A5012459270- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Acute Lymphoblastic Leukemia research
- Palliative Care and End-of-Life Issues
- Advanced Chemical Sensor Technologies
- Essential Oils and Antimicrobial Activity
- Analytical Chemistry and Chromatography
- Olfactory and Sensory Function Studies
- Odor and Emission Control Technologies
- Glioma Diagnosis and Treatment
- Cancer survivorship and care
- Adolescent and Pediatric Healthcare
Vrije Universiteit Amsterdam
2019-2025
Emma Kinderziekenhuis
2019-2025
Princess Máxima Center
2023-2025
Amsterdam University Medical Centers
2019-2025
University of Amsterdam
2019
PURPOSE The number of cancer survivors living with and beyond treatment is rising globally. It fundamental to understand the extent type psychosocial care services offered worldwide. We evaluated models survivorship care, practices in post-treatment phase, barriers/facilitators delivery services, including low- middle-income countries (LMICs). METHODS International Psycho-Oncology Society (IPOS) Survivorship Special Interest Group led a cross-sectional online survey between March November...
Pediatric brain tumors are understudied compared to other pediatric malignancies in low- and middle-income countries. Care delivery is inherently dependent on collaboration between multiple departments. This study aimed present baseline data of neuro-oncology care Western Kenya illustrate barriers facilitators multidisciplinary care. We performed a mixed-methods using medical records interviews. Children below age 19 years, managed for tumor at the neurosurgery or oncology departments 2015...
Introduction: Fecal volatile organic compounds (VOCs) are gaseous metabolic products which increasingly considered potential non-invasive biomarkers for the detection of various (gastrointestinal) diseases. The influence lifestyle factors on fecal VOC patterns remains unexplored but is importance prior to implementation analysis as a diagnostic tool. aim this study was investigate effects age, gender, body mass index, smoking status, dietary preferences, medication use and co-morbidity...
The WHO Global Initiative for Childhood Cancer will likely increase the number of childhood cancer survivors in resource-poor countries. This study explored survivorship care Kenya through parental reports on late effects and follow-up needs survivors. Parents Kenyan (under 18 years old) who completed treatment at least one year were interviewed using semi-structured questionnaires from 2021 to 2022. 54 interviewed. Survivors had solid tumors (52%) hematological (48%). Most received...
Endoscopic evaluation is mandatory in establishing the diagnosis of pediatric inflammatory bowel disease (IBD), but unfortunately carries a high burden on patients. Volatile organic compounds (VOC) have been proposed as alternative, noninvasive diagnostic biomarkers for IBD. The current study aimed to assess and compare potential fecal urinary VOC IBD an intention-to-diagnose cohort. In this cohort study, patients aged 4-17 years, referred outpatient clinic tertiary referral center under...
Abstract Objectives Childhood cancer survivors' social reintegration may be hampered in low and middle‐income countries. The nature extent of challenges prejudices that survivors encounter such settings are largely unknown. This study explores caregivers' perspectives on stigmatization Kenyan childhood survivors. Methods Caretakers (<18 years) were interviewed using mixed‐methods questionnaires during home or clinic visits between 2021 2022. Stigma was assessed with an adjusted Social...
The population of childhood cancer survivors in low- and middle-income countries is set to increase due diagnosis treatment advancements. However, still associated with stigma that may hinder societal re-entry. This study explores the social reintegration stigmatization Kenyan develop targeted interventions for follow-up care.
Background: The number of children surviving cancer in low and middle-income countries is expected to grow the coming years. Knowledge about late effects follow-up preferences Kenya lacking.Objectives: This study assessed self-reported Kenyan childhood survivors explored their for survivorship care.Methods: Childhood survivors, having successfully completed treatment at least one year, were interviewed using semi-structured questionnaires during clinic or home visits between 2021-2022....
Childhood cancer survival is increasing in low- and middle-income countries like Kenya, which comes with a new healthcare challenge: late effects quality-of-life of survivors. A case was studied to depict Kenyan Hodgkin lymphoma survivor, illustrating some the childhood survivors' difficulties Kenya. Late therapy, stigmatization social reintegration were explored. The investigators reviewed medical records used semi-structured interviews stigma assessments using Social Impact Scale. survivor...