- Grief, Bereavement, and Mental Health
- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Religion, Spirituality, and Psychology
- Paranormal Experiences and Beliefs
- Family and Disability Support Research
- Health Promotion and Cardiovascular Prevention
- Criminal Justice and Corrections Analysis
- Health Systems, Economic Evaluations, Quality of Life
- Participatory Visual Research Methods
- Homelessness and Social Issues
- Healthcare Decision-Making and Restraints
- Patient Dignity and Privacy
- Cancer survivorship and care
- Sleep and Wakefulness Research
- Problem Solving Skills Development
- Digital Storytelling and Education
- Clinical Reasoning and Diagnostic Skills
- Stress and Burnout Research
- Art Therapy and Mental Health
- Alcoholism and Thiamine Deficiency
- Hereditary Neurological Disorders
- Health and Wellbeing Research
- Resilience and Mental Health
Brown University
2022-2024
University at Buffalo, State University of New York
2014-2021
Hospice Buffalo
2014-2020
End-of-life dreams and visions (ELDVs) are well documented throughout history across cultures with impact on the dying person their loved ones having profound meaning. Published studies ELDVs primarily based surveys or interviews clinicians families of dead persons. This study uniquely examined patient from personal perspective. article reports qualitative findings 63 hospice patients. Inductive content analysis was used to examine subjective significance ELDVs. Six categories emerged:...
Background: End-of-life dreams and visions (ELDVs) are prevalent experiences that provide comfort meaning to dying individuals. Limited research has examined the impact of ELDVs on bereaved. Objective: This study aimed explore differences in self-reported grief for people whose loved ones shared those who did not, describe role grieving process. Design: Mixed-methods cross-sectional survey. Settings/Subjects: A total 228 bereaved family caregivers (FCGs) patients died while under care a...
The processes of aging and confronting mortality are often accompanied by unique psychological challenges. From the perspective positive psychology, such challenges can yield opportunities for growth, including increased wisdom. This qualitative study explored 15 terminally ill hospice patients' perspectives on wisdom, dying process, meaning life using consensual research methods. Most participants cited humility as a key component emphasizing that "Wisdom is when we realize 'I don't really...
Background: The age demographic of the incarcerated is quickly shifting from young to old. Correctional facilities are responsible for navigating inmate access healthcare; currently, there no standardization end-of-life care. There growing research support prison-based care programs that incorporate peer caregivers as a way meet needs elderly and dying who incarcerated. Aim: This project aims (a) describe program utilizing caregivers, (b) identify inmate-caregiver motivations participation,...
Research indicates that informal caregiving can have intense physical and mental impact on the individual. Relative to caregivers of adults, pediatric palliative appear less in literature despite experiencing greater mental, physical, financial, social strain. There is limited research creation evaluation interventions specifically for this population clear need.This study aims evaluate feasibility engagement Photographs Meaning Program, a modified meaning-making intervention...
Background: Research has established End-of-Life Dreams and Visions (ELDVs) as prevalent, meaningful valid experiences that may help patients cope with illness approaching death. However, no inductive qualitative analysis explored the phenomenology of ELDVs from perspective hospice homecare patients. Objective: The purpose this study is to evaluate content by using a rigorous approach. Design: Five hundred forty-eight were collected weekly interviews analyzed Consensual Qualitative...
A growing number of correctional facilities train inmates to provide end-of-life care for dying inmates. This study explores the phenomenological perspective inmate-caregivers participating in an inmate-facilitated hospice program (IFHP) with regard meaning and purpose life, attitudes on death dying, perceived personal impact participation. Twenty-two were interviewed at a maximum-security state facility United States. The interviews transcribed verbatim analyzed using Consensual Qualitative...
Purpose: This study assessed the feasibility and preliminary efficacy of Photographs Meaning Program for Adolescent Young Adult cancer patients survivors (POM-AYA). Methods: POM-AYA is a structured 10-week meaning-based intervention in which participants post photographs accompanying narratives through social media platform. Measures depression, overall quality life (QoL), spiritual well-being were on consent (T1), after completing (T2) 2 months' postintervention (T3). Participants also...
