A5018061493- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Health Systems, Economic Evaluations, Quality of Life
- Patient Dignity and Privacy
- Grief, Bereavement, and Mental Health
- Patient-Provider Communication in Healthcare
- Chronic Disease Management Strategies
- Childhood Cancer Survivors' Quality of Life
- Pesticide and Herbicide Environmental Studies
- Cancer survivorship and care
Cicely Saunders International
2013-2023
King's College London
2013-2023
European Association for Palliative Care
2013
Background: Understanding the need for palliative care is essential in planning services. Aim: To refine existing methods of estimating population-based and to compare these better inform their use. Design: (1) Refinement methods, based on views an expert panel, (2) application/comparison refined approaches example dataset. Existing vary approach data sources. (a) Higginson used cause death/symptom prevalence, using pain estimates that 60.28% (95% confidence interval = 60.20%–60.36%) all...
Background: Few measures capture the complex symptoms and concerns of those receiving palliative care. Aim: To validate Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, evaluating its validity, reliability responsiveness to change. Design: Concurrent, cross-cultural validation study Scale – both (1) patient self-report (2) staff proxy-report versions. We tested construct validity (factor analysis, known-group comparisons, correlational...
Background: The Integrated Palliative care Outcome Scale is a newly developed advancement of the Scale. It assesses patient-reported symptoms and other concerns. Cognitive interviewing recommended for questionnaire refinement but not adopted widely in palliative research. Aim: To explore German- English-speaking patients’ views on with focus comprehensibility acceptability, subsequently refine questionnaire. Methods: Bi-national (United Kingdom/Germany) cognitive interview study using ‘think...
Background: Despite ageing populations and increasing cancer deaths, many European countries lack national policies regarding palliative end-of-life care. The aim of our research was to determine public views care in the face serious illness. Methods: Implementation a pan-European population-based survey with adults England, Belgium (Flanders), Germany, Italy, Netherlands, Portugal Spain. Three stages analysis were completed on open-ended question data: (i) inductive category-code framework;...
Palliative care, as with other health care services, is faced the difficulty of competing for limited resources. Health decision makers seek to maximize 'value money' when selecting services fund. The challenges palliative community are (a) demonstrate cost effectiveness its interventions in comparison and (b) provide evidence that resources currently allocated being used efficiently. economic evaluation can be conducted support this. In this paper different approaches evaluating introduced....
Background The hospice movement has provided an excellent model of specialist palliative care for those with advanced illness approaching the end life. However, there are marked inequities in provision this care, and major geographical variations resourcing often resulting a poor match between needs patient/family resources to meet needs. Objective To develop/test casemix classification accurately capture complex patients disease, better quantify more fairly allocate them. A ‘casemix...