A5082549306- Family and Disability Support Research
- Childhood Cancer Survivors' Quality of Life
- Healthcare innovation and challenges
- Adolescent and Pediatric Healthcare
- Geriatric Care and Nursing Homes
- Autism Spectrum Disorder Research
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Infant Development and Preterm Care
- Family and Patient Care in Intensive Care Units
- Child Nutrition and Feeding Issues
- Intergenerational Family Dynamics and Caregiving
- Health Systems, Economic Evaluations, Quality of Life
- Cerebral Palsy and Movement Disorders
- Healthcare professionals’ stress and burnout
- Grief, Bereavement, and Mental Health
- Child and Adolescent Psychosocial and Emotional Development
- Ethics and Legal Issues in Pediatric Healthcare
- Attention Deficit Hyperactivity Disorder
- Delphi Technique in Research
- Mental Health and Patient Involvement
- Children's Rights and Participation
- Child and Adolescent Health
- Human-Animal Interaction Studies
- Housing, Finance, and Neoliberalism
University of York
2016-2025
Newcastle University
2018
Children, adolescents, and young adults with life-limiting conditions experience various challenges that may make them more vulnerable to mental health problems, such as anxiety depression. However, the prevalence incidence of depression among this population appears be unknown.To conduct a systematic review meta-analysis estimate and/or in children, conditions.Searches MEDLINE (PubMed), PsycInfo, Embase were conducted identify studies published between January 2000 2018.Studies eligible for...
Physical, social, and attitudinal environment may restrict participation in children with cerebral palsy (CP). Here we discuss existing/possible approaches order to identify describe this environment. We used a critical review of evidence from the World Health Organization Literature Review on Environmental Factors; search electronic databases; talked specialists find unpublished papers and‘grey’literature. Both disabilities their parents identified range barrier facilitator factors. These...
Physical, social, and attitudinal environment may restrict participation in children with cerebral palsy (CP). Here we discuss existing/possible approaches order to identify describe this environment. We used a critical review of evidence from the World Health Organization Literature Review on Environmental Factors; search electronic databases; talked specialists find unpublished papers 'grey' literature. Both disabilities their parents identified range barrier facilitator factors. These...
Objectives To identify key health outcomes, beyond morbidity and mortality, regarded as important in children young people with neurodisability, their parents. Design Qualitative research incorporating a thematic analysis of the data supported by Framework Approach; International Classification Functioning, Disability Health (ICF) provided theoretical foundation. Setting The study was conducted community settings. Participants were 54 neurodisability: 50 participated focus groups, 4...
For many young people in England, the move into continuing education involves a transfer from school where they were educated to further college. those with high‐functioning autism or Asperger's syndrome, this can be challenging process. Past research has demonstrated some of problems that these encounter. This article by W endy M itchell and B ryony eresford, both based Social Policy Research Unit at University Y ork, adds evidence base describing how best support people, focusing...
Despite emphasis in policy on participation of disabled children,1 we still know relatively little about how to obtain the views children with significant communication impairment and their are often overlooked planning service provision. This article describes who do not use speech were accessed research aiming identify young people's priorities regarding outcomes social care support services. The main challenge was develop a method that reliable, non-threatening, enjoyable relevant...
Health services are increasingly focused on measuring and monitoring outcomes, particularly those that reflect patients' priorities. To be meaningful, outcomes measured should valued by patients carers, consistent with what health professionals seek to achieve, robust in terms of measurement properties. The aim this study was (i) a shared vision between families clinicians regarding key aspects as beyond mortality morbidity, for children neurodisability, (ii) appraise which multidimensional...
Background The identification of suitable outcome measures will improve the evaluation integrated NHS care for large number children affected by neurodisability, and has potential to encourage provision more appropriate effective health care. This research sought appraise patient-reported (PROMs) young people with neurodisability. Aim aimed (i) identify key outcomes beyond morbidity mortality, from perspectives children, parents professionals; (ii) critically existing generic...
Summary A project researching user‐views on the outcomes of social care and support services for disabled children their families presented new challenges to a research team. While team had experience working with other groups children, this was first in which sought work directly autistic spectrum disorders. This paper reports process by design methods used were developed tailored needs abilities these children. The key lesson learnt value crossing disciplines, areas professional boundaries...
Background Poor psychological well-being among healthcare staff has implications for sickness and absence rates, impacts on the quality, cost safety of patient care. Although numerous studies have explored hospice staff, study findings vary evidence not yet been reviewed synthesised. Using job demands-resources (JD-R) theory, this review aimed to investigate what factors are associated with staff. Methods We searched MEDLINE, CINAHL PsycINFO peer-reviewed quantitative, qualitative or...
Awareness is growing that young adults may have distinctive experiences of adult healthcare and their needs differ from those other users. In addition, the role health teams in supporting positive transitions paediatrics increasingly under discussion. This paper contributes to these debates. It reports a qualitative study – all with complex chronic conditions — as users services. Key findings are reported, including an exploration factors help explain interviewees' experiences. Study...
To determine the clinical stage (stable, unstable, deteriorating or dying) for children and young people (CYP) aged 0-25 years in Scotland with life-limiting conditions (LLCs).National cohort of CYP LLCs using linked routinely collected healthcare data.Scotland.20 436 identified as having resident between 1 April 2009 31 March 2014.Clinical based on emergency inpatient intensive care unit admissions date death.Over 2200 were dying each year. Compared 1-year-olds to 5-year-olds, under year...
Background Reablement is an intensive, time-limited intervention for people at risk of needing social care or increased intensity care. Differing from home care, it seeks to restore functioning and self-care skills. In England, a core element intermediate The existing evidence base limited. Objectives To describe reablement services in England develop service model typology; conduct mixed-methods comparative evaluation models investigating outcomes, factors that have impact on costs...