A5011966139- Empathy and Medical Education
- Dementia and Cognitive Impairment Research
- Geriatric Care and Nursing Homes
- Mental Health Treatment and Access
- Intergenerational Family Dynamics and Caregiving
- Health disparities and outcomes
- Aging and Gerontology Research
- Digital Mental Health Interventions
- Patient-Provider Communication in Healthcare
- Palliative Care and End-of-Life Issues
- Health Systems, Economic Evaluations, Quality of Life
- Clinical Reasoning and Diagnostic Skills
- Chronic Disease Management Strategies
- Biomedical and Engineering Education
- Technology Use by Older Adults
- COVID-19 and Mental Health
- Family Caregiving in Mental Illness
- Family and Patient Care in Intensive Care Units
- Mobile Health and mHealth Applications
- Innovations in Medical Education
- Family and Disability Support Research
- Child and Adolescent Health
- Analytical Methods in Pharmaceuticals
- Autism Spectrum Disorder Research
- Health and Well-being Studies
Brighton and Sussex Medical School
2019-2024
University of Sussex
2019-2023
King's College London
2022
We aimed to address gaps identified in the evidence base and instruments available measure quality of life (QOL) family carers people with dementia, develop a new brief, reliable, condition-specific instrument.We generated measurable domains indicators carer QOL from systematic literature reviews qualitative interviews 32 9 support staff, two focus groups 6 5 staff. Statements five tailored response options, presenting variation on continuum, were piloted (n = 25), pre-tested 122)...
There is a need to ensure that the future healthcare workforce has necessary knowledge and skills deliver high quality compassionate care increasing number of people with dementia. Our programme been set up address this challenge. In programme, undergraduate students (nursing, medical paramedic) visit family (person dementia their carer) in pairs over 2-year period. This qualitative study sought understand student experience programme.Participants were who undertaking our at two...
Traditional healthcare education typically focuses on short block clinical placements based acute care, investigations and technical aspects of diagnosis treatment. It may therefore fail to build the understanding, compassion person-centred empathy needed help those with long-term conditions, like dementia. Time for Dementia was developed address this.Parallel group comparison two cohorts UK medical students from universities, one participating in (intervention group) not (control group). In...
Introduction COVID-19 has placed unprecedented pressure on dementia health and social care systems worldwide. This resulted in reduced services support for people with their family carers. There are gaps the evidence impact of pandemic Quality Life (QoL). We carried out a study QoL group carers who were part larger existing cohort study. Methods quantitatively measured QoL, two occasions during national lockdowns 2020 compared these data those obtained when they entered (before pandemic)....
Objectives The COVID-19 pandemic has led to significant disruption health and social care services. For people with dementia their family carers this is problematic, as a group who rely on timely responsive services live well the condition. This study sought understand how affected quality of life diagnosed carers. Design Our mixed-methods was nested in larger cohort an education programme, Time for Dementia. Setting took place South-East England. Participants Existing participants, were...
Due to the progressive nature of dementia, it is important understand links between disease severity and health-related outcomes. The aim this study explore relationship quality life (QoL) people with dementia their family carers using a number disease-specific generic measures.In MODEM cohort study, three-hundred seven clinically diagnosed were recruited on quota basis provide equal numbers mild (standardised Mini-Mental State Examination (sMMSE), n = 110), moderate (sMMSE 10-19, 100),...
Abstract Objectives The future healthcare workforce needs the skills, attitudes, and empathy to better meet of those with dementia. Time for Dementia (TFD) is an educational programme in which students from a range professional groups visit person dementia their family carer over two‐year period. aim this study was evaluate its impact on student knowledge towards Methods Measures knowledge, attitudes were administered at five universities south England before after (24 months) they completed...
Abstract Background Research to date offers mixed evidence about the relationship between quality of life and severity cognitive impairment in people with dementia. We aimed investigate longitudinal changes patient- proxy-rated health-related (HRQL) by dementia explore factors associated HRQL over a one-year period. used data from MODEM cohort study which recruited dyads persons clinically diagnosed their principal carer interviewed them face-to-face at baseline again 1 year later. Methods...
Abstract Background Taking advantage of the rapidly increasing access to digital technology in low- and middle-income countries, World Health Organization has launched an electronic version mental health Gap Action Programme intervention guide (emhGAP-IG). This is suitable for use on smartphones or tablets by non-specialist primary healthcare providers (PHCWs) deliver evidence-based priority mental, neurological substance disorders. We assessed perceptions PHCWs feasibility, acceptability,...
