A5088036630- Congenital Heart Disease Studies
- Adolescent and Pediatric Healthcare
- Cardiovascular Issues in Pregnancy
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Atrial Fibrillation Management and Outcomes
- Infant Development and Preterm Care
- Cardiac tumors and thrombi
- Cardiovascular Function and Risk Factors
Stollery Children's Hospital
2016-2021
Alberta Hospital Edmonton
2014-2016
Boston Children's Hospital
2014
Universitätsklinikum Krems
1995
<h3>Objectives</h3> Adolescents with heart disease have complex health needs and require lifelong cardiology follow-up. Interventions to facilitate paediatric adult healthcare transition are recommended, although outcomes unknown. We sought determine the impact of a intervention on improving knowledge self-management skills among this population. <h3>Methods</h3> conducted clinical trial 15–17 year olds moderate or congenital (CHD) cardiomyopathy. Participants were systematically allocated...
The population of adolescents and young adults with congenital heart disease (CHD) is growing exponentially. These survivors are at risk late cardiac complications require lifelong cardiology care. However, there a paucity data on how to prepare assume responsibility for their health function within the adult care system. Evidence-based transition strategies required.The Congenital Heart Adolescents Participating in Transition Evaluation Research (CHAPTER 2) Study two-site cluster randomized...
To assess the interobserver variability between two observers from different echocardiographic laboratories.Two reviewed video recordings blinded to other's diagnosis. In part I (n = 88), they determined for spontaneous echo contrast, left atrial thrombi, and appendage thrombi. No diagnostic criteria thrombi were defined. II 85), defined.Part I: Both agreed in diagnosing contrast 97%, 90%, 94%. Part II: With predefined no disagreement occurred diagnosis of both 89%. The mean diameters 10 on...
This study aimed to measure parents' readiness for discharge from a pediatric cardiology/cardiac surgical inpatient unit.An observational was conducted at single tertiary care cardiac program; parents received teaching coordinator, bedside nurse, and, if needed, dietician and pharmacist. We surveyed parents/guardians on the day of 2 weeks later.We enrolled 181 participants, 53% with children <12 months age. Length hospital admission ranged ≤7 days (54%) >4 (8%). The most common diagnoses...
PurposeTo understand the effectiveness of a nurse-led transition intervention by analyzing qualitative data generated in context clinical trial.Design & methodsQualitative study two-session conducted registered nurses at two sites. Adolescents aged 16–17 years with moderate or complex congenital heart disease (CHD) had been randomized to usual care. Session 1 emphasized patient education including creation health passport and goal setting. 2, months later, self-management. Qualitative...