A5080805788- Family and Disability Support Research
- Down syndrome and intellectual disability research
- Disability Education and Employment
- Infant Development and Preterm Care
- Healthcare innovation and challenges
- Disability Rights and Representation
- Elder Abuse and Neglect
- Autism Spectrum Disorder Research
- Counseling, Therapy, and Family Dynamics
- Child and Adolescent Psychosocial and Emotional Development
- Childhood Cancer Survivors' Quality of Life
- Psychiatric care and mental health services
- Behavioral and Psychological Studies
- Family Support in Illness
- Chronic Disease Management Strategies
- Cerebral Palsy and Movement Disorders
- Child Therapy and Development
- COVID-19 and Mental Health
- Healthcare Systems and Public Health
- Educational and Psychological Assessments
- Advanced Technologies in Various Fields
- Long-Term Effects of COVID-19
- Assistive Technology in Communication and Mobility
- Intraperitoneal and Appendiceal Malignancies
- Mental Health and Patient Involvement
University of Warwick
2017-2025
Lankenau Medical Center
2021
University of Chester
2015-2017
Having a disability, in particular, an intellectual is associated with Internet non-use. This article explores how people disabilities used the across United Kingdom during COVID-19 pandemic. In April to May 2021, 571 adults were interviewed. Participants most commonly for being family and friends, social media or doing online activities other people. People who lived likely use media; least likely. self-reported as not lonely more others play video games others. Social connections...
Abstract Background For the potential benefits of trials to reach all that they should, must be designed ensure those taking part reflect population who will receive intervention. However, adults with impaired capacity consent are frequently excluded from — partly because researchers unfamiliar legal and ethical frameworks lack necessary methodological expertise. Researchers identified a need for guidance on designing more inclusive trials. Building NIHR INCLUDE initiative, we developed...
Abstract Objectives Family carers of people with intellectual disabilities (ID) are twice as likely other to experience stress and mental ill-health, but research exploring interventions is sparse. Online mindfulness may provide an accessible, cost-effective resource. The addition guided telephone support could help tailor existing intervention for this population. A feasibility randomized controlled trial (RCT) was conducted inform the development a definitive RCT. Methods Sixty...
Positive Family Connections is a coproduced, positively oriented, family-systems program for families of children with developmental disability aged 8-13 years. The study was feasibility cluster randomized-controlled trial which registered prospectively (International Standard Randomised Controlled Trial Number 14809884). Families (clusters) were randomized 1:1 to take part in immediately or waitlist condition and followed up 4 months 9 after randomization. Feasibility outcomes included...
Abstract Background One in five adults with intellectual disabilities (ID) known to services display challenging behaviours (CBs), and these individuals are at risk for restrictive practices poor care. Staff attitudes may contribute the development and/or maintenance of CBs. We investigated effectiveness co‐produced Who's Challenging Who? training delivered by people ID staff. Method This study involved a cluster randomised controlled trial (RCT) follow‐up six 20 weeks post‐randomisation....
Few empirical studies have explored cancer-related experiences of people with an intellectual disability (ID), despite rising cancer incidence in this population. The present research aims to better understand the population from multiple perspectives, generating theory and further questions.Six ID cancer, alongside 12 participants their supportive network (including family social health care professionals), were interviewed; transcripts analyzed using grounded theory.People often overlooked...
Abstract Background Within England, children and young people (CYP) who come into police custody are referred to Liaison Diversion (L&D) teams. L&D teams have responsibility for liaising with healthcare other support services while working divert CYP away from the criminal justice system but traditionally not provided targeted psychological interventions CYP. Considering evidence that Solution Focused Brief Therapy (SFBT) leads a reduction in internalising externalising behaviour...
Purpose This paper aims to present data about access health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland Wales. Design/methodology/approach Data were collected directly from 621 through separate proxy reports by family carers paid support staff of another 378 disabilities. The between December 2020 February 2021 concerned use since start first national lockdown in March 2020. Findings Access...
Given the much greater COVID-19 mortality risk experienced by people with intellectual disabilities (ID), understanding willingness of ID to take a vaccine is major public health issue.In December 2020 February 2021, across United Kingdom, 621 adults were interviewed remotely and 348 family carers or support workers needs completed an online survey, including question on if offered.Eighty-seven per cent interviewees willing vaccine, associated white ethnicity, having already had flu gaining...
Abstract Background During the Covid‐19 pandemic, there has been a worldwide increase in use of digital technology. Many people with learning disabilities have learned new skills, taken part online activities, and kept touch family friends using video calls. However, experiences participation or nonparticipation for profound multiple (PMLD) is less understood. Method Between December 2020 August 2021, carers paid support workers adults PMLD completed an survey around person they care during...
Short sleep duration is a known risk factor for suicidality in the general population, yet it unclear how short interacts with autism traits predicting suicidality. In this cross-sectional online study, population sample (N = 650) completed measures assessing traits, suicidal ideation, and duration. Moderated hierarchical regressions demonstrated that higher shorter were independent predictors of increased suicide ideation. However, did not significantly moderate trait to ideation...
Decreasing costs of genetic testing and advances in treatment for women with cancer germline BRCA1/BRCA2 mutations have heralded more inclusive programs. The Genetic Testing Epithelial Ovarian Cancer (GTEOC) Study, investigates the feasibility acceptability offering to all recently diagnosed epithelial ovarian (universal or UGT). Study participants staff were interviewed to: (i) assess impact UGT (ii) integrate patients' perspectives development new Semi-structured interviews conducted...
Purpose The purpose of this paper is to present data about the experiences adults with learning disabilities during COVID-19 pandemic across UK. Design/methodology/approach Interviews were conducted 609 disabilities. Family carers and support staff another 351 completed a proxy online survey. collected between December 2020 February 2021 concerned both worries/negatives anything positive that had happened because pandemic. Findings Social isolation was most commonly reported worry/negative...
This article is a co-authored account of the co-production process for Who's Challenging Who? (WCW) training intervention and research project (Hastings et al In Press). this article, authors consider whether facilitation valued roles through can lead to people with learning disabilities being able influence support they receive, what other benefits successful provides. People worked WCW team co-produce identified personal involved, including increased social networks; effect on their...
Background: Parents of children with intellectual disabilities are likely to experience poorer mental well-being and face challenges accessing support. Early Positive Approaches Support (E-PAtS) is a group-based programme, co-produced parents professionals, based on existing research evidence developmental systems approach support parental well-being. The aim this study was assess the feasibility community service provider organisations delivering E-PAtS parents/family caregivers young...