A5059130351- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Stoma care and complications
- Childhood Cancer Survivors' Quality of Life
- Nutrition and Health in Aging
- Colorectal Cancer Surgical Treatments
- Family Support in Illness
- Pain Management and Opioid Use
- Family and Patient Care in Intensive Care Units
- Ethics in medical practice
- Patient Dignity and Privacy
- Health Sciences Research and Education
- Pediatric Pain Management Techniques
- Bladder and Urothelial Cancer Treatments
- Cancer-related cognitive impairment studies
- BRCA gene mutations in cancer
- Hematopoietic Stem Cell Transplantation
- Advances in Oncology and Radiotherapy
- Grief, Bereavement, and Mental Health
- Frailty in Older Adults
- Health Systems, Economic Evaluations, Quality of Life
- Nursing Diagnosis and Documentation
- Medication Adherence and Compliance
- Pelvic floor disorders treatments
- Complementary and Alternative Medicine Studies
City of Hope
2015-2024
City Of Hope National Medical Center
2014-2023
Universidade de São Paulo
2021
Beckman Research Institute
2009-2019
Hornsby Ku-ring-gai Hospital
2016
Northern Sydney Local Health District
2016
The University of Sydney
2016
Yale University
2015
Southern Arizona VA Health Care System
2003-2015
University of Arizona
2007-2015
Abstract The purpose of this study was to develop an instrument for measuring the quality life cancer patients. Quality measured with 14 linear analogue scale items concerning general physical condition, normal activities, and personal attitudes on life. tool tested four subject groups: oncology outpatients receiving chemotherapy (43) or radiation therapy (39), inpatients (48), nonpatient volunteers (48). Test‐retest reliability coefficients these samples ranged from r = .11 .97, 52 56...
This study identified attributes that define the content domain of quality life in a sample 41 cancer patients with chronic pain. Patients were asked four open-ended questions about meaning life, what contributes to good or poor and how pain influences life. Content analysis responses revealed three categories embrace quality-of-life domain. The first category is physical well-being. It includes general functioning disease/treatment-specific attributes. second psychological...
With an increasing number of women surviving breast cancer beyond treatment, the focus care has shifted from acute treatment-related side effects to long-term associated with changes in quality life (QOL). Part I this article described impact on domains physical and social well-being 21 survivors through qualitative analysis. II explores psychological spiritual well-being.
Purpose Intestinal stomas can pose significant challenges for long-term (≥ 5 years) rectal cancer (RC) survivors. Specifying common and sociodemographic or clinical differences will further the development of tailored interventions to improve health-related quality life (HRQOL). Patients Methods This was a matched cross-sectional study RC survivors conducted in three Kaiser Permanente regions. The mailed questionnaire included modified City Hope Quality Life-Ostomy (mCOH-QOL-Ostomy) Medical...
A reliable and valid multidimensional instrument for measuring quality of life in cancer patients has been developed. Furthermore, a model offered that describes how works as an outcome variable. Using this model, predictions were made nursing interventions may directly or indirectly impact on life. Initial testing the using data from 135 colostomy showed satisfaction with care personal control act cognitive mediators self-worth, which then impacts dimensions
Purpose/Objectives: To describe burden, skills preparedness, and quality of life (QOL) for caregivers patients with non-small cell lung cancer (NSCLC), how the findings informed development a caregiver palliative care intervention that aims to reduce improve caregiving skills, promote self-care.
Almost 2 million breast cancer survivors reside in the United States. An increase consumer advocacy and media attention to this disease has helped bring survivorship forefront of public attention. This led increased on quality life(QOL) issues for these cancer. two-part article presents results a qualitative, descriptive study evaluating QOL 21 survivors. is based our conceptual model including physical, psychological, social, spiritual well-being. Part I describes impact physical social...
Currently, over 1,700,000 women are living with breast cancer in the United States. These long-term survivors of challenged to redirect their energy from issues treatment and early side effects toward quality life related survivorship, such as menopause, infertility, fear recurrence, family distress, uncertainty. In an attempt obtain patient perspectives on health care faced by survivors, focus group methodology was utilized first year a 2 study. The sample stratified represent three age...
PURPOSE The purpose of this study is to describe demographic, clinical, and quality-of-life variables related ostomy complications (skin irritation, leakage, difficulty adjusting an ostomy) in a veteran population the United States. DESIGN original employed descriptive crosssectional using mixed method design. This secondary analysis used quantitative data collected. SAMPLE AND SETTING Two hundred thirty-nine veterans with intestinal ostomies from 3 Veteran's Administration hospitals...
Purpose/Objectives: To describe how gender shapes the concerns and adaptations of long-term (i.e., more than five years) colorectal cancer survivors with ostomies.
OBJECTIVE Some patients with colorectal cancer (CRC) require a permanent ostomy, which changes bodily function and can create psychosocial distress. However, little is known about the influence of men's support on women's adjustment to having an ostomy as result CRC. METHODS Participants initially completed City Hope-CRC Quality Life questionnaire. We then conducted in-depth interviews 30 female participants. Interview questions focused body image, gender, sexuality. Interviews were recorded...
Colorectal cancer survivors with ostomies can face complex concerns regarding sexuality. We used an anthropological perspective to examine the experiences of 30 female colorectal shed light on sexual challenges and adaptations made in wake surgery treatment. Participants fell into four categories regard their experience post surgery; however, not all women found altered sexuality be particularly problematic. This type phenomenological examination inform a more patient-centered, less...
BACKGROUND Family caregivers (FCGs) experience significant deteriorations in quality of life while caring for patients with lung cancer. In this study, the authors tested effectiveness an interdisciplinary palliative care intervention FCGs diagnosed stage I through IV nonsmall cell METHODS who were identified by as their primary enrolled a prospective, quasi‐experimental study which usual group was accrued first followed group. presented at meetings, and they also received 4 educational...
Objective Family caregivers (FCGs) caring for loved ones with lung cancer are at risk psychological distress and impaired quality of life (QOL). This study explores the relationship between FCGs' distress, per thermometer (DT) QOL, burden, preparedness. The purpose is to identify types problems unique FCGs in care. Methods patients diagnosed non-small cell were recruited from an adult outpatient setting a comprehensive center. Questionnaires included demographic information, City Hope QOL...
Abstract Background Individuals with ostomies experience extensive changes in health‐related quality of life (HRQOL) and daily routine. Patients families are typically forced to use trial error improve self‐management. Methods This is a longitudinal one‐group design pilot study five‐session ostomy self‐care curriculum based on the Chronic Care Model HRQOL self‐management for cancer survivors ostomies. Participants were surveyed evaluate each session. Multiple instruments administered examine...
Background: Use of oral chemotherapy agents to treat cancer has increased. Patients are responsible for adhering complex regimens while managing symptoms from adverse effects the chemotherapy. Objective: This study examined an intervention manage and adherence agents. Methods: A 3-group pilot determined how Automated Voice Response (AVR) system alone (n = 40), or AVR with strategies 39) reduced symptom severity improved adherence. Participants received a Symptom Management Toolkit, completed...