A5014310052- Childhood Cancer Survivors' Quality of Life
- Health and Medical Studies
- Health Systems, Economic Evaluations, Quality of Life
- Ethics in Clinical Research
- Palliative Care and End-of-Life Issues
- Mobile Health and mHealth Applications
- Data-Driven Disease Surveillance
- COVID-19 Digital Contact Tracing
- Data Quality and Management
- Family Support in Illness
- Adolescent and Pediatric Healthcare
- Innovation Policy and R&D
- Gene Regulatory Network Analysis
- Pharmaceutical Economics and Policy
- Statistical Methods in Clinical Trials
- Interdisciplinary Research and Collaboration
- Socioeconomic Development in Asia
- Maternal Mental Health During Pregnancy and Postpartum
- Privacy-Preserving Technologies in Data
- COVID-19 Impact on Reproduction
- Advanced Causal Inference Techniques
- Cancer survivorship and care
- Digital Innovation in Industries
- Electronic Health Records Systems
- Health Promotion and Cardiovascular Prevention
Gesundheit Österreich
2019-2024
University Medical Center
2023
Johannes Gutenberg University Mainz
2023
Public Health Institute
2020-2023
Centre for Social Innovation
2017-2019
Austrian Institute of Economic Research
2019
Agency for Quality Assurance and Accreditation Austria
2019
Federal Ministry of Education, Science and Research
2019
In May 2022, the European Commission issued Proposal for a Regulation on Health Data Space (EHDS), with aims of granting citizens increased access to and control their (electronic) health data across EU, facilitating re-use research, innovation, policymaking. As first in series domain-specific "data spaces", EHDS is high-stakes development that will transform governance EU region. an international consortium experts from policy, law, ethics social sciences, we are concerned detract from,...
Background To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of Survivorship Passport (SurPass) has been invented. Within European PanCareSurPass project, semiautomated interoperable SurPass (version 2.0) will be optimized, implemented, evaluated at 6 LTFU centers representing countries 3 distinct health system scenarios: (1) national electronic information systems (EHISs) in Austria Lithuania, (2) regional or local EHISs...
Abstract It has become a trope to speak of the increasing value health data in our societies. Such rhetoric is highly performative: it creates expectations, channels and justifies investments technologies infrastructures, portrays deliberations on political legal issues as obstacles flow data. Yet, important epistemic questions remain unexamined, such how created, what journeys are envisioned by policies regulation, for whom types (intended be) valuable. Drawing two empirical cases, (a)...
Abstract Real-world data (RWD) can provide intel (real-world evidence, RWE) for research and development, as well policy regulatory decision-making along the full spectrum of health care. Despite calls from global regulators international collaborations to integrate RWE into bridge knowledge gaps, some challenges remain. In this work, we performed an evaluation Austrian RWD sources using a multilateral query approach, crosschecked against previously published criteria conducted direct...
Purpose The purpose of this paper is to discuss the prospects a Southeast Asian knowledge economy in light regional integration processes and participation Asia global innovation networks. Design/methodology/approach evidence base combination quantitative data on R&D investments, patent applications publications, with qualitative from 40 semi-structured expert interviews conducted experts, research managers policymakers six ASEAN Member States. Findings Despite economic growth increases...
Real-world data (RWD) collected in routine health care processes and transformed to real-world evidence have become increasingly interesting within the research medical communities enhance support regulatory decision-making. Despite numerous European initiatives, there is still no cross-border consensus or guideline determining which qualities RWD must meet order be acceptable for decision-making clinical decision support. In absence of guidelines defining quality standards RWD, an overview...
Abstract Introduction Causal inference helps researchers and policy-makers to evaluate public health interventions. When comparing interventions or programs by leveraging observational sensitive individual-level data from populations crossing jurisdictional borders, a federated approach (as opposed pooling approach) can be used. Approaching causal re-using routinely collected across different regions in manner, is challenging guidance currently lacking. With the aim of filling this gap...
Background Childhood cancer survivors (CCS), of whom there are about 500,000 living in Europe, at an increased risk developing health problems [1–6] and require lifelong Survivorship Care. There information knowledge gaps among CCS healthcare providers (HCPs) requirements for Care [7–9] that can be addressed by the Passport (SurPass), a digital tool providing HCPs with comprehensive summary past treatment tailored recommendations The potential SurPass to improve person-centred has been...
In this paper, we research the role of ASEAN level for science, technology and innovation (STI) in Southeast Asia. The key question is how intergovernmental STI system relates to diversity traditional linkages region. Empirically, address with data on inputs outputs as well qualitative evidence from interviews participatory observation. We highlight a mismatch between national dynamics STI. Intra-ASEAN cooperation remains weak. discuss multilateral funding increased patent regimes examples...
The landscape of mobile health applications is evolving rapidly. This includes a growing set medication-related apps. Keeping track the functional diversity in medication apps challenge for both practitioners and regulators, limiting scope innovative use digital technologies healthcare service delivery. In this paper, we present results systematic search classification We combine with discussion current future regulation reimbursement decision-making. show that majority offers cluster...
Abstract Background The hitherto largely unregulated market of mobile digital health applications is undergoing significant changes, particularly concerning the growing segment apps that aim at integrating care processes or replacing traditional forms diagnosis therapy. inclusion in benefit basket statutory systems relevance when exploring viable business models for app developers. Description problem So far, countries limit coverage to developed by authorities within system, provide...
Childhood, adolescent and young adult (CAYA) cancer survivors require ongoing surveillance for health problems from the end of treatment throughout their lives. There is a lack evidence-based guidelines on optimal strategies period to 5 years after diagnosis. We aimed address this gap by developing recommendations short-term based existing long-term follow-up (LTFU) care guidelines. The guideline working group, consisting healthcare professionals, parents survivor representatives 10...
Abstract Issue/problem Healthcare-related planning and policy requires evidence, which in turn data. Generating sensitive, high-quality data is expensive. Given the constraints of routine or study-related for quality monitoring, registries are commonly used. But when it adequate, from a public health meta-governance point view, to establish dedicated registries? Description problem Many countries have established patient over time. The lack framework complicates decision-making establishing...
<title>Abstract</title> Real-world data (RWD) can provide intel (real-world evidence, RWE) for research and development, as well policy regulatory decision-making along the full spectrum of health care. Despite calls from global regulators international collaborations to integrate RWE into bridge knowledge gaps, some challenges remain. In this work, we performed an evaluation Austrian RWD sources using a multilateral query approach, crosschecked against previously published criteria...
Hintergrund Public health Health ist seit den ersten Gehversuchen der Disziplin eine Datenwissenschaft. Seit Beginn Arbeiten in diesem Feld auch die Verfügbarkeit richtigen Daten angemessener Qualität Herausforderung. Gerade Covid-19 hat gezeigt wie viel Luft nach oben es rund um Gestaltung digital unterstützter Health-Dateninfrastrukturen Österreich und anderswo gibt.
<sec> <title>BACKGROUND</title> To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of Survivorship Passport (SurPass) has been invented. Within European PanCareSurPass project, semiautomated interoperable SurPass (version 2.0) will be optimized, implemented, evaluated at 6 LTFU centers representing countries 3 distinct health system scenarios: (1) national electronic information systems (EHISs) in Austria Lithuania, (2)...
Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning evaluation of prevention, care cure activities as well research generate new knowledge. FAIR (Findable, Accessible, Interoperable Reusable) principles are one the key elements supporting making it more cost-effective through reuse already existing data. Currently, data in many countries dispersed difficult find access.