To examine the rate of cerebral palsy in twins and triplets births from 1980 to 1989 Western Australia identify factors associated with increase risk.Pluralities for all were identified through standardised midwives' notification system, cases Australian register.Multiple births, palsy, excluding postneonatal cause.The prevalence triplets, 28 per 1000 survivors 1 year (95% confidence interval 11 63) exceeded that (7.3; 5.2 10) singletons (1.6; 1.4 1.8). Although triples more likely than be...

Likely duration of survival children described as having cerebral palsy is considerable interest to individuals with palsy, their families, carers, health professionals, economists and insurers. The aim this paper describe patterns mortality the sixth decade in a geographically defined population people stratified according clinical description impairments early childhood. Identifiers persons born Western Australia 1956–2011, registered on Australian Register Developmental Anomalies...

OBJECTIVE--To analyse the trends in stillbirths, neonatal deaths, and cerebral palsy all infants born Western Australia from 1967 to 1985. To relate these changes perinatal care, particularly relation avoidance of intrapartum asphyxia term increased survival low birthweight infants. DESIGN--Descriptive epidemiological study calculating population rates for deaths according year birth weight. SETTING--Western Australia. SUBJECTS--All after 20 weeks9 gestation or weighing at least 400 g (live...

Aim To investigate trends in birth prevalence of cerebral palsy ( CP ) overall and by gestational age, examine the distribution motor type, spastic topography, severity using Australian Register data from 1995 to 2009. Method Prenatal perinatal were collated state/territory registers. Birth estimates per 1000 live births neonatal survivors NNS calculated five epochs. Data three state registers with population‐level ascertainment used age Poisson regression. Distribution moderate severe...

To briefly outline the strengths and limitations of cerebral palsy (CP) registers, to report on findings Australian Cerebral Palsy Register (ACPR) pertaining a population cohort children with CP.De-identified data were extracted from ACPR for people CP in birth years 1993 2006, South Australia, Victoria, Western Australia. Live prevalence was estimated risk factors described.The overall (including those whose postneonatally acquired) 2006 2.1 per 1000 live births (95% confidence interval...

Cerebral palsy (CP) can occur in term infants with or without preceding newborn encephalopathy. We compared the type and severity of CP associated disability these two groups. Participants from a population-based case-control study encephalopathy were followed up for 6 years linked to Western Australian Palsy Register. The remaining same period also identified 13% neonatal survivors had CP, rate 116 per 1000 live births. Overall, 24% following was more likely to: affect males (72% vs 56%);...

Aim To describe cerebral palsy ( CP ) surveillance programmes and identify similarities differences in governance funding, aims scope, definition, inclusion/exclusion criteria, ascertainment data collection, to enhance the potential for research collaboration. Method Representatives from 38 were invited participate an online survey submit their collection forms. Descriptive statistics used summarize information submitted. Results Twenty‐seven participated (25 functioning registers, two...

To describe the timing and causes of post-neonatally acquired cerebral palsy (PNN-CP) map implementation relevant preventive strategies against cause-specific temporal trends in prevalence.

Aim To investigate temporal trends in birth prevalence, disability severity, and motor type for singletons with prenatal or perinatally acquired cerebral palsy (CP). Method Numerator data, number of children CP born a singleton between 1995 2014, confirmed at 5 years age, were drawn from three state registers population‐level ascertainment. Birth prevalence estimates 95% confidence intervals (CI) calculated per 1000 live births the states combined, overall, by gestational age group,...

PURPOSE This study reports on a mixed methods evaluation conducted within provincial cancer program in Alberta, Canada. The purpose was to capture key learnings from rapid virtual care implementation because of the COVID-19 pandemic and understand impact patient staff experiences. METHODS Administrative data were collected for 21,362 patients who had at least one or in-person visit any center April 1, 2020, June 10, 2020. Patient surveys with 397 randomly selected received visit. Surveys...

This report describes trends, predictors, and causes of mortality in persons with cerebral palsy (CP)using individuals identified by the Western Australian Cerebral Palsy Register born between 1958 1994. Two thousand fourteen people were (1154 males, 860 females), whom 225 had died 1 June 1997. Using date‐of‐death data, crude standardized rates estimated predictors sought using survival analysis stratified decade birth, description impairments, demographic perinatal variables. For those...

Population-based disease registers serve a variety of purposes and have proven their value in stimulating facilitating epidemiological research health planning. The methods used to establish maintain the Western Australian Cerebral Palsy Register are described. Efforts reduce diagnostic variation by regular interobserver study meetings with clinicians been highly productive addition promoting awareness requirements register. existence perinatal data sets as denominators essential monitor...

Aim The aim of this study was to investigate the association between heavy maternal alcohol consumption and pre‐ peri‐ postneonatally acquired cerebral palsy (CP). Method records all mothers with an International Classification Diseases, revision 9 or 10 (ICD‐9/‐10) alcohol‐related diagnostic code, indicating consumption, recorded on population‐based health, mental drug data sets from 1983 2007, their children were identified through Western Australian Data‐linkage System. This ‘exposed’...

Cancer patients experience numerous distressing symptoms and concerns across the course of their illness, which negatively influence quality life. Regardless cancer type, unmanaged can lead to adverse downstream consequences. Patient Reported Outcome Measures (PROMs) be used inform patient care targeted symptom management but simply gathering this information does not improve outcomes for patient. generated must easy clinicians access interpret if it is delivery in ambulatory oncology...

Patients with cancer experience significant symptom burden. We investigated severity in adolescents and young adults (18- to 39-year-olds) during the year following a diagnosis made comparisons older adult (those than 40 years of age) patients cancer.

SUMMARY In a case‐control study of all cerebral palsy cases with moderates and serve spastic quadriplegia born between 1976 1985, males comprised three‐quarters the tended to have more sevre motor impairment than females. The majority had multiple disabilities, 27 per cent died by time data collection. There was an excess low‐birthweight preterm births compared live in WA. An intrapartum casuse considered possible 18 74 children; however, half these evidence compromise before labour. RÉSUMÉ...

Although a number of accreditation agencies and professional societies recommend routine screening for distress (SFD) patients with cancer, it has been integrated very slowly into clinical practice.This evaluation investigated the impact large-scale SFD intervention on patients' quality life, symptom reports, psychosocial well-being. The involved (1) completion tool by patients, (2) discussion between patient provider about concerns indicated, (3) provision appropriate...

Background: The collection of patient reported outcomes (PROS) is a standard care in many cancer organizations. In Alberta, pros have been integrated into routine clinical practice since 2012. This longitudinal provides wealth data and unique research opportunity to improve care. goal this pro initiative establish robust repository information for ongoing focused on pros. paper, we describe the rationale, scope, design initiative. Implementation: consists other administrative health from...