A5091803614- HIV/AIDS Research and Interventions
- Palliative Care and End-of-Life Issues
- Global Cancer Incidence and Screening
- Hemoglobinopathies and Related Disorders
- Obesity, Physical Activity, Diet
- Diverticular Disease and Complications
- Patient-Provider Communication in Healthcare
- Adolescent Sexual and Reproductive Health
- Obesity and Health Practices
- Dialysis and Renal Disease Management
- Mobile Health and mHealth Applications
- Grief, Bereavement, and Mental Health
- Diet and metabolism studies
- Appendicitis Diagnosis and Management
- Iron Metabolism and Disorders
- BRCA gene mutations in cancer
- Pelvic floor disorders treatments
- Pharmaceutical Practices and Patient Outcomes
- Health Literacy and Information Accessibility
- Autism Spectrum Disorder Research
- Ethics in Clinical Research
- Gastrointestinal disorders and treatments
- Opioid Use Disorder Treatment
- Family and Disability Support Research
- Ethics and Legal Issues in Pediatric Healthcare
Vanderbilt University
2017-2025
Vanderbilt Health
2025
Vanderbilt University Medical Center
2020-2024
VA Tennessee Valley Healthcare System
2020-2022
National Center for Advancing Translational Sciences
2022
National Institutes of Health
2022
American Medical Association
2022
Google (United States)
2021
Iowa City Public Library
2020
University of Iowa
2020
The onset of type 2 diabetes mellitus can be prevented or delayed by lifestyle changes. Communication technologies such as a mobile phone used means delivering these changes.The purposes this analysis were to explore applicability potential components phone-based healthy program and understand motivators barriers continued engagement in program.We conducted 6 focus groups (4 female male groups) May June 2010 with 35 group participants. qualitative data analyzed 3 researchers using...
The All of Us Research Program is building a national longitudinal cohort and collecting data from multiple information sources (e.g., biospecimens, electronic health records, mobile/wearable technologies) to advance precision medicine. Participant-provided information, collected via surveys, will complement augment these sources. We report the process used develop refine initial three surveys for this program.The survey development included: (1) prioritization domains scientific needs, (2)...
Importance Screening for lung cancer using low-dose computed tomography is associated with reduced cancer–specific mortality, but uptake low in the US; understanding how patients make decisions to engage screening critical increasing uptake. Prior research has focused on individual-level psychosocial factors, environmental factors (eg, historical contexts that include experiencing racism) and modifying factors—those can be changed it easier or harder undergo screening—also likely affect...
<h3>Importance</h3> Clinicians and patients benefit when they have a clear understanding of how medical conditions influence patients' life experiences. Patients' perspectives on with unilateral vocal fold paralysis not been well described. <h3>Objective</h3> To promote patient-centered care by characterizing the patient experiences living paralysis. <h3>Design, Setting, Participants</h3> This study used mixed methods: surveys using voice dysphagia handicap indexes (VHI DHI) semistructured...
Objective Adults with hearing loss (AHL) often report feeling fatigued after being in situations that require prolonged listening, an experience referred to as listening-related fatigue. We conducted focus groups identify key domains and constructs of Our goal was create a theoretical framework for understanding fatigue could guide the development reliable valid assessment tool.Design Eight group discussions were using moderator's guide. Discussions recorded, transcribed, coded, analysed...
Abstract Background With the rapid advances in gene technologies recent years, potential benefits of precision medicine (PM) may spread unevenly to disadvantaged populations, such as Hispanics/Latinos. The objective this study was explore patient-level barriers and facilitators dissemination adoption PM among Hispanics/Latinos, including knowledge awareness. Methods Self-identified Hispanics/Latinos from diverse countries Latin America ( N = 41) participated study. Using a cross-sectional...
Background: Trust in health care has been shown to influence utilization, perceptions of fair treatment, and outcomes the general population. The literature on trust individuals with a history substance use disorder (SUD) is more limited, primarily examining patient-provider relationship. Women seeking abuse treatment community-based programs have higher rates prior trauma disparities compared male counterparts With trauma, this population theoretically at high risk decreased interpersonal...
