A5080862384- Primary Care and Health Outcomes
- Child and Adolescent Health
- Health Policy Implementation Science
- Child and Adolescent Psychosocial and Emotional Development
- Health disparities and outcomes
- Family and Disability Support Research
- Mental Health and Patient Involvement
- Geriatric Care and Nursing Homes
- Employment and Welfare Studies
- Maternal Mental Health During Pregnancy and Postpartum
- Child Abuse and Trauma
- demographic modeling and climate adaptation
- Breastfeeding Practices and Influences
- Health Systems, Economic Evaluations, Quality of Life
- Counseling, Therapy, and Family Dynamics
- Healthcare innovation and challenges
- Urinary Tract Infections Management
- School Health and Nursing Education
- Pediatric Urology and Nephrology Studies
- Nursing Roles and Practices
- Infant Development and Preterm Care
- Homelessness and Social Issues
- Social Work Education and Practice
- Gestational Diabetes Research and Management
- Mobile Health and mHealth Applications
Cardiff University
2017-2025
This consensus statement reflects the deliberations of an international group stakeholders with a range expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles establish secure role for PI&E research community internationally ensure best practice its execution. Our aim is promote culture change societal benefits through ensuring socially responsible trajectory innovations this field.
 premise that should...
IntroductionResearchers are increasingly using routinely collected data in addition to, or instead of, other collection methods. The UK government continues to invest research centres encourage use of these data, and trials cohort studies utilise linkage methods the follow-up participants. This does not come without its limitations challenges, such as access delays.
 ObjectiveThis paper outlines challenges faced by three projects utilising individual-level routinely-collected linked for...
Abstract Objective Warm water immersion during labour provides women with analgesia and comfort. This cohort study aimed to establish among using intrapartum analgesia, without antenatal or risk factors, whether waterbirth is as safe for them their babies leaving the before birth. Design Cohort non‐inferiority design. Setting Twenty‐six UK NHS maternity services. Sample A total of 73 229 immersion, between 1 January 2015 30 June 2022. The analysis excluded 12 827 (17.5%) who received...
Better use of healthcare systems data, collected as part interactions between patients and the system, could transform planning conduct randomised controlled trials. Multiple challenges to widespread include whether data captures sufficiently well traditionally captured on case report forms. "Data Utility Comparison Studies" (DUCkS) assess utility for RCTs by comparison trial. Despite their importance, there are few published UK examples DUCkS. Building from ongoing selected recent UK-led...
Abstract Background Childhood bullying is a public health priority. We evaluated the effectiveness and costs of KiVa, whole-school anti-bullying program that targets peer context. Methods A two-arm pragmatic multicenter cluster randomized controlled trial with embedded economic evaluation. Schools were to KiVa-intervention or usual practice (UP), stratified on school size Free School Meals eligibility. KiVa was delivered by trained teachers across one year. Follow-up at 12 months post...
Abstract Background Animated short videos used to explain a concept or project are often called animated explainer (AEVs). AEVs can supplement provide an alternative participant information sheets as means of giving about clinical research potential participants. Current use tends focus on the specifics particular trial, yet there many common aspects regardless interventions being investigated that be poorly covered in current trial materials. The EXPLAIN initiative aimed determine top...
Cystic fibrosis (CF) heterozygotes (also known as 'carriers') are people who have one mutated copy of the CFTR gene. Research into health risks CF carriers has been limited by a lack large cohorts tested for carrier status, but routine clinical testing identifies in population. Such test records additionally contain amounts information, making them valuable research resource to not only identify population also provide additional data found elsewhere. Following governance approvals, we...
ABSTRACT Background The POOL study explored intrapartum water immersion and associated maternal neonatal outcomes at 26 UK sites 2015–2022. Methods Retrospective prospective data captured in electronic maternity National Health Service (NHS) information systems. Analysis—(a) proportions of women using factors with during labour or birth; (b) among “low‐risk” who used (c) management the third stage following waterbirth. Results Among 869,744 included births, 10% ( n = 87,040) birth 4.6%...
Purpose: “Social Workers in Schools” (SWIS) is a school-based intervention aiming to reduce the need for children receive child protection services England. This article reports findings of randomized controlled trial (RCT) designed evaluate SWIS. Method: The study was two-arm pragmatic cluster RCT with an embedded process and economic evaluation. physically located social workers within schools. primary outcome rate inquiries secondary outcomes included care entry educational outcomes....
