Moving from participatory approaches incorporating co-design to co-production in health research involves a commitment full engagement and partnership with people lived experience through all stages of the process—start finish. However, despite increased enthusiasm proliferation that co-production, practice remains challenging, due part lack consensus on what constitutes guidance about practical steps applying this approach respect diverse methods multiple paradigms, structural barriers...

Māori have been found to experience marked health inequities compared non-Māori, including for injury. Accessing healthcare services post-injury can improve outcomes; however, longer-term experiences of access injured are unknown. This paper reports on data from the longitudinal Prospective Outcomes Injury Study - 10 year follow up (POIS-10) study in Aotearoa/New Zealand (NZ), qualitatively understand accessing injury-related long-term.Follow-up telephone interviews were conducted with 305...

To explore the experience of rehabilitation from perspective individuals with tetraplegia.Semi-structured interviews between 40 and 60 min were conducted three men one woman, spinal injuries at C7 or higher, within 6 months discharge inpatient cord injury (SCI) rehabilitation. Data subject to an Interpretive Phenomenological Analysis (IPA).Participants described their as more than a biological impairment that limited certain functional abilities. For them, SCI was sudden event also disrupted...

Background: There is a lack of consumer-friendly tools to empower and support people living with spinal cord injury (SCI) self-manage complex health needs in community. This article describes the co-design process new SCI Health Maintenance Tool (SCI-HMT). Methods: Co-design SCI-HMT using mixed-methods approach included rapid review, e-Delphi surveys range multidisciplinary care professionals (n = 62), interviews participants 18) general practitioners 4), focus groups 3 7, 4, 4 SCI,...

Abstract Background Despite advances in managing secondary health complications after spinal cord injury (SCI), challenges remain developing targeted community strategies. In response, the SCI Health Maintenance Tool (SCI-HMT) was developed between 2018 and 2023 NSW, Australia to support people with their general practitioners (GPs) promote better self-management. Successful implementation of innovations such as SCI-HMT are determined by a range contextual factors, including perspectives...

Introduction: Providers of medical degree programs need to ensure that graduates represent the diverse communities they serve. Disabled students face barriers accessing and completing programs. As call for a more inclusive supportive education culture grows internationally, it is essential understand perspectives disabled in Australasia. To inform ongoing discussion concerning education, this study aimed describe students’ experiences regarding program at University New Zealand. Methods:...

Spinal cord injury (SCI) is a severe neurological disorder resulting in loss of movement and altered sensation with lifelong impacts on health, function, social integration. Multidisciplinary SCI rehabilitation primarily focuses enhancing function independence while simultaneously managing secondary health conditions providing psychosocial support. Therefore, major goal should be strengthening patients' capacity to cope adjust challenges they encounter. Using mixed methods design, the...

This manuscript considers the drivers towards inclusive research in field of disability and rehabilitation; including some tools frameworks that may support its realisation. We, a group researchers engaged rehabilitation from lived experience ‘conventional’ (non-lived experience) positions, reflect on our collective endeavours to bring about inclusion specify systemic factors constraining research. We conclude by asking following: how might we reimagine systems where mechanisms production...

Introduction Return to work after spinal cord injury (SCI) is linked well-being and better physical mental health outcomes. In New Zealand, rates SCI are lower than the general population. Vocational rehabilitation one method of supporting return work. Although best model has not been determined, there evidence early intervention. However, most vocational research focuses on outcomes without considering why works, for whom under what circumstances. Given this knowledge gap, we detail a...

This commentary explores community participation in New Zealand (NZ), as described by qualitative data from NZ's contribution to the Development of ICF Core Sets for SCI multicenter study. Three entirely local influences are also discussed: Independent Living philosophy championed late Professor Alan Clarke; legislated policy biculturalism; and Accident Compensation Corporation (ACC), publicly funded, no-fault accident-related health scheme.

Injury-related disability burden extends well beyond two years post-injury, especially for Māori (Indigenous) New Zealanders. also experience greater difficulty accessing health services. This prospective cohort study extension uses mixed-methods and aims to understand identify factors contributing long-term experiences outcomes (positive negative) at 12 post-injury injured their whānau (families), explore the barriers facilitators flourishing, access rehabilitation Five hundred sixty-six...

Abstract Purpose Early intervention vocational rehabilitation (EIVR) can improve return to work (RTW) outcomes for people with spinal cord injury (SCI). However, mechanisms explaining how and why EIVR works are not well understood. This study aims develop a conceptual framework describing key of effect following SCI. Methods We synthesised data from realist literature review interviews SCI (n = 30), survey who had received 37), focus group providers community providers. first the an initial...

Purpose Disabled people who are the end‐users (EU) of health services have a poor record inclusion, yet major stake in quality scientific research that informs development knowledge and interventions. In traditional rehabilitation it has been researcher sets agenda, including determining question, study design methods, controls dissemination findings. This paper aims to describe an EU consultation committee evaluation protocol used assess effectiveness committee. Design/methodology/approach...

BACKGROUND: Early vocational rehabilitation following spinal cord injury (SCI) improves return to work (RTW) outcomes, but there is limited information about who benefits from such interventions, why and in what contexts. OBJECTIVE: We aimed describe demographic clinical characteristics RTW outcomes of adults with SCI received early rehabilitation. sought identify key mechanisms METHODS: This a cross-sectional survey people recruited the New Zealand Spinal Trust Vocational Rehabilitation...

<ns4:p><ns4:italic>Background</ns4:italic>: Internationally wheelchair users are an emerging demographic phenomenon due to their rapidly increasing life-span coupled with accelerated general population ageing. While having significant healthcare and social implications, basic robust epidemiological information of is often lacking in part this population’s “hidden” nature. Increasingly popular research, Respondent Driven Sampling (RDS) provides a mechanism for generating unbiased...

Rates of return-to-work after stroke are low, yet work is known to positively impact people's wellbeing and overall health outcomes.To understand trajectories, barriers encountered, resources that may be used better support participants during early recovery rehabilitation.The experiences 31 (aged 25-76 years) who had or not returned were explored.Interview data analysed using reflexive thematic analysis methods within a broader realist research approach.Participants identified an need...

To identify and examine subgroups of people with spinal cord injury (SCI) different patterns lived experience, hidden impairments disability among functionally independent ambulant people.