A5062157272- Hemoglobinopathies and Related Disorders
- Child and Adolescent Psychosocial and Emotional Development
- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Bipolar Disorder and Treatment
- Palliative Care and End-of-Life Issues
- Religion, Spirituality, and Psychology
- Infant Development and Preterm Care
- Pediatric Pain Management Techniques
- Child and Adolescent Health
- Racial and Ethnic Identity Research
- Prenatal Screening and Diagnostics
- Pharmacological Effects and Toxicity Studies
- Migration, Health and Trauma
- Iron Metabolism and Disorders
- Family and Disability Support Research
- HIV/AIDS Research and Interventions
- Blood donation and transfusion practices
- Maternal Mental Health During Pregnancy and Postpartum
- Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
- Counseling Practices and Supervision
- Cardiovascular Syncope and Autonomic Disorders
- Family and Patient Care in Intensive Care Units
- Cerebral Palsy and Movement Disorders
- Mental Health Research Topics
Mayo Clinic
2023-2024
Mayo Clinic in Florida
2023
Mayo Clinic in Arizona
2023
WinnMed
2023
Cincinnati Children's Hospital Medical Center
2015-2021
University of Cincinnati Medical Center
2015-2021
University of Cincinnati
2019-2020
Children's Hospital & Medical Center
2020
University of Washington
2016
Seattle Children's Hospital
2016
Abstract Sickle cell disease (SCD) is associated with significant health challenges that often worsen during adolescence. Living SCD requires a substantial amount of self-management and mobile (mHealth) holds considerable promise for assessing changing behaviors to improve outcomes. We integrated app as an adjunct group intervention (SCThrive) hypothesized more engagement the mHealth would increase self-efficacy adolescents young adults (AYA) SCD. Twenty-six AYA ages 13–21 years (54% female;...
Children who identify as Black or multiracial report significantly higher exposure to adverse childhood experiences, which places them at greater risk for poor mental and physical health outcomes. These disparities increasing awareness of racism an experience has resulted in the American Academy Pediatrics, Psychological Association, other groups declaring a public crisis. To provide high-quality care, providers engage with patients families impacted by systemic must be aware its role...
The newest iteration of the Diagnostic and Statistical Manual–fifth edition (DSM-5), is first to include diagnosis disruptive mood dysregulation disorder (DMDD). assessment psychopathology in children are complicated, particularly for disorders. Practice can be guided by use well-validated instruments. However, as this a new existing instruments have not yet been evaluated DMDD. This study seeks provide method using structured interview assess contemporary diagnosis. Children’s Interview...
National evidence-based guidelines recommend offering hydroxyurea to patients with sickle cell anemia 9 months of age and older using shared decision making, but offer no strategies aid implementation. We developed a multicomponent via needs assessment, clinic observations, iterative feedback address parent promote discussion between clinicians parents. A total 75 parents 28 participated across all phases. The was rated as useful. Hydroxyurea knowledge improved decisional conflict decreased...
Although hydroxyurea (HU) is an effective treatment for sickle cell anemia, uptake remains low. Shared decision-making (SDM) a recommended strategy HU initiation to elicit family preferences; however, clinicians lack SDM training. We implemented immersive virtual reality (VR) curriculum at 8 pediatric institutions train on that included counseling patients. Clinicians' self-reported confidence significantly improved following the VR simulations all communication skills assessed, including...
There are many outpatient interventions for treating youth with mood disorders and their families. Despite the severity of impairment related to disorders, there is little research on effectiveness intensive or partial hospitalization programs that implement evidence-based treatment components disorders. A preliminary review an innovative program, Child Adolescent Integrated Mood Program (CAIMP), incorporates evidenced-based intervention within service model a program ages 9–18 provided....
Intensive interdisciplinary treatment is emerging as an effective of chronic pain in youth. These programs often include a parental component with the belief that targeting distress and responses to child's will improve outcomes. However, few studies have evaluated impact intervention pediatric pain. The present study consists nonrandomized pre-post design evaluate change psychological behavioral functioning parents who participated intensive parent programming utilized cognitive-behavioral...
There are many clinically effective outpatient psychosocial treatments for youth with mood disorders, and of them include engaging caregivers in treatment. Despite the prevalence severity impairment related to there is a dearth research addressing implementing evidence-based treatment (EBT) models disorders intensive programs (IOP) or partial hospitalization (PHP). The current study provides preliminary results on feasibility, acceptability, considerations sustainability, consumer...
Objective: To report preliminary psychometric properties of PROMIS assessments among emerging adults with sickle cell disease (SCD).Methods: Forty-five SCD ages 18-24 (M=20.81,SD=1.73) completed Pain Interference and Fatigue short forms the Pediatric Quality Life Inventory (PedsQL).Chart review was used to obtain information regarding complications healthcare utilization in three years prior study enrollment.Multivariate path analysis compare scores by severity use disease-modifying...
Objective: Individuals with sickle cell disease (SCD) are at increased risk for complications from their during adolescent and young adult (AYA) years.The of morbidity in AYA SCD can be decreased improved self-management.Existing self-management interventions typically focus on one aspect (e.g., adherence) do not address factors that activate patients (knowledge, motivation, self-efficacy social support) to self-manage.Sickle Cell Thrive (SCThrive) is a mixed in-person/online,...
Psychologists have an ethical responsibility to advance health equity and can play a significant role in improving care experiences for families racialized as Black, including those with sickle cell disease (SCD), group of genetic blood disorders primarily affecting communities color. Parents children SCD report stigma discrimination due racism the system. The current commentary describes application antiracism participatory strategies research design, implementation, dissemination...
The effectiveness of a behaviorally based day treatment program for young children diagnosed with Pediatric Bipolar Disorder (PBD) was evaluated using pretreatment and posttreatment mean scores from the Child Behavior Checklist (CBCL). Data were in aggregate clinically significant change method PBD, Attention Deficit Hyperactivity (ADHD), Oppositional Defiant (ODD), Adjustment Disorder, no diagnosis/clinical subclinical groups. Significant effects found all groups except...