A5037706689- Palliative Care and End-of-Life Issues
- Grief, Bereavement, and Mental Health
- Patient Dignity and Privacy
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Childhood Cancer Survivors' Quality of Life
- Cancer survivorship and care
- Ethics in medical practice
- Patient-Provider Communication in Healthcare
- Respiratory Support and Mechanisms
- Geriatric Care and Nursing Homes
- Multilingual Education and Policy
- Religion, Spirituality, and Psychology
- Ethics and Legal Issues in Pediatric Healthcare
- Global Maternal and Child Health
- Respiratory and Cough-Related Research
- Adolescent Sexual and Reproductive Health
- Migration, Health and Trauma
- Gender Studies in Language
- Chronic Disease Management Strategies
- Linguistic Variation and Morphology
- HIV/AIDS Research and Interventions
- Health Systems, Economic Evaluations, Quality of Life
- Family and Patient Care in Intensive Care Units
- Asthma and respiratory diseases
- Sex work and related issues
Hospital de Faro EPE
2024
Film Independent
2021
University of Amsterdam
1992-2020
Universitat de Barcelona
2008-2020
Barcelona Centre for International Affairs
2008-2020
King's College London
2009-2020
Hochschule Bielefeld
2019
Ruhr University Bochum
2019
Martin Luther University Halle-Wittenberg
2019
Fachhochschule der Diakonie
2019
Background Breathlessness is a common and distressing symptom, which increases in many diseases as they progress diffi cult to manage.We assessed the eff ectiveness of early palliative care integrated with respiratory services for patients advanced disease refractory breathlessness.Methods In this single-blind randomised trial, we enrolled consecutive adults breathlessness from three large teaching hospitals via general practitioners South London.We randomly allocated (1:1) receive either...
Background: Little is known about symptom burden and palliative care needs of breathless patients with advanced cancer chronic obstructive pulmonary disease (COPD). Objectives: We aimed to describe compare symptoms in these two groups relation survival. Methods: Cross-sectional study COPD III/IV or cancer. Data were collected an interview using the Memorial Symptom Assessment Scale short form (MSAS-SF), modified Borg Scale, Hospital Anxiety Depression Palliative Care Outcome (POS). Follow-up...
<b>Objective</b> To identify major concerns of national and local importance in the provision, commissioning, research, use generalist end life care. <b>Design</b> A consultation prioritising exercise using a modified form nominal group technique. <b>Participants</b> Healthcare practitioners, commissioners, academics, representatives user voluntary groups. <b>Setting</b> Primary secondary care, specialist palliative academic sectors England Scotland. <b>Results</b> 74% those invited...
Breathlessness is one of the core symptoms, particularly persistent and frequent, towards end life. There no evidence how experience breathlessness differs across conditions. This paper compares in cancer, COPD, heart failure MND, four conditions sharing heavy symptom burdens, poor prognoses, high rates palliative care needs. For this qualitative study a purposive sample 48 patients was included with diagnosis cancer (10), COPD (18), (10) or MND experiencing daily problems breathlessness....
Aim Culture is becoming increasingly important in relation to end of life (EoL) care a context globalization, migration and European integration. We explore compare socio-cultural issues that shape EoL seven countries critically appraise the existing research evidence on cultural generated different countries. Methods scoped literature for Germany, Norway, Belgium, Netherlands, Spain, Italy Portugal, carrying out electronic searches 16 international country-specific databases handsearches 17...
Contradictory evidence exists about the emotional burden of participating in qualitative research for palliative care patients and carers this raises questions whether type is ethically justified a vulnerable population. This study aimed to investigate patients' carers' perceptions benefits problems associated with open interviews understand what causes distress helpful participation interview. A descriptive study. The data were collected context two studies exploring experiences carers....
ABSTRACT Objective: Little is known about the factors that mediate caregiving experience of informal carers at home, which could inform ways supporting them in their role. Our objective was to investigate caring for patients with an advanced progressive illness (chronic obstructive pulmonary disease [COPD], heart failure, cancer, or motor neuron diseases [MND]), who suffer from breathlessness. Methods: A purposive sample 15 selected. They were recruited via they cared (who suffered COPD,...
The development of the evidence-base informing end life (EoL) care is hampered by assumption that patients at EoL are too vulnerable to participate in research. This study aims systematically and critically review evidence regarding experiences views patients, caregivers, professionals researchers about participation research, identify best practices research participation. We searched seven electronic databases, hand three journals bibliographies relevant papers. Inclusion criteria were...
Background: Breathlessness is a common, distressing symptom in patients with advanced disease. With increasing focus on home death for patients, carers are expected to support breathless people at home. Little known about how experience breathlessness and the differences caring someone malignant or non-malignant Aim: To compare experiences of patient lung cancer versus those heart failure examine factors associated caregiver burden positive experiences. Design: Cross-sectional survey...
Background: Health-care costs are growing, with little population-based data about people’s priorities for end-of-life care, to guide service development and aid discussions. Aim: We examined variations in treatment, care information across seven European countries. Design: Telephone survey of a random sample households; we asked respondents their if ‘faced serious illness, like cancer, limited time live’ used multivariable logistic regressions identify associated factors....