A5071084595- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Cancer survivorship and care
- Family and Patient Care in Intensive Care Units
- Patient Dignity and Privacy
- Family Support in Illness
- Respiratory Support and Mechanisms
- Asthma and respiratory diseases
- Psychosomatic Disorders and Their Treatments
- Respiratory and Cough-Related Research
- Pain Management and Opioid Use
- Intensive Care Unit Cognitive Disorders
- Patient-Provider Communication in Healthcare
- Ethics in medical practice
- Disaster Response and Management
- Health Systems, Economic Evaluations, Quality of Life
- Medical and Health Sciences Research
- Pediatric Pain Management Techniques
- Geriatric Care and Nursing Homes
- Grief, Bereavement, and Mental Health
- Health and Medical Studies
- Clinical practice guidelines implementation
- Social and Demographic Issues in Germany
- Delphi Technique in Research
University Hospital Cologne
2016-2025
University of Cologne
2012-2025
Düsseldorf University Hospital
2019-2025
Heinrich Heine University Düsseldorf
2019-2025
Gobierno de La Rioja
2025
Centrum für Integrierte Onkologie
2012-2024
Ludwig-Maximilians-Universität München
2020
University Hospital Bonn
2020
Integrated Oncology (United States)
2020
Institut für Palliative Care
2008-2017
Background: Few measures capture the complex symptoms and concerns of those receiving palliative care. Aim: To validate Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, evaluating its validity, reliability responsiveness to change. Design: Concurrent, cross-cultural validation study Scale – both (1) patient self-report (2) staff proxy-report versions. We tested construct validity (factor analysis, known-group comparisons, correlational...
There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration into the respiratory adult ILD. The ERS consisted 20 members, including representatives ILD informal caregivers. Eight questions were formulated, four Population, Intervention, Comparison, Outcome format. These addressed full systematic reviews application Grading...
Patient-reported outcome measurement (PROM) plays an increasingly important role in palliative care. A variety of measures exists and is used clinical care, audit research. However, little known about professionals' views using these measures. The aim this study to describe the use experiences care professionals with measures.A web-based online survey was conducted Europe Africa. Professionals working research were invited via national associations various databases. Invitation e-mails sent...
Highlights•This ESMO Clinical Practice Guideline provides key recommendations on the management of breathlessness in patients with cancer.•Authorship includes a multidisciplinary group experts from different institutions and countries Europe worldwide.•Key treatment are provided, including levels evidence grades recommendation where applicable.•Routine assessment its impact facilitates timely interventions.•Key non-pharmacological measures include fan, breathing retraining, mobility aids,...
Background: Health-care costs are growing, with little population-based data about people’s priorities for end-of-life care, to guide service development and aid discussions. Aim: We examined variations in treatment, care information across seven European countries. Design: Telephone survey of a random sample households; we asked respondents their if ‘faced serious illness, like cancer, limited time live’ used multivariable logistic regressions identify associated factors....
During the SARS-CoV2 pandemic, protection measures, as well visiting restrictions, had a severe impact on seriously ill and dying patients their relatives. The study aims to describe experiences of bereaved relatives who died during regardless whether were infected with or not. As part this, related patients' end-of-life care, saying goodbye, restrictions communication healthcare team assessed.
Background: Despite the high prevalence and impact of episodic breathlessness, information about characteristics patterns is scarce. Aim: To explore experience patients with advanced disease suffering from in order to describe types patterns. Design participants: Qualitative design using in-depth interviews stages chronic heart failure, obstructive pulmonary disease, lung cancer or motor neurone disease. As part interviews, were asked draw a graph illustrate typical breathlessness episodes....
Abstract Purpose While the unique situation of adolescents and young adults with cancer (AYAs) has become focus research clinical practice, little is known about how they deal threat to life at a curative stage. The aim this study was obtain insight into challenges, coping strategies, needs AYAs regarding life-threatening nature their diseases. Methods Face-to-face in-depth interviews were conducted patients who 18–39 years old diagnosis. took place 2–5 after Patients still undergoing...
Background: The Council of Europe has recommended that member states European Union encourage their citizens to make decisions about healthcare before they lose capacity do so. However, it is unclear whether the public wants such beforehand. Aim: To examine preferences for self-involvement in end-of-life care decision-making and identify associated factors. Design: A population-based survey with 9344 adults England, Belgium, Germany, Italy, Netherlands, Portugal Spain. Results: Across...
Europe faces an enormous public health challenge with aging populations and rising cancer incidence. Little is known about what concerns the across European countries regarding care towards end of life. We aimed to compare level concern different symptoms problems in advanced examine factors influencing this. Telephone survey 9,344 individuals aged ≥16 England, Flanders, Germany, Italy, Netherlands, Portugal Spain. Participants were asked nine problems, imagining a situation less than one...
Background: Episodic breathlessness is one form of refractory breathlessness. Better understanding the symptom necessary for effective management. Aim: The aim was to describe characteristics episodic in patients with advanced chronic obstructive pulmonary disease or lung cancer. Design: This a longitudinal cohort study. Outcomes were assessed monthly by up 13 telephone interviews: peak severity (modified Borg scale: 0–10), duration, frequency, and timing episodes. Data from each episode...
The purpose of palliative medicine is to optimize the quality life patients with incurable, progressive diseases. care delivered in actual clinical practice not uniform and often takes insufficient account currently available scientific evidence.