A5035505519- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Childhood Cancer Survivors' Quality of Life
- HIV/AIDS Research and Interventions
- Chronic Disease Management Strategies
- Geriatric Care and Nursing Homes
- Patient Dignity and Privacy
- BRCA gene mutations in cancer
- Patient-Provider Communication in Healthcare
- Cancer Genomics and Diagnostics
- Ethics in Clinical Research
- Psychosomatic Disorders and Their Treatments
- Family and Patient Care in Intensive Care Units
- Patient Satisfaction in Healthcare
- Health Systems, Economic Evaluations, Quality of Life
- Family Support in Illness
- Palliative and Oncologic Care
- Grief, Bereavement, and Mental Health
- Health, psychology, and well-being
- Family Caregiving in Mental Illness
- HIV-related health complications and treatments
- Parkinson's Disease Mechanisms and Treatments
Institute of Social and Preventive Medicine
2024
University of Bern
2024
Sciensano (Belgium)
2018-2022
Institut Scientifique de Santé Publique
2018
Cicely Saunders International
2014-2015
King's College London
2013-2015
Most people prefer to receive end-of-life care in familiar surroundings rather than hospital. This study examines variation place of death for dying from Parkinson's disease (PD) across 11 European and non-European countries. Using certificate data 2008 Belgium, France, Italy, Hungary, Czech Republic, New Zealand, USA, Canada, Mexico, South Korea Spain all deaths with PD as an underlying cause (ICD-10 code: G20) cross-national differences were examined. Associations between patient...
Care homes are increasingly becoming places where people spend the final stages of their lives and eventually die. This trend is expected to continue due population ageing, yet little known about public preferences regarding this setting. As part a larger study examining priorities for end life care, we investigated extent which care chosen as least preferred place death, factors associated with negative preference. We conducted cross-sectional telephone survey among 9,344 adults from random...
Background: Despite ageing populations and increasing cancer deaths, many European countries lack national policies regarding palliative end-of-life care. The aim of our research was to determine public views care in the face serious illness. Methods: Implementation a pan-European population-based survey with adults England, Belgium (Flanders), Germany, Italy, Netherlands, Portugal Spain. Three stages analysis were completed on open-ended question data: (i) inductive category-code framework;...
Background Symptom research across conditions has historically focused on single symptoms, and the burden of multiple symptoms their interactions been relatively neglected especially in people living with HIV. cluster studies are required to set priorities treatment planning, lessen total symptom burden. This study aimed identify compare clusters among HIV attending five palliative care facilities two sub-Saharan African countries. Methods Data from cross-sectional self-report seven-day...
Symptom clusters are gaining importance given HIV/AIDS patients experience multiple, concurrent symptoms. This study aimed to: determine of with similar symptom combinations; describe combinations distinguishing the clusters; and evaluate regarding patient socio-demographic, disease treatment characteristics, quality life (QOL) functional performance. was a cross-sectional 302 adult outpatients consecutively recruited at two teaching referral hospitals in Uganda. Socio-demographic seven-day...
Although continuity of care in paediatric palliative (PPC) is considered to be an essential element quality care, it's implementation challenging. In Belgium, five liaison teams (PLTs) deliver care. A Royal Decree issued 2010 provides the legal framework that defines PLTs' missions, as ensuring curative and between hospital home for children diagnosed with life-limiting conditions. This national study describes how PLTs ensure by describing their activities characteristics they cared from...
Abstract Background Palliative care clinicians are regularly exposed to emotionally laden end-of-life situations. Until now, the use of their emotions during palliative consultations has remained understudied. We aimed develop a theory understand how emotions. Methods Qualitative data were collected via individual interviews held with different types across world (countries selected based on Quality Death Index ranking). used social constructivist grounded approach analyze using constant...
Patients with pancreatic cancer do not feel involved in the development of their treatment and care plans. In Belgium, these plans are decided on during multidisciplinary team meetings. However, limited time is spent discussion preferences patient This research project aims to develop a patient-reported experience measure (PREM) for assess if its use can support collaborative decision-making.This paper outline protocol multi-method improve person-centered Belgium. Three subobjectives...
<sec> <title>BACKGROUND</title> Patients with pancreatic cancer do not feel involved in the development of their treatment and care plans. In Belgium, these plans are decided on during multidisciplinary team meetings. However, limited time is spent discussion preferences patient This research project aims to develop a patient-reported experience measure (PREM) for assess if its use can support collaborative decision-making. </sec> <title>OBJECTIVE</title> paper outline protocol multi-method...