Introduction Survivors of critical illness and their caregivers are at risk for long-term cognitive, physical psychiatric impairments known as post-intensive care syndrome (PICS) PICS-family, respectively. This study will assess the feasibility a randomised controlled trial (RCT) evaluating an intensive unit (ICU) follow-up bundle versus standard-of-care ICU patients caregivers. Methods analysis is single-centre study. be eligible if: age ≥18 years, life expectancy ≥6 months high PICS. We...

Little is known about physical activity (PA) participation in people with advanced multiple sclerosis (MS). The purpose of this study was to (a) characterize self-reported PA levels and (b) explore how might differ based on sociodemographic (e.g., gender) clinical MS course) characteristics MS. We used a cross-sectional online survey design 101 participants. measured using the Physical Activity Scale for Individuals With Disabilities. mean score scale 4.5 ( SD = 5.9) metabolic equivalent...

ABSTRACT BACKGROUND: Despite unequivocal evidence for the benefits of regular physical activity (PA), many people with multiple sclerosis (MS) and their family caregivers find it challenging to fully participate same extent as general population. Achieving full participation in PA requires addressing both quantity quality participation. Although elements fostering (QP) disabilities are increasingly recognized, our knowledge how QP is experienced fostered dyadic interventions targeting MS...

Purpose: People with multiple sclerosis (PwMS) and their family caregivers often react to the impact of disease as an interdependent dyad. The aim this exploratory study was examine interdependence in physical activity (PA) patterns dyads affected by moderate severe MS disability. Method: A total 15 pairs PwMS wore accelerometers for 7 days. By collecting data simultaneously from both partners, we tested using dyad unit analysis. Results: averaged 4,091.3 (SD 2,726.3) 6,160.2 1,653.0) steps...

Physical activity (PA) is beneficial for all people, yet people affected by multiple sclerosis (MS) find regular PA challenging. These may include individuals with the disease who have moderate-to-severe disability and their family caregivers. For researchers clinicians to effectively promote among caregiver/care-recipient dyads MS, a comprehensive understanding of shared experiences these would be beneficial.We explored MS about directions intervention.Six focus groups 23 12 caregivers were...

Introduction It is important to understand the interactions, processes, and issues that occur within telerehabilitation interventions inform research practice. The aim of this study was identify difficulties reported intervention features were captured as helpful in notes written by occupational therapists during a trial. Method Administrative documentation form 60 subjective, objective, assessment, plan collected. trial examined effectiveness three teleconference-delivered interventions:...

Purpose Resilience research in family caregiving chronic neurological conditions is growing, but multiple sclerosis (MS) caregivers are noticeably absent from this body of work. MS represent a unique population due to the disease's early onset, prolonged life expectancy, and heterogeneity. As such, study aimed explore caregivers' conceptualizations resilience, examine experiences resilience development, determine which assets resources influence role.Methods Twenty-four Canadian were...

Background: Interest in comorbidities has increased the past few years, but effect of on outcomes multiple sclerosis (MS) neurorehabilitation interventions is unclear. The aim this review was to identify and summarize existing evidence regarding targeting people with MS. Methods: Five databases (Embase, MEDLINE through Ovid, PubMed Central, Cumulative Index Nursing Allied Health Literature, Web Science) were searched using index terms keywords relating MS a wide range rehabilitation...

Managing the heterogeneity and unpredictability of multiple sclerosis (MS) symptoms can be difficult for MS care partners. This study aimed to characterize managed by partners, recognize relationships between symptom management difficulty other aspects caregiving role, identify supplemental sources care-giving support used partners.A Canadian cohort partners completed an online survey capturing care-partner characteristics, care-recipient symptoms, with managing assistance. Descriptive...

Purpose: To identify the most pressing needs for community resources to support physical activity participation, determinants of perceived need, and barriers co-participation in among people with multiple sclerosis (MS) who have moderate-to-severe disability family caregivers providing assistance such individuals.Methods: Seventy-eight MS 46 participated this cross-sectional survey study, guided by Concerns Report Methodology.Results: The results show differences between groups rankings some...

Many people with advanced multiple sclerosis (MS) and their care-partners do not engage in sufficient physical activity (PA) for health benefits. We developed "Physical Activity Together MS (PAT-MS)", a 12-week dyadic behavioural intervention, to promote PA among these dyads. Herein, we evaluated the feasibility of PAT-MS before definitive trial.A randomized controlled trial, 1:1 allocation into intervention or wait-list control condition. Predefined progression criteria included rates...

Psychological resilience may play an important role in protecting multiple sclerosis care-partners from the negative effects of their support role. However, predictors this population have yet to be identified.

Background Physical activity (PA) is beneficial for all people; however, people affected by multiple sclerosis (MS) find regular PA challenging. These may include individuals with advanced disabilities and their care partners. Objective The objective of this study to determine the feasibility a dyadic intervention MS Methods This randomized controlled trial 12-week intervention, 1:1 allocation into an immediate condition or delayed control condition. A target 20 MS–care partner dyads will be...

Objective: To identify the extent to which exercise intervention studies in multiple sclerosis rehabilitation are addressing comorbidities and if researchers consider as possible moderators or mediators of outcomes. Methods: Five databases were searched from inception January 8, 2016, for exercise-related terms combination with sclerosis. Studies screened limited randomized control trials, full text, English language. We assessed whether excluded included, how they reported described,...

People with moderate to severe multiple sclerosis (MS) and their family care partners do not engage in sufficient physical activity (PA) for health benefits. Dyadic PA interventions need be developed benefit each individual the dyad. The objective of this study was expert stakeholders prioritizing refining key intervention content, delivery methods, practical/logistical aspects a dyadic persons MS partners.Thirty-two (14 clinicians, 11 people MS, 5 partners, 2 representatives organizations...

ABSTRACT BACKGROUND Care partners are essential supports to individuals with multiple sclerosis (MS). Both negative and positive outcomes associated the caregiving role have been reported. Psychological resilience may be an important factor influencing MS experience, but MS-specific model of care partner has yet established. This study sought explore explicit resilience. METHODS Cross-sectional data from 471 Canadian were collected via online survey. Confirmatory analysis (CFA) structural...