A5045427567- Family Support in Illness
- Family and Disability Support Research
- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Maternal Mental Health During Pregnancy and Postpartum
- Reproductive Biology and Fertility
- Reproductive Health and Technologies
- Family Caregiving in Mental Illness
- Child and Adolescent Psychosocial and Emotional Development
- Sperm and Testicular Function
- Intergenerational Family Dynamics and Caregiving
- Family and Patient Care in Intensive Care Units
- Delphi Technique in Research
- Emergency and Acute Care Studies
- Child Nutrition and Feeding Issues
- Child and Adolescent Health
- Migration, Aging, and Tourism Studies
- Retirement, Disability, and Employment
- LGBTQ Health, Identity, and Policy
- Health Promotion and Cardiovascular Prevention
- Healthcare innovation and challenges
- Healthcare Policy and Management
- Evolutionary Psychology and Human Behavior
- Socioeconomic and Demographic Analysis
- COVID-19 and healthcare impacts
University College London
2021-2024
Newcastle University
2013-2024
Anna Freud Centre
2021-2024
Amsterdam University of Applied Sciences
2024
Royal Victoria Infirmary
2013-2018
University of Sheffield
2012-2014
Most evidence about what works in transitional care comes from small studies single clinical specialties. We tested the hypothesis that exposures to nine recommended features of healthcare were associated with better outcomes for young people long-term conditions during transition child-centred adult-oriented health services.This is a longitudinal, observational cohort study UK secondary including 374 people, aged 14-18.9 years at recruitment, type 1 diabetes (n = 150), cerebral palsy 106)...
Despite the high frequency of anxiety and depression symptoms in individuals with Autism Spectrum Disorder (ASD) a significant impact these comorbidities on both ASD their families, research validity measures population is currently lacking. The aim this study was to explore psychometric properties Hospital Anxiety Depression Scale [HADS; Zigmond & Snaith, ] sample older adolescents young adults ASD. One hundred fifty one participants (UK Transition longitudinal study: N = 106; 75 males,...
Young people with complex health needs have impairments that can limit their ability to carry out day-to-day activities. As well as coping other developmental transitions, these young must negotiate the transfer of clinical care from child adult services. The process transition may not be smooth and both social outcomes suffer. Increasingly, policy-makers recognised need ensure a smoother between children's services, processes are holistic, individualised, person-centred; however, there is...
Background As young people with long-term conditions move from childhood to adulthood, their health may deteriorate and social participation reduce. ‘Transition’ is the ‘process’ that addresses medical, psychosocial educational needs of during this time. ‘Transfer’ ‘event’ when medical care moves children’s adults’ services. In a typical NHS Trust serving population 270,000, approximately 100 requiring secondary reach age 16 years each year. transition extends over about 7 years, number in...
STUDY QUESTIONWhat medical and psychological variables predict why men with banked sperm do not return for semen analysis after their cancer treatment has ended?
Sperm banking is recommended for all men diagnosed with cancer where treatment associated risk of long-term gonadatoxicity, to offer the opportunity fatherhood and improved quality life. However, uptake sperm lower than expected little known about why refuse. Our aims were determine: (i) demographic medical variables decisions (ii) differences in life between bankers non-bankers at diagnosis (Time 1 (T1)) year later 2 (T2)).Questionnaires completed by 91 (response rate=86.67%) T1 78 (85.71%...
Objective:The present research tested whether an evaluative conditioning intervention makes thin-ideal models less enviable as standards for appearance-based social comparisons (Study 1), and increases body satisfaction 2).Design: Female participants were randomly assigned to versus control conditions in both studies (ns ϭ 66 39).Intervention learned associate with synonyms of fake whereas completed equivalent task that did not involve learning this association.Main outcome measures: The...
Objectives To understand how health, education and social care services for disabled children changed during the COVID-19 pandemic, what did or not work well impacts of service changes were on both professionals families. Design Qualitative study using semistructured interviews. Setting Telephone video call interviews focus groups with working in one five local authority areas England. Participants 78 Results There was a significant disruption to reduced contact families early stages...
Objectives In England, the delivery of health, education and social care services changed substantially during COVID-19. Some closed, some had reduced capacity there was a shift to use telehealth. This study aimed understand how families children young people with neurodisability experienced these service changes, what did or not work well for them impact changes on them. Design Qualitative parent carers (aged 0–19 years) accessing children’s education-based COVID-19 pandemic. Setting...
