoretical components of the process have not been fully explored AYAs cancer. This study examined effects a heuristic symptom assessment tool on AYAs' self-efficacy for management, self-regulation abilities related their symptoms, communication providers about Methods: (15–29 years age) receiving chemotherapy...
Abstract Purpose The purpose of this study was to describe group and individual characteristics nighttime sleep–wake patterns among school‐age children with cancer receiving inpatient chemotherapy. Design Methods This multiple‐case used wrist actigraphs sleep diaries measure for three nights in 15 cancer. Results Nighttime less than that required healthy marked by frequent awakenings. Individual variation evident. Practice Implications Interventions promote the hospital include system‐based...
Social media as an effective source of information and support among parents other caregivers children with cancer has not been explored. The purpose this cross-sectional study was to describe caregivers’ reasons for using social media, sites used, predictors usage. This sample included 215 (96% parents) receiving cancer-related care at a tertiary children’s hospital in the Intermountain West. Most (74%) reported relation their child’s provide receive about diagnosis or treatment. Our...
This study evaluated oral medication adherence among adolescents and young adults (AYAs) with cancer during a trial of smartphone-based reminder application (app).Twenty-three AYAs receiving at least one prescribed, scheduled related to their outpatient treatment participated in this 12-week single-group interrupted time series longitudinal design study. Baseline was monitored using electronic monitoring caps for 4 weeks. Participants then used app continued have 8 completed an...
An increased intensity of inpatient treatment, hospital-based routines, and separation from the familiar home environment may collectively increase burden pediatric cancer experience. This study explored children adolescents' perceived sources bother related to hospitalization using two questions: (1) What bothered you most about hospital or environment? (2) do think could improve Fifty adolescents (mean age 12.6 years) responded these questions during each shift a 3-day/3-night data...
Background: Children with cancer must cope not only their disease and its treatment but also the environment in which is given. The intensities of sound light levels required to perform necessary patient care may result a disruptive nighttime environment. Objective: purpose this study was describe patterns environmental factors, sound, light, temperature levels, at bedside children receiving inpatient chemotherapy. Methods: Participants were 15 school-aged chemotherapy on an pediatric...