A5085498089- Fibromyalgia and Chronic Fatigue Syndrome Research
- Health, psychology, and well-being
- Musculoskeletal pain and rehabilitation
- Environmental and Air Quality Management
- Economic and Environmental Valuation
- Global Cancer Incidence and Screening
- Methodology and Impact of Social Science Research
- Genetic Neurodegenerative Diseases
- Child and Adolescent Health
- Ethics and Legal Issues in Pediatric Healthcare
- Long-Term Effects of COVID-19
- Ethics in medical practice
- Childhood Cancer Survivors' Quality of Life
- Colorectal Cancer Screening and Detection
- Psychosomatic Disorders and Their Treatments
- Health Systems, Economic Evaluations, Quality of Life
- Cancer Genomics and Diagnostics
- Resilience and Mental Health
- Air Quality and Health Impacts
- Biotechnology and Related Fields
- Optimism, Hope, and Well-being
- Eating Disorders and Behaviors
- Effects of Vibration on Health
- Healthcare Policy and Management
- Palliative Care and End-of-Life Issues
Buckinghamshire New University
2010-2022
University of the West of England
1998-2008
Riverside
2000
King's College Hospital
2000
University of Bristol
1994-1996
Gloucestershire Royal Hospital
1990
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic (CFS) has been used to name a range of conditions characterized by extreme and other disabling symptoms. Attempts estimate the burden disease have limited selection bias, lack diagnostic biomarkers agreed reproducible case definitions. We estimated prevalence incidence ME/CFS in three regions England, discussed implications frequency statistics use different definitions for health social care planning research. compared...
Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from Cooperation in Science Technology (COST)-COST action 15111-from 2016 to 2020. The main goal Cost Action was assess existing knowledge experience care delivery for people with (ME/CFS) countries, enhance coordinated research provision this field. We report our findings make recommendations clinical diagnosis,...
Diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome or ME/CFS is largely based on clinical history, and exclusion identifiable causes chronic fatigue. Characterization cases the impact interventions have been limited due to heterogeneity a lack reliable biomarkers for diagnosis outcome measures. People with (PWME) often report high levels disability, which are difficult measure objectively. The well being family members those who care PWME also likely be affected. This study...
Background. GPs need evidence and guidance to help them diagnose manage Chronic Fatigue Syndrome (CFS)/ME appropriately.
The potential benefits of the scientific insights gleaned from years treating ME/CFS for emerging symptoms COVID-19, and in particular Longhaul- or Longhauler-COVID-19 are discussed this opinion article. Longhaul COVID-19 is current name being given to long-term sequelae (symptoms lasting beyond 6 weeks) SARS-CoV-2 infection. Multiple case definitions exist, but post-exertional malaise (PEM) currently as ‘hallmark’ symptom. inability identify a unique trigger ME/CFS, well specific,...
Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can cause profound and prolonged illness disability, poses significant problems of uncertainty for healthcare professionals in its diagnosis management. The aim this qualitative study was to explore the nature professional 'best practice' working with people CFS/ME.The views experiences health care practitioners (HCPs) were sought, who had been judged by CFS/ME themselves have particularly helpful effective. Qualitative...
To assess the quality of histopathology reporting and accuracy Dukes's staging colorectal cancers in former South Western Health region to determine impact numbers lymph nodes examined on stage ascription.Histopathology reports cancer for 1993-7 were analysed. Completeness was assessed regarding reported examined, found positive, stage, ICD9 code. Numbers recorded. Results from one hospital known have high standards compared with those elsewhere.In total, 629 reference 918 elsewhere. Fewer...
Needs-based resource allocation is fundamental to equitable care provision, which can meet the often-complex, fluctuating needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). This has posed challenges both for those providing and seeking support providers, in building shared understanding condition actions address it. qualitative study reports on equity health social expressed by adults living CFS/ME.The participants were 35 CFS/ME England, purposively selected...
The ME/CFS Disease Register is one of six subprojects within the National Observatory, a research programme funded by Big Lottery Fund and sponsored Action for ME. A pilot study in East Anglia, Yorkshire, London aimed to address problem identifying representative groups subjects research, order be able draw conclusions applicable whole population.While not aiming comprehensive population coverage, this register sought recruit participants with an unbiased way from large base. Those recruited...
ME/CFS is a chronic, complex, multisystem disease that often limits the health and functioning of affected patients. Diagnosing patients with challenge, many different case definitions exist are used in clinical practice research. Even after diagnosis, medical treatment very challenging. Symptom relief coping may affect how live their quality life. There no consensus on which diagnostic criteria should be strategies can recommended for The purpose current project was to map landscape...
Background and Objectives: We have conducted a survey of academic clinical experts who are participants in the European ME/CFS Research Network (EUROMENE) to elicit perceptions general practitioner (GP) knowledge understanding myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suggestions as how this could be improved. Materials Methods: A questionnaire was sent all national representatives members EUROMENE Core Group Management Committee. Survey responses were collated then...
The prevalence of long-term catheterization in the adult population is order 0.03–0.07%, rising to 0.5% those over 75 years and 2% 85 old. Studies have shown that urinary incontinence increases with age higher females. Little known about costs catheterization, which consequences for care decisions. A pilot study was conducted test (a) applicability UK a methodology developed USA measuring cost community based patients, (b) feasibility using it larger-scale community-based studies. made use...
Purpose: First, to explore the experiences of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) rehabilitation therapies so as build an understanding reasons for discrepancy between notably mixed regarding effectiveness reported in patient surveys and RCT evidence about efficacy Graded Exercise Therapy (GET). GET is a form structured supervised activity management that aims gradual but progressive increases physical activity. Second, review two related approaches, on...
Background and Objectives: A comparative survey of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients was carried out in three countries, with the aim identifying appropriate policy measures designed to alleviate burden disease both on their families, also public institutions. The addressed demographic features, economic impact household incomes, patterns medical social care, specific therapies, relationships, illness quality life. Materials Methods: Parallel surveys were...