A5017082277- Palliative Care and End-of-Life Issues
- Ethics in medical practice
- Childhood Cancer Survivors' Quality of Life
- COVID-19 and healthcare impacts
- Opioid Use Disorder Treatment
- Cancer survivorship and care
- Optimism, Hope, and Well-being
- Grief, Bereavement, and Mental Health
- Pain Management and Opioid Use
- Patient-Provider Communication in Healthcare
- Economic and Financial Impacts of Cancer
- Family Support in Illness
- Healthcare professionals’ stress and burnout
- Pharmaceutical Practices and Patient Outcomes
- Health Systems, Economic Evaluations, Quality of Life
- Patient Dignity and Privacy
- Family and Patient Care in Intensive Care Units
- Interprofessional Education and Collaboration
- Empathy and Medical Education
- Telemedicine and Telehealth Implementation
- COVID-19 and Mental Health
- Iron Metabolism and Disorders
- Ethics in Clinical Research
- Anesthesia and Pain Management
- Pediatric Pain Management Techniques
University of Pennsylvania
2019-2025
Penn Center for AIDS Research
2025
University of Pennsylvania Health System
2025
Hospital of the University of Pennsylvania
2014-2023
California University of Pennsylvania
2023
Philadelphia University
2022
Dana-Farber Brigham Cancer Center
2017
Brigham and Women's Hospital
2017
Dana-Farber Cancer Institute
2017
All persons have a right to palliative care during cancer treatment and at the end-of-life. The World Health Organization (WHO) defines as medical specialty that addresses physical, psychological, social, legal, spiritual domains of by an interdisciplinary team professional lay health providers. Widespread adoption this universal definition will aid policy development educational initiatives on national level. need for is expanding due aging world's population increase in rate both developed...
<h3>Importance</h3> Cancer clinical trials (CCTs) provide patients an opportunity to receive experimental drugs, tests, and/or procedures that can lead remission. For some, a CCT may seem like their only option. Little is known about experiences of patient-participants who withdraw or are withdrawn from CCTs. <h3>Objective</h3> To examine patient-participants' during withdrawal <h3>Design, Setting, and Participants</h3> This qualitative, descriptive study used semistructured interview...
e21000 Background: Hospital clinicians in the US care for almost 34 million patients each year; 40% of whom are seriously ill with one or more co-morbidities. General medicine hospital clinicians—which includes physicians (at all training levels), nurse practitioners, and physician assistants—try to provide expert these serious illness while also attending family needs, interdisciplinary interpersonal relationships, clinician’s own well-being. Clinicians, themselves, increasingly...
9012 Background: Millions of Americans are hospitalized every year; many whom seriously ill with one or more co-morbidities. Clinicians, including physicians and advanced practice providers (APPs) care for these complex patients while also juggling competing clinical demands from fielding multiple specialty recommendations to navigating interprofessional relationship. But clinicians distressed, which has the potential impact quality healthcare delivery at moment in future. To date there is...
Caregivers often face critical decisions, burdens, and perceived benefits related to a loved one participating in cancer clinical trial (CCTs). The purpose of this analysis was better understand caregivers' perceptions on the burdens participation trials. Using qualitative descriptive design, interviews with 20 caregivers patient-participants from larger parent study were conducted. Three major themes emerged. research focused enhancing potential for saving one's life, improving quality...
Goals of care (GOC) discussions are an increasingly used quality metric in serious illness and research. Wide variation documentation practices within the Electronic Health Record (EHR) presents challenges for reliable measurement GOC discussions. Novel natural language processing approaches needed to capture documented real-world samples seriously ill hospitalized patients' EHR notes, a corpus with very low event prevalence. To automatically detect sentences documenting outside dedicated...
Background: Palliative care programs are experiencing rapid growth, with demand for consults surpassing staffing. Innovative models needed to equip nonpalliative providers manage basic palliative issues. Objectives: To develop a novel program of office hours hematologic oncology advanced practice providers, and evaluate its impact on consult volume composition. Methods: A nurse practitioner or pharmacist was available weekday all inpatient at an academic medical center offer advice pain,...