Background Autistic adults and children experience considerable health inequalities have high rates of premature mortality, hospital admissions emergency department visits. This is in part due to a lack autism awareness the healthcare social care workforce. A new educational programme, Time for Autism (TfA), medical students being developed address this challenge. qualitative study was undertaken support development programme order (1) understand experiences parents autistic (2) assess their...
There is increasing awareness of the potential for positive impacts on student learning from involving people with dementia and family carers within undergraduate teaching. However, research experience their sparse. This study aimed to evaluate satisfaction views families (people carers) who volunteered in Time Dementia (TFD); an educational programme where healthcare students visit at home over a 2-year period.Families taking part TFD completed survey after (n = 803). Frequencies items were...
There is a huge treatment gap for late-life depression in sub-Saharan Africa. Building on prior work to scale-up mental healthcare with the aid of WHO Mental Health Gap Action Programme Intervention Guide electronic version (emhGAP-IG), this study aims involve older people iterative development innovations overcome challenges detection and clinical management by frontline non-specialist primary workers (PHCW) Nigeria.
As the numbers of people with dementia worldwide rises, there is a need for improved knowledge and awareness about condition across healthcare workforce. There are concerns that traditional models education, which focus on short-term episodes care, limit student understanding long-term conditions. We therefore designed delivered Time Dementia programme at five Universities in UK. Through longitudinal contact families living dementia, students gain increased experiences dementia. However,...
<ns4:p>Background We conducted iterative adaptation of the generic e-version (2.0) WHO Mental Health Gap Action Programme Intervention Guide (emhGAP-IG) to overcome challenges in detection and home-based management depression older people by frontline non-specialist Primary Care (PHC) workers. Objectives In this study, we will assess early implementation outcomes (feasibility, appropriateness, acceptability) evaluate parameters procedures inform a larger trial age adapted emhGAP-IG...
ABSTRACT Objectives There is a large treatment gap for mental health conditions in sub‐Saharan Africa where most patients who receive any care do so from lay primary workers (PHCW). We sought to examine the experiences of PHCW provide older people with depression Nigerian (PHC) settings. Methods Qualitative study design. A total 24 participated. Using in‐depth key informant interviews (KIIs), we explored views 15 selected 10 rural and urban PHCs South‐Western Nigeria. An additional focus...
Abstract Background As worldwide prevalence of dementia rises, there are international calls for improved knowledge and awareness about the condition across healthcare workforce. There concerns that traditional models education, which focus on short-term episodes care limits student understanding long-term conditions. This has led to introduction Time Dementia programme at five Universities in UK. Through longitudinal contact with families living dementia, students gain increased experiences...
Background: There is a large treatment gap for mental health conditions in sub-Saharan Africa where most of affected persons who receive any care do so from non-physician primary workers (PHCW). We examined the experience PHCW provide older people with depression Nigerian (PHC) settings. Methods: Using in-depth key informant interviews, we explored views 15 PHCWs, 11 whom were community (CHWs) and 4 extension (CHEWs), selected 10 rural urban PHCs South-Western Nigeria. Two additional focus...
Background: Globally, dementia prevalence is rising. In the UK, over a million people are expected to be impacted by 2050. One in four hospital beds occupied person with dementia, and it inevitable that healthcare professionals will work during their career across variety of settings. To deliver effective person-centered care, need have capacity skills practice empathy. Greater empathy can lead better patient relationships, reduced burnout, enhanced recognition personhood. However,...
Abstract: Outcomes and care experiences for people with dementia are worse than those without the condition workforce is in crisis. High quality requires adequate training that includes an understanding of living condition. Time Dementia educational programme which healthcare students visit a person their family carer over two-year period (Banerjee et al., 2017). People carers our ‘experts’ teach about life dementia, what helps them to live well dementia. The aim improve student attitudes,...
Abstract Background Taking advantage of the rapidly increasing access to digital technology in low- and middle-income countries, World Health Organization has launched an electronic version mental health Gap Action Programme intervention guide (emhGAP-IG). This is suitable for use on smartphones or tablets by non-specialist primary healthcare providers (PHCWs) deliver evidence-based priority mental, neurological substance disorders. We assessed perceptions PHCWs feasibility, acceptability,...