Research is clear that palliative care workers (PCW) are at risk for burnout and secondary traumatic stress, it unclear how to address these risks support PCWs. A recent meta-analysis of interventions supporting PCWs reported despite ample programs implemented PCWs, most have failed demonstrate desired outcomes or based on nonrigorously tested research. This study seeks evaluate factors may contribute professional quality life (ProQoL) Specifically, uses structural equation modeling examine...
Background: End-of-life dreams and visions (ELDVs) can provide both meaning comfort to individuals nearing death. While research has examined the prevalence content of ELDVs, little is known on how dreaming at end life may affect psychological processes. Objective: This study aimed explore differences in posttraumatic growth (PTG) between hospice patients who experience ELDVs do not this phenomenon. Design: a multimethod cross-sectional comparison study. Settings/Subjects: 70 (35 with ELDV...
Abstract Objective: Hospice patients often struggle with loss of meaning, while many experience meaningful dreams. The purpose this study was to conduct a preliminary exploration into the process and therapeutic outcomes meaning-centered dream work hospice patients. Method: A variation cognitive–experiential model (Hill, 1996; 2004) tested participants. This influenced by tenets psychotherapy (Breitbart et al., 2012). total 12 dream-work sessions were conducted 7 (5 women), session...
: Cancer patients experience significant distress and burden of decision-making throughout treatment beyond. These stressors can interfere with their ability to make reasoned timely decisions about care lead low physical social functioning poor survival. This pilot study examined the impact offering Problem-Solving Skills Training (PSST) adult cancer survivors help them caregivers cope more successfully post-treatment distress. Fifty who completed definitive for colorectal, breast or...
While the majority of research assesses impact end-of-life dreams and visions (ELDVs) on patients, more recent has begun to explore their family caregivers (FCG).This study evaluates relationship between general attitudes about dreams, perspectives ELDV role bereaved FCG experience.Mixed-methods using a cross-sectional survey five focus groups.A total 500 FCGs patients who died under hospice care were recruited for survey. Focus group members self-selected through identified interest from...
Objective: Longitudinal assessment of patient–caregiver relationships will determine whether caregiver self-esteem determines patient relationship satisfaction at end life. Background: Research on close and caregiving supports the idea that informal caregivers' may influence their with terminally ill loved ones. However, this connection has not yet been investigated longitudinally, nor it applied specifically to care recipients' satisfaction. Methods: A sample 24 caregivers patients in a...
The Photographs of Meaning Program for pediatric palliative caregivers (POM-PPCG) is an innovative, meaning-based intervention utilizing photovoice and social media components. In 2017, 9 participated in this intervention. During the portion POM-PPCG, participants were presented with weekly themes based on a meaning-making curriculum. response, they took photographs, applied either audio or typed narratives, shared them via media. Ninety-five photographs narratives produced during Through...
The current study examined qualitative data from hospice clinicians’ perspectives on language, surrounding end-of-life (EOL), to understand challenges and opportunities for constructing a trajectory of communication leading towards good death experience. Findings two focus groups with nine 12 individual interviews, four which were follow up interviews after the groups, guided by framework analysis revealed three themes, language choices, roles responsibilities, socio-cultural considerations....
Background: Caring for a child or adolescent with palliative care needs can significantly influence the physical, mental, financial, and social well-being of caregivers. Due to this multifaceted impact, there is demand evidence-based support that meets distinct population. Objective: This study aims evaluate effect Photographs Meaning Program (POM) has on meaning purpose, well-being, perceived pediatric caregivers (PPCGs). Design: Over an eight-week period, participants followed...
Translational research is seemingly ubiquitous, yet complex and difficult to concretely define. We contribute this conversation by reflectively critically evaluating a collaborative, multidisciplinary program called the Photographs of Meaning (POM) for pediatric palliative caregivers. The POM brings together public health issue caregiving with community-based-art methodology engagement. Following four stages research; assessment, design, implementation, evaluation, we focus on photovoice as...
Background: Delirium is a challenging occurrence among people at end of life. It can be difficult to detect and treat because its episodic nature. The Buffalo Scale (BDS) was designed identify risk factors for hospice patients in the prodromal stage delirium. Objective: This study evaluated psychometric properties items assessing delirium related cognitive problems, psychological distress, sleep problems. Methods: Hospice nursing staff assessed with 11-item BDS over 6-month period as part...