For many young people with long term conditions (LTC), transferring from paediatric to adult health services can be difficult and outcomes are often reported poor. We report the characteristics representativeness of three groups LTCs as they approach transfer services: those autism spectrum disorder additional mental problems (ASD); cerebral palsy (CP); or diabetes. Young aged 14 years-18 years 11 months ASD, diabetes were identified children's CP population databases. Questionnaires,...
For young people with autism spectrum disorder (ASD), the transition from childhood to adulthood especially for those additional mental health problems can be challenging. Increasing numbers of attending child and adolescent services (CAMHS) have a recognised diagnosis ASD. What are outcomes these when they discharged CAMHS how best support their needs? In this editorial we consider emerging literature on long-term conditions in particular Longer term studies suggest that individuals ASD...
Sperm banking is routinely offered to men where there a risk of infertility following cancer treatment but uptake lower than expected. Since these may turn the internet for information, we used search engine www.google.com identify material available about sperm and fertility preservation options. Sixty-six resources (NHS/Private Clinic, Charity, Press Releases, General Forums/Blogs) fulfilled criteria inclusion were examined quality including readability, layout content. The most frequently...
Background Lung cancer is the most common and smoking principal cause. Due to poor survival rates, symptom palliation promotion of health-related quality life (HRQoL) are primary outcomes for lung patients. Given established relationship between cancer, patients who have smoked may feel stigmatised or guilty after diagnosis, more pessimistic about their illness likely outcomes. This adverse implications HRQoL. Objectives We explored HRQoL support experiences among newly diagnosed with...
Supporting children to successfully transition from primary secondary school is of utmost importance for several reasons, including prevent future emotional and behavioural problems. Level Up a novel, UK-based intervention consisting five online group sessions, straddling the summer holidays, providing at-risk their parents/carers with skills manage behaviour, emotions, relationships support school. A prior evaluation reported need better describe mechanisms change. This study therefore...
To seek consensus on recommendations for the delivery of services to disabled children in England during future emergencies.
Background Transition from child-centred to adult mental health services has been reported as challenging for young people. It can be especially difficult people with autism spectrum disorder (ASD) they manage the challenges of adolescence and navigate leaving child adolescent (CAMHS). Aims This study examines predictors transfer services, using a qualitative analysis, explores people’s experiences transition. Method A UK sample 118 aged 14–21 years, ASD additional problems, recruited four...
Background: There is increased interest in early intervention and prevention of mental health difficulties during adolescence; thus, we are seeing efforts to optimize well-being this epoch. Positive emotional experiences a central component overall well-being. However, research exploring what adolescents perceive be the cause(s) their lacking. Improving understanding issue within non-clinical adolescent groups may provide useful insight into how develop strategies support young people as...
Available evidence indicates that grandparents can play a crucial role in supporting and caring for disabled grandchildren the entire family unit, yet lived experiences of grandparenting this context has received scant attention research, policy or practice. This study explored grandparents’ perspectives on their intergenerational relationships within as they age. Narrative interviews were conducted with 20 (aged 60–85 years), who had grandchild range disabilities 4–19 years). Key themes...
Long-term storage of banked sperm, especially when it is not needed, for reproductive purposes, costly and poses practical problems sperm banks. For banks to function efficiently, men must understand the implications unnecessary storage, make timely decisions about disposal their own samples. Men who bank prior cancer treatment are routinely offered follow-up consultations test fertility, update consent and, where necessary, expedite referral Assisted Conception. Yet report that do respond...
Current policy in the UK recommends that men bank sperm prior to cancer treatment, but very few return use it for reproductive purposes or agree elective disposal even when their fertility recovers and families are complete. We assessed demographic, medical psychological variables influence decision dispose by contacting (n = 499) who banked more than five years previously, asked them complete questionnaires about views on banking, disposal. From 193 responses (38.7% response rate), 19...
<sec> <title>BACKGROUND</title> In the UK 1 in 4 children are exposed to parental mental illness, and families living with illness (PMI) poorly provided for across social health care settings. Whole-family interventions provide promising means enhance families’ overall functioning, health, wellbeing. </sec> <title>OBJECTIVE</title> We evaluated how PMI experienced a modified version of KidsTime intervention. contrast original in-person programme, intervention was be delivered online later...