A5029602126- Family and Disability Support Research
- Autism Spectrum Disorder Research
- Family Support in Illness
- Child and Adolescent Psychosocial and Emotional Development
- Adolescent and Pediatric Healthcare
- Health and Well-being Studies
- Infant Development and Preterm Care
- Advanced Technologies in Various Fields
- Child Development and Digital Technology
- Genetics and Neurodevelopmental Disorders
- Cognitive Functions and Memory
- Youth Education and Societal Dynamics
- Disability Rights and Representation
- Down syndrome and intellectual disability research
- Geriatric Care and Nursing Homes
- Childhood Cancer Survivors' Quality of Life
- Traumatic Brain Injury Research
- ICT in Developing Communities
- Technology Use by Older Adults
- Interprofessional Education and Collaboration
- Disability Education and Employment
- Hearing Impairment and Communication
- Healthcare innovation and challenges
- Aging and Gerontology Research
- Language, Discourse, Communication Strategies
University of Sheffield
2023-2024
University of Warwick
2018-2024
This is the first study on behavioral and emotional adjustment of siblings children with intellectual disabilities (ID) to use a population-based sample, from third wave Millennium Cohort Study (MCS); UK longitudinal birth cohort study. We examined differences between nearest-in-age older (age 5-15) MCS (likely mainly mild moderate ID) identified ID (n = 257 siblings) or not 7246 siblings). The Strengths Difficulties Questionnaire (SDQ) measured all children's adjustment. For SDQ total...
Abstract Background Understanding sibling relationship quality is important, as it associated with mental health outcomes in both childhood and adulthood. Arguably, these relationships are even more important for individuals intellectual disability, siblings can be sources of care, support, advocacy friendship one another. The disability field, however, has a tendency to assume that the lacks reciprocity, who affects sibling, this effect somehow ‘negative’. Methods We examined whether...
Abstract Background We are a research team of clinical, academic and advocacy‐based researchers with without learning disabilities, working on the Humanising Healthcare (for people disabilities) project. The project is dedicated to finding sharing healthcare practices that enhance lives disabilities. As part our ethics applications access National Health Service study sites for fieldwork, we worked together write guiding principles co‐producing In this paper, introduce these Participatory...
Purpose The purpose of this paper is to outline reflections and recommendations about the processes involved in effectively engaging children with developmental disabilities online data collection special schools England. Design/methodology/approach Data procedures were adapted piloted for delivery before collected from 382 young (aged 5–11 years) 55 England as part a randomised controlled trial examining efficacy Headsprout Early Reading® on reading fluency. Findings research team engaged...
The 1000 Families Study is a large, UK-based, cohort of families children with intellectual disability (ID). main use the data will be to describe and explore correlates well-being ID, including parents siblings, using cross-sectional (eventually) longitudinal analyses. present profile intends achieved cohort. Over UK ID aged between 4 15 years 11 months (total n=1184) have been recruited. mean age was 9.01 old. includes more boys (61.8%) than girls (27.0%; missing 11.1%). Parents reported...
Abstract A group often overlooked for specific supports in schools are siblings of children with a disability, special educational needs or serious long‐term condition (SEND). In this article we review the current sibling research and identify lack literature on interventions, particularly within school context. We then present description Sibs Talk, an example new school‐based intervention to support siblings. Talk is ten‐session, one‐to‐one approach complete Key Stage 2 who have brother...
Purpose Fiction has the potential to dispel myths and helps improve public understanding knowledge of experiences under-represented groups. Representing diversity population allows individuals feel included, connected with understood by society. Whether women girls autism spectrum disorder (ASD) are adequately accurately represented in fictional media is currently unknown. The paper aims discuss this issue. Design/methodology/approach Internet library searches were conducted identify female...
The Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS; Tennant et al., 2007) is yet to be validated in the intellectual disability (ID) population. aim of this study was report development process and assess psychometric properties a newly adapted version WEMWBS Short for individuals with mild moderate IDs (WEMWBS-ID/SWEMWBS-ID).The item wordings response options were revised by clinicians researchers expert field ID, visual aid added scale. reviewed 10 IDs. measure administered online using...
Recent moves from qualitative to post-qualitative inquiry can be traced back various developments and methodological quandaries. Posthuman philosophy methodology is one origin story of the move inquiry. This broad approach contests humanist impulse at heart demands imaginative forms inquiry, theory research that engage with more-than-human realities nuances everyday life. What might it mean hold sympathies tackle a foundational (ethnography) quintessentially posthuman position (disability)?...
ABSTRACT The sibling relationship is complex, unique and important. When one has a developmental disability, siblings can be important sources of care, support, advocacy friendship for another. We drew on online survey data from 456 UK adult people with DD. Siblings provided written responses to prompt about their experiences (> 80,000 words). These were analysed using qualitative content analysis organised the Embedded Systems Framework (SESF). SESF helps us consider how complex...
Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers sisters with intellectual developmental disabilities (IDD). Drawing on data about 851 adult who completed an online national survey, we examined predictors potential key moderators siblings' mental distress, wellbeing, quality life, health outcomes. Moderated regression analyses indicated that experiencing higher levels subjective poverty; lower independence; carers also low...
ABSTRACT Background Longitudinal studies of family carers people with intellectual disabilities during the COVID‐19 pandemic have been very rare. This study investigated trajectories family‐carer wellbeing and impact caring role on carers' health over four time points measured after all public restrictions had lifted (between December 2020 late 2022) across United Kingdom. Methods Family adults participated through a co‐designed, online survey at (2020–2022). Growth models were used to...
The Lifespan Sibling Relationship Scale (LSRS) has been validated in samples where neither sibling intellectual or developmental disabilities. We sought to examine the construct validity of LSRS with a sample adult siblings people Adult disabilities (N = 646) completed items measuring Affect, Behavior, and Cognitions. Confirmatory Factor Analysis (CFA) Exploratory (EFA) were employed this sample. initial CFA fit for three-factor model was inadequate (CFI 0.86, TLI 0.84, RMSEA 0.10, x2...
Abstract Cross-lagged panel designs were used to examine longitudinal and potential (bi)directional relationships between primary caregiver reported sibling relationship quality the behaviors of children with intellectual disability (n = 297) their closest in age siblings. The behavioral emotional problems child positively predicted conflict over time. When accounting for control variables, this was no longer present. Sibling warmth prosocial both Future research directions clinical...