Nick Hulbert-Williams

ORCID: 0000-0001-9041-5485
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About
Contact & Profiles
Research Areas
  • Cancer survivorship and care
  • Family Support in Illness
  • Childhood Cancer Survivors' Quality of Life
  • Palliative Care and End-of-Life Issues
  • Mindfulness and Compassion Interventions
  • Cancer-related cognitive impairment studies
  • Digital Mental Health Interventions
  • Patient-Provider Communication in Healthcare
  • Complementary and Alternative Medicine Studies
  • Mental Health Research Topics
  • Family and Disability Support Research
  • Grief, Bereavement, and Mental Health
  • Medication Adherence and Compliance
  • Healthcare professionals’ stress and burnout
  • Down syndrome and intellectual disability research
  • LGBTQ Health, Identity, and Policy
  • Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
  • BRCA gene mutations in cancer
  • Nutrition, Genetics, and Disease
  • Resilience and Mental Health
  • Health Systems, Economic Evaluations, Quality of Life
  • Optimism, Hope, and Well-being
  • Health, psychology, and well-being
  • COVID-19 and Mental Health
  • Eating Disorders and Behaviors

Edge Hill University
2022-2025

Peter MacCallum Cancer Centre
2024

The University of Melbourne
2024

University of Chester
2014-2023

International Paper (United States)
2020

Skin and Cancer Foundation
2019

Cancer Australia
2019

Contextual Change (United States)
2019

Cheshire West and Chester
2016

University of Wolverhampton
2004-2008

Adherence to adjuvant endocrine therapy (AET) following breast cancer is known be suboptimal despite its efficacy in reducing recurrence and mortality. This study aims investigate factors associated with non-adherence inform the development of interventions support women promote adherence. A questionnaire survey measure level adherence, side effects experienced, beliefs about medicine, received socio-demographic details was sent 292 2–4 years post diagnosis. Differences between non-adherers...

10.1111/ecc.12601 article EN European Journal of Cancer Care 2016-11-30

Abstract Objective Significant numbers of cancer patients suffer distress, reduced quality life and various other psychological problems. Evidence regarding predictors these outcomes is inconsistent. This study explored a range using an established framework to identify the most important adjustment, when are best assessed for optimal outcome prediction. Methods One hundred sixty newly diagnosed breast, colorectal, lung prostate completed questionnaires after diagnosis at 3‐ 6‐month...

10.1002/pon.1980 article EN Psycho-Oncology 2011-06-21

<h3>Background</h3> Over recent years genetic testing for germline mutations in <i>BRCA1/BRCA2</i> has become more readily available because of technological advances and reducing costs. <h3>Objective</h3> To explore the feasibility acceptability offering to all women recently diagnosed with epithelial ovarian cancer (EOC). <h3>Methods</h3> Between 1 July 2013 30 June 2015 newly EOC were recruited through six sites East Anglia, UK into Genetic Testing Epithelial Ovarian Cancer (GTEOC) study....

10.1136/jmedgenet-2016-103902 article EN cc-by-nc Journal of Medical Genetics 2016-05-12

Introduction: Despite evidence of the efficacy adjuvant endocrine therapy (AET) in reducing risk recurrence and mortality after treatment for primary breast cancer, adherence to AET is suboptimal. This study aimed explore factors that influence nonadherence following cancer inform development supportive interventions. Methods: Interviews were conducted with 32 women who had been prescribed AET, 2–4 years their diagnosis cancer. Both adherers (n=19) nonadherers (n=13) recruited. The analysis...

10.2147/ppa.s145784 article EN cc-by-nc Patient Preference and Adherence 2018-02-01

The COVID-19 pandemic is having considerable impact on cancer care, including restricted access to hospital-based treatment and psychosocial support. We investigated the unmet needs well-being.One hundred forty four participants (77% female), people with their support networks, were recruited. most prevalent diagnosis was breast cancer. Forty-one recruited pre-pandemic compared 103 during pandemic. measured participants' supportive care needs, psychological distress quality of life.Half our...

10.1111/ecc.13442 article EN European Journal of Cancer Care 2021-03-25

Background The North West Coast area of England (Lancashire, Merseyside, Cheshire and South Cumbria) has high palliative care need (third highest prevalence in England) historically low recorded National Institute for Health Care Research research activity (second lowest recruitment rate England). To stimulate activity, a new partnership was formed to support encourage research, funded by the from January 2022 until June 2023. Objectives develop sustainable infrastructure across Coast. work...

10.3310/awlt2995 article EN publisher-specific-oa Public Health Research 2025-03-01

Understanding the effects of population diversity on cancer-related experiences is a priority in oncology care. Previous research demonstrates inequalities arising from variation age, gender and ethnicity. Inequalities sexual orientation remain underexplored. Here, we report, for first time UK, quantitative secondary analysis 2013 UK National Cancer Patient Experience Survey which contains 70 questions specific aspects care, six overall care experiences. 68,737 individuals responded, whom...

10.1111/ecc.12670 article EN European Journal of Cancer Care 2017-02-27

Fear of cancer recurrence (FCR) is common amongst survivors. There rapidly growing research interest in FCR but a need to prioritize address the most pressing clinical issues and reduce duplication fragmentation effort. This study aimed establish international consensus among academic experts regarding priorities for research.Members International Psycho-oncology Society (IPOS) Cancer Recurrence Special Interest Group (FORwards) were invited participate an online Delphi study. Research...

10.3389/fpsyg.2021.596682 article EN cc-by Frontiers in Psychology 2021-02-22

PURPOSE The number of cancer survivors living with and beyond treatment is rising globally. It fundamental to understand the extent type psychosocial care services offered worldwide. We evaluated models survivorship care, practices in post-treatment phase, barriers/facilitators delivery services, including low- middle-income countries (LMICs). METHODS International Psycho-Oncology Society (IPOS) Survivorship Special Interest Group led a cross-sectional online survey between March November...

10.1200/go.23.00418 article EN cc-by-nc-nd JCO Global Oncology 2024-05-01
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