A5026656784- Palliative Care and End-of-Life Issues
- Patient Dignity and Privacy
- Cancer survivorship and care
- Grief, Bereavement, and Mental Health
- Childhood Cancer Survivors' Quality of Life
- Palliative and Oncologic Care
- Health Systems, Economic Evaluations, Quality of Life
- Family and Patient Care in Intensive Care Units
- Ethics in medical practice
- Patient-Provider Communication in Healthcare
- Healthcare Decision-Making and Restraints
- Mental Health and Psychiatry
- Innovations in Medical Education
- Chronic Disease Management Strategies
- Disaster Response and Management
- Male Reproductive Health Studies
- Stress and Burnout Research
- Wound Healing and Treatments
- Child and Adolescent Health
- Women's cancer prevention and management
- Clinical practice guidelines implementation
- Diabetic Foot Ulcer Assessment and Management
- Geriatric Care and Nursing Homes
- Primary Care and Health Outcomes
- Aging, Elder Care, and Social Issues
University of Cambridge
2020-2025
University College London
2023
University of London
2023
University of Nottingham
2023
Universidade do Porto
2016-2022
University of Coimbra
2011-2022
King's College London
2011-2022
Centre for Health Technology and Services Research
2016-2021
Dana-Farber Cancer Institute
2020
Cicely Saunders International
2012-2020
Anticipatory prescribing (AP) of injectable medications in advance clinical need is established practice community end-of-life care. Changes to guidelines and have been reported during the COVID-19 pandemic.
How quality in healthcare is measured shapes care provision, including how and what delivered. In end-of-life care, appropriate measurement can facilitate effective research, when used policy, highlight deficits developments provision endorse the discipline necessity. The most prevalent metric, place of death, not a measure: it gives no indication or patient experience death.
Abstract Objectives Dignity therapy (DT) is a brief, individualized intervention, which provides terminally ill patients with an opportunity to convey memories, essential disclosures, and prepare final generativity document. DT addresses psychosocial existential issues, enhancing sense of meaning purpose. Several studies have considered the legacy topics most frequently discussed by near end life. To date, no Portuguese study has done that analysis. Method We conducted qualitative analysis...
Abstract Background To culturally adapt and validate the Integrated Palliative care Outcome Scale to European Portuguese. Methods Multi-centred observational study with 2 assessment points. Data were collected in nine centres using consecutive sampling. All patients screened for eligibility. Inclusion criteria: ≥18 years, mentally fit give consent, diagnosed an incurable, potentially life-threatening illness, read, write understand Translation back translation independent native speakers...
Background: Despite ageing populations and increasing cancer deaths, many European countries lack national policies regarding palliative end-of-life care. The aim of our research was to determine public views care in the face serious illness. Methods: Implementation a pan-European population-based survey with adults England, Belgium (Flanders), Germany, Italy, Netherlands, Portugal Spain. Three stages analysis were completed on open-ended question data: (i) inductive category-code framework;...
The aim of this scoping review is to give an overview and appraisal the development outcome measurement throughout time its present importance healthcare specifically palliative care clinical practice. It based on a search results published systematic implementing patient reported measures in Medline, PsycInfo, Cumulative Index Nursing Allied Health Literature, Embase British were systematically searched from 1985. Hand searching reference lists for all included articles relevant was...
Dignity therapy (DT) is well established in adult populations, and it likely that could benefit younger people. This study aimed to adapt the Portuguese DT question framework for adolescents (DT-QF-Adol) (ages 10-18).Five stages were followed: (1) DT-QF adults was adapted with original author's collaboration, (2) an expert committee provided feedback on version, (3) initial consensus version of DT-QF-Adol created, (4) consult affirmed final consensus, (5) validation stage a sample 17...
Gathering clinical evidence data on patients' palliative care needs is paramount to identify changes in outcomes over time and maintaining on-going quality improvement. Implementation of patient-centred outcome measures has been widely recommended. The routine use these instruments daily practice challenging not widespread.To implement a measure fulfil one indicator: improve pain during the 72 h after admission, at least 75% patients.An observational prospective study. Palliative Outcome...
patients with palliative needs often experience high symptom burden which causes suffering to themselves and their families. Depression psychological distress should not be considered a "normal event" in advanced disease screened, diagnosed, acted on followed-up. Psychological has been associated greater physical severity, suffering, mortality cancer patients. A holistic, but short measure used for non-physical assessment. The Integrated Palliative care Outcome Scale is one such measure....