There are a variety of factors and influences, both internal external, that may impact an individual’s public toileting experience ultimately have repercussions for bladder health. This study sought to identify predominant constructs underlying women’s attitude towards using restrooms at work, school, in order develop conceptual model incorporating these themes. We performed secondary analysis cross-sectional, survey-based included open-ended questions about limitations restroom use...
Objective: Understand the patient decision-making process regarding colectomy for recurrent diverticulitis. Summary Background Data: The decision to pursue elective diverticulitis is highly preference sensitive. Little known about perspective in this process. Methods: We performed a qualitative study utilizing focus groups of patients with at three centers across United States. Using an iterative inductive/deductive approach, we developed conceptual framework capture major themes identified...
Postural orthostatic tachycardia syndrome (POTS) is a relatively common, burdensome condition of the autonomic nervous system characterized by intolerance. This paper presents subset findings from qualitative study investigating lived experience and perspectives adults with POTS. Twenty-nine individuals participated in series focus groups. We present conceptual model which summarizes themes related to illness-related experiences, emotional reactions, coping strategies, distinguishes how...
Patient Reported Outcome Measures (PROMs) quantify the patient's quality of life and symptom burden. This study assesses implementation an automated PROM-capture system in outpatient cranial neurosurgery clinic. We conducted both quantitative qualitative analyses a PROM tool single-center, dedicated brain tumor The primary measures were PROMIS-10 FACT-Br. outcome interest was completion. For analysis, patients providers queried over 6-month period to participate phone interview on their...
Background: Despite their prevalence, prognostic significance, and prioritization by patients, key geriatric syndromes, such as cognitive impairment, frailty, depression are not routinely addressed in chronic kidney disease (CKD) care the United States (US). In an interdisciplinary model, health professionals with diverse expertise collaborate to address all symptoms functional impairments occurring alongside a patient’s disease. Thus, addressing syndromes CKD may require implementing this...
Tennessee is in the southern region of United States and has not yet fully benefitted from HIV pre-exposure prophylaxis (PrEP). Relatively little research focused on pivotal roles PrEP navigators. This study examined navigator perceptions implementing long-acting injectable (LAI) Tennessee. Semi-structured interviews with state-funded navigators were audio-recorded, transcribed, systematically coded using a hierarchical system. Coded transcripts aggregated, sorted, analyzed an iterative...
Data suggests 5-Aminosalicytes (5-ASA) medication does not influence outcomes in patients with moderate to severe ulcerative colitis (UC) on advanced therapy and can be discontinued. However, patients' perspectives discontinuing UC-related medications have been evaluated should incorporated when considering changes. This study explored experiences UC treatment combination therapy, barriers, facilitators, attitudes toward deprescribing 5-ASAs. To qualitatively evaluate views 5-ASA...
Diverticular disease is a common gastrointestinal diagnosis with over 2.7 million clinic visits yearly. National guidelines from the American Society of Colon and Rectal Surgeons state that "the decision to recommend elective sigmoid colectomy after recovery uncomplicated acute diverticulitis should be individualized." However, tools individualize this are lacking.
Purpose The purpose of this study was to identify barriers adherence in type 1 diabetes through adolescent focus groups and use information determine how educators can have a positive impact on their patients’ management. Methods Two were conducted with adolescents young adults (n = 11) ages 17 21 diabetes. A group script, which consisted 4 open-ended questions about care challenges associated management diabetes, used elicit discussion. transcripts coded analyzed using the...
Background: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a debilitating condition carrying substantial psychosocial burden. Psychological treatment for IC/BPS little studied, and there are barriers to its use in clinical management. Whether psychological treatments benefit patients with unclear we do not know whether such would meet patient needs.Aims: Incorporating patient-reported needs acknowledging diversity experiences can inform patient-centered interventions IC/BPS. This...