Healthcare provider self-disclosures are common although sometimes controversial. Providers have unique opportunities to self-disclose for the purpose of conveying empathic concern during Dignity Therapy sessions. We examine topics (ESDs) analyzed 203 audio-recorded, transcribed sessions from a stepped-wedge, randomized trial led by 14 nurses and chaplains in outpatient palliative care. extracted 117 ESDs across applied thematic analysis guided constant comparative method generate ESD topic...

ABSTRACT Background Emerging and young adult caregivers (EYACs) who provide care to a parent with advanced cancer are underrepresented in caregiving scholarship, yet, not uncommon. Little is known about the psychosocial impacts of caring for at this age or how EYACs manage their uncertainty regarding own, potentially elevated, future risk. Aims To employ Uncertainty Management Theory (UMT) examine bereaved died appraise personal Methods We conducted secondary analysis in‐depth,...

Background: Although empathic responding is considered a core competency in specialty palliative care (PC), patterns of communication PC encounters are not well understood. Objectives: In this secondary analysis, we delineate types and frequency examine relationships between patient opportunities clinician responses. Design: We used the Empathic Communication Coding System to analyze across three types: emotion (i.e., negative affective state), progress stated recent positive life event or...

Advanced cancer caregivers in emerging and young adulthood (EYACs; ages 18–35) are an understudied yet vulnerable caregiving population. The COVID-19 pandemic created new challenges for advanced but also unique contexts from which sometimes benefited. To understand how the may have positively negatively impacted their bereavement experiences, we examined EYACs’ experiences of caring losing a parent with during comparison to those EYACs who died outside context pandemic. Eligible completed...

The experience of loss has not often been studied in the life story literature. Life disruption when a loved one occurs may make events distinct, even from other challenges, recalled. Optimally, individuals incorporate such into their way that allows them to reflect positively on overall. We suggest telling narratives represent as leading personal growth or highlighting one’s connectedness others allow positive view In contrast, ruminating signal lack meaningful integration event. current...

Abstract Family caregivers of older people with health needs often provide long-term, intensive support. Caregivers are, in turn, shaped by these caregiving experiences. According to the narrative identity framework, self-narratives from lived experiences influence self-beliefs and behaviors. We assert that family experiences, filtered through individuals’ memory systems as self-narratives, substantial scaffolding for navigating novel challenges late life. Self-narratives can guide positive...

This study identifies health care providers' perspectives on palliative at end of life (EOL) in a neuromedicine-intensive unit (Neuro-ICU) and barriers to providing care.Provider's EOL expertise is crucial making timely referrals as expectation patient death can be high. Barriers referral need clearly identified so engage quality initiatives that improve delivery.The survey design using mixed-methods approach. Providers large academic medical center, including doctors, nurses, social...

We investigated how death attitudes and experience relate to perspectives on advance care planning (ACP) in young adulthood, whether attending a Death over Dinner event affects ACP. Participants (N = 109) were assigned or waitlist control condition, completing pretest post-test measures. Higher Rejection having more Experience with predicted Reservations about Participation decreased toward ACP compared the group. appears be useful ameliorating reservations without shortening individuals'...

Nearly 500,000 older Americans die a cancer-related death annually. Best practices for seriously ill patients include palliative care that aids in promoting personal dignity. Dignity Therapy is an internationally recognized therapeutic intervention designed to enhance dignity the ill. Theoretically, provides opportunity make meaning by contextualizing their illness within larger life story. The extent which actually elicits meaning-making from patients, however, has not been tested.The...

Abstract Background Family caregivers offer essential support to persons living with dementia (PLWD). Providing care for more than one family member or close other across adulthood is becoming increasingly common, yet little known about the ways that caregiving experiences shape caregiver preparedness. The current study presents a grounded theory of future preparedness in former PLWD. Method A coding team (five coders and two auditors) used Consensual Qualitative Research techniques analyze...

People's preferences for memorializing loved ones vary and may depend on their personal attitudes experiences with death. Participants (N = 145) completed the checklist measures of life Factor analysis identified four preferences. In terms predicting preferences, greater acknowledgment death, having experienced more losses, predicted preference through societal tradition, community legacy, continuing intimacy. Greater death resistance less closeness to deceased confronting loss. Findings are...

The positive death movement has popularized considering one's mortality. Stemming from this,

Objective: Longitudinal assessment of patient–caregiver relationships will determine whether caregiver self-esteem determines patient relationship satisfaction at end life. Background: Research on close and caregiving supports the idea that informal caregivers' may influence their with terminally ill loved ones. However, this connection has not yet been investigated longitudinally, nor it applied specifically to care recipients' satisfaction. Methods: A sample 24 caregivers patients in a...

To examine the use of a web-based, self-directed health priorities identification tool for older adults with multiple chronic conditions (MCCs). We recruited gender- and racially-diverse, highly educated sample MCCs to engage our My Health Priorities tool, then complete semi-structured interview. Thematic analysis was used interview transcripts. Twenty-one participants shared perspectives on acceptability tool. Three themes (with eleven subthemes) were generated describe: website user...

Abstract Receiving another's autobiographical story may serve to elicit feelings of liking and empathy for the sharer. Research has mostly examined social functions stories in‐person communications. The current experiment ( N = 60) whether levels liking, closeness, felt a stranger (female confederate) after receiving her depended on if (a) was received or through instant message IM ), (b) positive negative. Liking having higher in conditions compared conditions. This effect mediated by how...

Background: End-of-life (EOL) supportive care, including palliative and hospice services, is an area of increasing importance in critical care. Neurointensivists face unique challenges providing timely care to terminally ill patients expected expire the NeuroICU. Objective: This study explored extent effective utilization of, recorded barriers to, services a dedicated 30-bed NeuroICU at large academic medical center. Design: A retrospective chart review who expired was conducted. The...