Abstract Objective Palliative care (PC) aims to improve patients' and families' quality of life through an approach that relieves physical, psychosocial, spiritual suffering, although the latter continues be under-assessed under-treated. This study aimed describe prevalence hope assessments documented by a PC team in first consultation. Method The retrospective descriptive analysis all consultations registered our anonymized database (December 2018–January 2020), searching for written...
Background: The impact of assisted hydration on symptoms and survival at the end life is unclear. Little known about optimal strategies for communicating decision-making this ethically complex topic. Hydration near to be an important topic family members, but conversations occur infrequently despite guidance suggesting these should with all dying people. Aim: To explore views experiences doctors experienced in end-of-life care regarding patients families making decisions life. Design:...
Background The anticipatory prescribing of injectable medications is recommended practice in controlling distressing symptoms the last days life. A 2017 systematic review found and guidance was based on inadequate evidence. Since then, there has been considerable additional research, warranting a new review. Aim To evidence published since concerning for adults at end-of-life community, to inform guidance. Design Systematic narrative synthesis. Methods Nine literature databases were searched...
Introduction: The concept of total suffering is well known to palliative care, and it indicates that there are several complex correlated factors, which contribute a dynamic unique experience one's illness trajectory. Research on terminally ill patients' will live (WtL) has revealed important insights its fluctuations over time factors. We report an N-of-1 case study with the aim examining objectively, WtL trajectory time, fluctuations, as possible correlation other distressing symptoms in...
: Despite the development of patient-centred or patient-reported outcome measures (PCOMs PROMs) in palliative and end-of-life care over recent years, their routine use practice faces continuing challenges.
Modern medicine can be impersonal and routinized, paying insufficient attention to issues of personhood. The Patient Dignity Question (PDQ) This Is ME (TIME) Questionnaire are clinical tools developed with the aim probing for personhood, reinforcing dignity promoting health care attitudes based on looking at people who they not defining them solely their medical condition. study aimed translate validate TIME PDQ into European Portuguese, coined as Questionário Este Sou EU (ESEU) Pergunta da...
Na Europa é crescente a necessidade de cuidados fim vida e uma definição prioridades para prática clínica investigação nesta área da saúde. Este artigo tem como objetivo apresentar as atividades do PRISMA (2008-2011), projeto financiado pela Comissão Europeia liderado pelo King's College London, envolvendo um parceiro africano 12 parceiros europeus, entre os quais, dois em Portugal. Destinou-se informar melhorias na harmonizar desenvolvida doentes oncológicos Europa, comparando abordagens,...
Desire for death (DfD) is a complex and multifactorial dimension of end-of-life experience. We aimed to evaluate the prevalence DfD its associations, arising within setting tertiary home-based palliative care (PC) unit.Retrospective analysis all entries registered in our anonymized database from October 2018 April 2020.Of 163 patients anonymously database, 122 met entry criteria; 52% were male, average age was 69 years old; 85% had malignancies, with mean performance status (PPS) 56%. The...
Dignity therapy (DT) is a brief psychotherapeutic intervention with beneficial effects in the end-of-life experience. Since it provides continuing bond between bereaved and their loved ones, we speculated that could be offered as novel bereavement following patient's death. We aimed to develop, translate, validate Posthumous DT Schedule of Questions (p-DT-SQ), for administration relatives or friends.The original DT-SQ was adapted application friends. It translated back-translated European...
Diabetic foot ulcers (DFUs) have a significant impact on patient's quality of life and expectancy, with mortality rates comparable malignant diseases. However, there is lack data regarding palliative care needs in this population. We aimed to characterize people under diabetic surveillance using the Integrated Palliative Outcome Scale (IPOS) EuroQol-5D three-level version (EQ-5D-3L) assess differences between those without DFU.We conducted cross-sectional study consecutive sampling inclusion...