Systematic reviews have identified variation and inequity in care provision for people with pre-existing severe mental illnesses who palliative or end-of-life needs. To analyse service use illness the last year of life Wales. This is an observational retrospective cohort study between 2018 - 2023 using anonymised linked routinely collected health datasets within a data dashboard. We n = 4722 (2.3%) deaths ICD-10 codes period 2018-2023. As group, die younger, are receipt specialist at lower...
Abstract Background Researchers are increasingly seeking to use routinely collected data support clinical trials. This approach has the potential transform way trials conducted in future. The availability of for research, whether healthcare or administrative, increased, and infrastructure funding enabled much this. However, challenges remain at all stages a trial life cycle. study, COMORANT-UK, aimed systematically identify, with key stakeholders across UK, ongoing related that seek data....
Reducing bullying is a public health priority. KiVa, school-based anti-bullying programme, effective in reducing Finland and requires rigorous testing other countries, including the UK. This trial aims to test effectiveness cost-effectiveness of KiVa child reported UK schools compared usual practice. The currently on-going. Recruitment commenced October 2019, however due COVID-19 pandemic resulting school closures was re-started 2020.Design: Two-arm pragmatic multicentre cluster randomised...
Objectives Measure effectiveness of family nurse partnership (FNP) home-visiting programme in reducing maltreatment and improving maternal health child health, developmental educational outcomes; explore effect moderators, mediators; describe costs. Design Follow-up BB:0–2 trial cohort (ISRCTN:23019866) up to age 7 years England using record linkage. Participants 1618 mothers aged 19 or younger their firstborn child(ren) recruited at less than 25 weeks gestation not mandatorily withdrawn...
"Big data" - including linked administrative data can be exploited to evaluate interventions for maternal and child health, providing time- cost-effective alternatives randomised controlled trials. However, using these population-level challenging.
Abstract Background Within England, children and young people (CYP) who come into police custody are referred to Liaison Diversion (L&D) teams. L&D teams have responsibility for liaising with healthcare other support services while working divert CYP away from the criminal justice system but traditionally not provided targeted psychological interventions CYP. Considering evidence that Solution Focused Brief Therapy (SFBT) leads a reduction in internalising externalising behaviour...
Background The short-term effectiveness (to 24 months post partum) of a preventative home-visiting intervention, the Family Nurse Partnership, was previously assessed in Building Blocks trial (BB:0–2). Objectives objectives were to establish medium-term Partnership reducing maltreatment and improving maternal health (second pregnancies) child health, developmental educational outcomes (e.g. early attendance, school readiness); explore effect moderators mediators; describe costs enhancing...
Child maltreatment involves acts of omission (neglect) or commission (abuse) often by caregivers that results in potential actual harm to a child. The Building Blocks trial (ISRCTN23019866) assessed the short-term impact an intensive programme antenatal and postnatal visiting specially trained nurses support young pregnant women England. Blocks: 2-6 Study will assess medium-term impacts for mothers children (n=1562), through linkage routinely collected data data, with particular emphasis on...
Objectives To quantify population health risks for domiciliary care workers (DCWs) in Wales, UK, working during the COVID-19 pandemic. Design A population-level retrospective study linking occupational registration data to anonymised electronic records maintained by Secure Anonymised Information Linkage Databank a privacy-protecting trusted research environment. Setting Registered DCW Wales. Participants Records all linked DCWs from 1 March 2020 30 November 2021. Primary and secondary...
Background: Parents of children with intellectual disabilities are likely to experience poorer mental well-being and face challenges accessing support. Early Positive Approaches Support (E-PAtS) is a group-based programme, co-produced parents professionals, based on existing research evidence developmental systems approach support parental well-being. The aim this study was assess the feasibility community service provider organisations delivering E-PAtS parents/family caregivers young...
Abstract Family group conferences (FGCs) in child welfare share decision-making with family members by bringing the immediate and wider together to make a plan meet child’s needs. This paper reports survey findings on FGC provision UK 2022 explores whether England presence of an service rate is associated children care, entering kinship foster care leaving care. Seventy-nine per cent (n = 167) local authorities provided FGCs families, 14 29) did not. Services that were more established...