Hematologic malignancies differ in several important ways from solid organ cancers, and warrant a unique approach to palliative care (PC) integration. As PC has moved upstream end-of-life care, clinicians are increasingly asked see patients with hematologic malignancies. Unfortunately, many specialists have limited knowledge of these diseases, had few prior opportunities participate their care. This article, written by oncologists specialists, seeks educate teams about the features...
Abstract Objective Goals Of Care (GOC) discussions are an increasingly used quality metric in serious illness care and research. Wide variation documentation practices within the Electronic Health Record (EHR) presents challenges for reliable measurement of GOC discussions. Novel natural language processing approaches needed to capture documented real-world samples seriously ill hospitalized patients’ EHR notes, a corpus with very low event prevalence. Methods To automatically detect...
This analysis examined regret from participation in cancer clinical trials (CCT) and explored associations between symptom burden, bother, therapeutic optimism, the importance of spiritual beliefs.
Advanced practice nurses with specialty-level skills in hospice and palliative care are urgently needed to optimize delivery for Americans advanced serious illness. Leaders the healthcare nursing communities encourage new pursue higher education pathways, enroll postgraduate training programs, career-long learning. An integral part of learning process is evaluating competence knowledge, skills, attitudes defined discipline. However, there currently no established methods track achievement...
Opportunities for advanced practice registered nurses (APRNs) to train specialty palliative care are insufficient meet workforce needs. Graduate nursing programs in the United States do not have uniform or required curricula and end-of-life of seriously ill. In clinical practice, APRNs acquire skills by a mix on-the-job experience, self-study, continuing education. While physician colleagues can pursue post-residency training one 156 accredited hospice medicine fellowships, there fewer than...
Caring for patients with serious illness may severely strain clinicians causing distress and probable poor patient outcomes. Unfortunately, clinician its impact historically has received little attention.The purpose of this article was to investigate the nature distress.Qualitative inductive dimensional analysis.After review 577 articles from health sciences databases, a total 33 were eligible analysis.This study did not require ethical authors adhered appropriate academic standards in their...
Journal of Women's HealthVol. 30, No. 7 CommentaryInvestment in Mental Health During and After the COVID-19 PandemicAnessa M. Foxwell, Erin E. Kennedy, Mary NaylorAnessa FoxwellAddress correspondence to: Anessa MSN, CRNP, ACHPN, NewCourtland Center for Transitions Health, University Pennsylvania School Nursing, 418 Curie Boulevard, Philadelphia, PA 19104, USA E-mail Address: [email protected]https://orcid.org/0000-0003-4665-0108NewCourtland Pennsylvania, USA.Clinical Practices Perleman...
Inherent to the cancer disease trajectory are heightened risks for a plethora of comorbid diagnoses. As treatment landscape oncology therapeutics continues rapidly advance, patients living longer and potentially experiencing more symptoms requiring rapid assessment. Prompt assessment intervention or treatment-related is imperative achieve patient comfort obtain best overall outcomes. Traditionally, these were frequently referred emergency department (ED) when same-day clinic appointments not...
Rapid uptake of telehealth technologies has shifted clinician–patient relationships, a well-studied topic sociological inquiry. The purpose this dimensional analysis study was to understand the symbolic interaction clinicians and patients within virtual supportive cancer care. Seventeen clinicians, eighteen patients, three care partners receiving or providing at multi-site center in United States participated interviews. Our experiences reveals key tension: need rely on order share clinical...
Research cannot advance without the voluntary participation of human participants. Full research participants is often restrained by traditional framework, which relegates them to a predefined participant role and allows only quasi-scripted opportunities contribute processes outcomes. Terms commonly used refer do not reflect their significant or send clear message about value. The authors propose shift from 'patient participant' 'participant partner.' Recognition true partnership between...
Little is known about the extent to which pediatric palliative care (PPC) clinicians are engaged in ethics consults or how they perceive interactions with consultants.