A5001760835- Palliative Care and End-of-Life Issues
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Geriatric Care and Nursing Homes
- Family and Patient Care in Intensive Care Units
- Respiratory and Cough-Related Research
- Dysphagia Assessment and Management
- Chronic Disease Management Strategies
- Childhood Cancer Survivors' Quality of Life
- Disaster Response and Management
- Health Systems, Economic Evaluations, Quality of Life
- Respiratory Support and Mechanisms
- Ethics in Clinical Research
- Medical Imaging and Pathology Studies
- Sarcoidosis and Beryllium Toxicity Research
- Grief, Bereavement, and Mental Health
- Frailty in Older Adults
- COVID-19 and healthcare impacts
- Cancer survivorship and care
- Delphi Technique in Research
- Asthma and respiratory diseases
- Intensive Care Unit Cognitive Disorders
- Patient Dignity and Privacy
- Psychosomatic Disorders and Their Treatments
- Neuroscience of respiration and sleep
King's College London
2016-2025
Cicely Saunders International
2016-2025
King's College Hospital NHS Foundation Trust
2015-2024
Hull York Medical School
2023
University of Hull
2023
University of Edinburgh
2023
National Jewish Health
2021
University of Colorado Denver
2021
The London College
2019
Royal Marsden NHS Foundation Trust
2011-2013
There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration into the respiratory adult ILD. The ERS consisted 20 members, including representatives ILD informal caregivers. Eight questions were formulated, four Population, Intervention, Comparison, Outcome format. These addressed full systematic reviews application Grading...
Background: While there have been some studies looking at the impact on quality of life patients with idiopathic pulmonary fibrosis, to date no qualitative research specialist palliative needs these has conducted. Aim: This study aims explore care people living end-stage progressive fibrotic interstitial lung disease. Design and settings/participants: In total, 18 semi-structured in-depth interviews were conducted patients, their informal caregivers health professionals across two disease...
<h3>Background</h3> Those affected by advanced fibrotic interstitial lung diseases (ILDs) have considerable unmet symptom and psychological needs. Case conferencing has been proposed to address these issues, but requires evaluation. <h3>Aim</h3> To obtain preliminary information on the impact of a case conference intervention delivered in home (Hospital2Home) palliative care concerns patients their carers, evaluate feasibility acceptability. <h3>Methods</h3> Hospital2Home was trialled at...
Specialist palliative care services have a key role in whole system response to COVID-19, disease caused by the SARS-CoV-2 virus. There is need understand service share good practice and prepare for future care. To map specialist innovations changes COVID-19. Online survey of providers (CovPall), disseminated via stakeholders. Data collected on characteristics, Statistical analysis included frequencies, proportions means, free-text comments were analysed using qualitative framework approach....
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The importance at the end of life developing effective communication and meeting information needs is recognised as being central to enhance patient family centred experience. This qualitative study aimed explore understanding disease, preferences regarding end-of-life planning, views on coordination care in patients with Progressive Idiopathic Fibrotic Interstitial Lung Disease (PIF-ILD). Twelve semistructured in-depth interviews were conducted among PIF-ILD carers attending two London...
Safety concerns are a barrier to prescribing benzodiazepines (BDZs) and opioids in interstitial lung disease (ILD). We therefore examined the association of BDZs on risk admission hospital death. conducted population-based longitudinal cohort study fibrotic ILD patients starting long-term oxygen therapy Sweden between October 2005 December 2014. Effects rates mortality were analysed using Fine–Gray Cox regression while adjusting for potential confounders. included 1603 (61% females). used by...
Background: Specialist palliative care services play an important role in conducting advance planning during COVID-19. Little is known about the challenges to this context, or changes made adapt. Aim: Describe that UK specialist experienced regarding COVID-19 and support timely conversations. Design: Online survey of palliative/hospice services’ response Closed-ended responses are reported descriptively. Open-ended were analysed using a thematic Framework approach Social Ecological Model...
Summary Objective To explore the experiences of, and impact on, staff working in palliative care during COVID-19 pandemic. Design Qualitative multiple case study using semi-structured interviews between November 2020 April 2021 as part of CovPall study. Data were analysed thematic framework analysis. Setting Organisations providing specialist services any setting. Participants Staff care, purposefully sampled by criteria role, setting experience. Main outcome measures Experiences Results...
Strategies in many countries have sought to improve palliative care and reduce hospital deaths for non-cancer patients, but their effects are not evaluated. We aimed determine the trends factors associated with dying two common progressive respiratory diseases, impact of a national end life (EoLC) strategy hospital. This population-based observational study linked death registration data people England from chronic obstructive pulmonary disease (COPD) or interstitial diseases (IPD). plotted...
To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19.
Abstract Reliance on fixed‐term contracts and a lack of adequate maternity provision for workers could be contributing to the loss women from academia―the so called “leaky pipeline”―but evidence this is lacking. This paper describes variation, between research intensive universities in UK, they offer presents preliminary staff data likelihood returning work following period leave academic non‐academic versus open‐ended contracts. A gendered lens applied, investigating how intersection...
Bias and inequity in palliative care disproportionately affect marginalised groups. Large language models (LLMs), such as GPT-4o, hold potential to enhance but risk perpetuating biases present their training data. This study aimed systematically evaluate whether GPT-4o propagates responses using adversarially designed datasets. In July 2024, was probed the Palliative Care Adversarial Dataset (PCAD), were evaluated by three experts Canada United Kingdom validated bias rubrics. The PCAD...