Courtney Segal
A5063274555- Aortic Disease and Treatment Approaches
- Electronic Health Records Systems
- Health Systems, Economic Evaluations, Quality of Life
- Aortic aneurysm repair treatments
- Primary Care and Health Outcomes
- Health Policy Implementation Science
- Cardiac Valve Diseases and Treatments
- Data-Driven Disease Surveillance
- Telemedicine and Telehealth Implementation
- COVID-19 Digital Contact Tracing
- Cardiac Structural Anomalies and Repair
- Ethics in Clinical Research
- Patient Satisfaction in Healthcare
- Cardiac Health and Mental Health
- Mobile Health and mHealth Applications
- COVID-19 epidemiological studies
- Healthcare Systems and Technology
- Cancer survivorship and care
- Chronic Disease Management Strategies
- Healthcare cost, quality, practices
- Patient-Provider Communication in Healthcare
- Health disparities and outcomes
- Diabetes Management and Research
- Infectious Aortic and Vascular Conditions
- Gun Ownership and Violence Research
University of Washington
2016-2024
Health Services Research & Development
2021
Kaiser Permanente Washington Health Research Institute
2021
VA Puget Sound Health Care System
2021
University of North Carolina at Chapel Hill
2019
AcademyHealth
2012-2014
Abstract Purpose Supporting the capture and use of patient-reported outcomes (PROs) at point-of-care enriches information about important clinical quality life outcomes. Yet ability to scale PROs across healthcare systems has been limited by knowledge gaps around how manage diversity PRO uses leverage health technology. In this study, we report learnings practice insights from UW Medicine’s transformation efforts incorporate patient voice into multiple areas care. Methods Using a...
Web-based collection of patient-reported outcome measures (PROMs) in clinical practice is expanding rapidly as electronic health records include web portals for patients to report standardized assessments their symptoms. As the value PROMs patient care expands, a framework guide implementation planning, collection, and use PROs serve multiple goals stakeholders needed.We identified diverse clinical, quality, research settings where have been successfully integrated into routinely collected...
The Electronic Data Methods (EDM) Forum brings together perspectives from the Prospective Outcome Systems using Patient-specific data to Compare Tests and therapies (PROSPECT) studies, Scalable Distributed Research Networks, Enhanced Registries projects. This paper discusses challenges faced by research teams as part of their efforts develop electronic clinical (ECD) infrastructure support comparative effectiveness (CER). findings reflect a set opportunities for transdisciplinary learning,...
AcademyHealth convened the Electronic Data Methods (EDM) Forum to collect, synthesize, and share lessons from eleven projects that are building infrastructure using electronic clinical data for comparative effectiveness research (CER) patient-centered outcomes (PCOR). This paper provides a brief review of participating framework common challenges.EDM staff conducted text relevant grant programs' funding opportunity announcements; projects' plans; available information on websites. Additional...
Addressing firearm access is recommended when patients are identified as being at risk of suicide. However, the practice assessing controversial, and no national guidelines exist to inform practice. This study qualitatively explored patient perspectives on a routine question about optimize centeredness this in context suicide risk.Electronic health record data were used identify primary care reporting depressive symptoms, including suicidal thoughts, within 2 weeks sampling. Participants...
Foundational to a learning health system (LHS) is the presence of data infrastructure that can support continuous and improve patient outcomes. To advance their capacity drive patient-centered care, systems are increasingly looking expand electronic capture data, such as patient-reported outcome (ePRO) measures. Yet ePROs bring unique considerations around workflow, measurement, technology may not be poised navigate. We report on our effort develop generalizable learnings integration into...
Despite the demonstrated value of patient-centered care, health systems have been slow to integrate patient's voice into care delivery through patient-reported outcomes (PROs) with electronic tools. This is due in part complex interplay technology, workflow, and human factors that shape success PROs (ePROs) use. The 2018 American Medical Informatics Association Annual Symposium served as setting for a half-day interactive workshop diverse stakeholders discuss proposed best practices...
Thoracic aortic aneurysm and dissection are complex diagnoses that require management by multidisciplinary providers using a variety of medical therapies, surgical interventions, lifestyle modifications. Pharmacological agents, such as β-blockers (atenolol) angiotensin II type 1 receptor blockers (losartan), have been mainstay treatments for several years, research from the past decade has continued to evaluate these other medication classes further improve patient morbidity mortality....
Background: Web-based collection of patient-reported outcome measures (PROMs) in clinical practice is expanding rapidly as electronic health records include web portals for patients to report standardized assessments their symptoms. As the value PROMs patient care expands, a framework guide implementation planning, collection, and use PROs serve multiple goals stakeholders needed.Methods: We identified diverse clinical, quality, research settings where have been successfully integrated into...
Understanding what matters most to patients can help guide research in a direction that is best situated provide evidence responsive their core concerns. This better inform the treatment decision-making process for and physicians. The Aortic Dissection (AD) Collaborative built collaborative AD infrastructure involving other stakeholders facilitate patient-centered outcomes training, support, networking among those affected by AD. Two surveys semi-structured interviews were conducted between...
Abstract Background Secure and anonymous smartphone-based exposure notification tools are recently developed public health interventions that aim to reduce COVID-19 transmission supplement traditional suriveillance. We assessed the impact of Washington State’s tool, WA Notify, in mitigating spread during its first four months implementation. Methods Due constraints privacy-preservation, aggregate metrics disparate data sources were utilized estimate number cases averted based on a modelling...
Aortic dissection (AD) is a life-changing event that often accompanied by loss of normal quality life. Survivors AD go on to have chronic disease requires lifestyle modification, medical management, and surgical repair the aorta. Clinical care includes multiple disciplines, health settings, different geographic locations. This qualitative assessment examined experiences people with at risk for AD. The following four themes emerged: "unnecessary drama" diagnosis, unmet needs information...
The 11 big health data networks participating in the AcademyHealth Electronic Data Methods Forum represent cutting-edge efforts to harness power of for research and quality improvement. This paper is a comparative case study based on site visits conducted with subset these large infrastructure grants funded through Recovery Act, which four key issues emerge that can inform evolution learning systems, including importance acknowledging challenges scaling specialized expertise needed manage...
Background & significance: The AcademyHealth Electronic Data Methods Forum aims to advance the national dialogue on use of electronic clinical data (ECD) for comparative effectiveness research (CER), patient-centered outcomes research, and quality improvement by facilitating exchange collaboration among eleven projects external stakeholders. conducted a mixed-method needs assessment with Forum’s key stakeholders assess: stakeholder views developing new infrastructure CER using ECD;...
The Aortic Dissection (AD) Collaborative was established to evaluate patient-centered research priorities in AD. Education identified as a topic of interest by the stakeholders. AD Working Group evaluated existing educational resources and areas amenable comparative effectiveness research. most important positive qualities available education are ease use, diversity representation, accessibility, organization. negative these non-patient-centered language, promotional themes, those with...
The Recovery Act provided a substantial, one-time investment in data infrastructure for comparative effectiveness research (CER). A review of the publications, data, and tools developed as result this support has informed understanding level effort undertaken by these projects. Structured search queries, well outreach efforts, were conducted to identify resources from American Reinvestment 2009 CER projects building electronic clinical infrastructure. findings study provide spectrum...
Aortic dissection (AD) is a life-threatening rare disease that occurs as spontaneous tear in the wall of aorta. Survivors AD go on to have chronic process requires lifelong follow-up and management. Although COVID-19 pandemic has strained health systems impacted practice United States, effects these impacts people living with or at risk for not well understood. This mixed methods project examined experiences community during between March October 2020. Results reveal lacked clear guidance...