A5065678279- Dialysis and Renal Disease Management
- Palliative Care and End-of-Life Issues
- Health Systems, Economic Evaluations, Quality of Life
- Geriatric Care and Nursing Homes
- Patient-Provider Communication in Healthcare
- Ethics in medical practice
- Chronic Disease Management Strategies
- Primary Care and Health Outcomes
- Empathy and Medical Education
- Organ Donation and Transplantation
- Patient Dignity and Privacy
- Family and Patient Care in Intensive Care Units
- Patient Satisfaction in Healthcare
- Nursing Education, Practice, and Leadership
- Health Policy Implementation Science
- Cancer survivorship and care
- Optimism, Hope, and Well-being
- Health disparities and outcomes
- Healthcare Systems and Technology
- Childhood Cancer Survivors' Quality of Life
- Diabetes Management and Education
- Medication Adherence and Compliance
- Global Health Care Issues
- Renal Transplantation Outcomes and Treatments
- Adolescent and Pediatric Healthcare
University of Alberta
2016-2025
Athabasca University
2021
Royal Alexandra Hospital
2021
Alberta Cancer Foundation
2021
Trinity Western University
2019
National Confidential Enquiry into Patient Outcome and Death
2019
Fraser Health
2019
University of Victoria
2010-2012
Island Health
2004
Narrative research methodology is evolving, and we contend that the notion of emergent design vital if narrative inquiry (NI) to continue flourishing in generating new knowledge. We situate discussion within turn qualitative while drawing on experiences conducting a longitudinal study. The philosophical tensions encountered are described, as our understanding application approaches evolved. outline challenges data collection analysis response what were learning identify institutional...
Research on moral distress has paid limited attention to nurses’ responses and actions. In a survey of perceptions ethical climate, 292 nurses answered three open-ended questions about situations that they considered morally distressing. Participants identified range as distressing, including witnessing unnecessary suffering, being forced provide care compromised values, negative judgments patients. They linked these contextual constraints such workload described responses, feeling...
There is a growing movement for research data to be accessed, used, and shared by multiple stakeholders various purposes. The changing technological landscape makes it possible digitally store data, creating opportunity both share reuse anywhere in the world later use. This rapidly becoming widely accepted as publicly funded agencies are mandating that researchers open their sharing reuse. While there numerous advantages use of such facilitating accountability transparency, not all created...
Mobile devices are increasingly being used for data collection in research. However, many researchers do not have experience collecting electronically. Hence, the purpose of this short report was to identify issues that emerged a study incorporated electronic capture patient-reported outcomes clinical settings, and strategies address issues. The pertaining outcome were captured qualitatively during on use two home dialysis units. Fifty-six patients completed three surveys tablet computers,...
Background: Attention to ethical leadership in nursing has diminished over the past several decades. Objectives: The aim of our study was investigate how frontline nurses and formal nurse leaders envision leadership. Research design: Meta-ethnography used guide analysis synthesis four studies that explored notion Participants research context: These original were conducted from 1999-2008 Canada with 601 participants. Ethical considerations: approval covered future analysis. Findings: Using...
There is a growing emphasis in public health on the importance of evidence-based interventions to improve population and reduce inequities. Equally important need for knowledge about how implement these successfully. Yet, gap remains between development their successful implementation. Conventional systematic reviews have been conducted effective implementation care, but few health, so relevance unclear. In most reviews, stringent inclusion criteria excluded entire bodies evidence that may...
Background: there is limited research examining the relative importance of aspects quality life (QOL) to older adults across cultures. Objective: examine 31 internationally agreed areas QOL in 22 countries relation health status, age and level economic development. Design: a survey quota sampling design was used collect cross-cultural data. This study reports secondary analysis WHOQOL-OLD pilot study, which collected simultaneously centres. Settings: variety community, primary, tertiary care...
Purpose: The purpose of the study is to examine liminal experiences living with uncertainty life-threatening illness. Increasing numbers people illness live in-between promise treatment and threat recurrence or progression disease, yet this experience not well understood. Design: A narrative inquiry methodology within a constructionist frame was used. Method: Semistructured in-depth interviews were conducted 32 participants from three populations interest: (a) 10 cancer, (b) 13 chronic renal...
Although ethical leadership by formal nurse leaders is critical to enhancing health-care practice, research has shown that many nurses feel unsupported their leaders. In this article, we consider the limited attention directed toward of and how our own on compares other in field. searching Nursing Ethics since its inception 20 years ago, found only a dozen articles directly addressed topic. We then reviewed nurses' professional codes ethics Canada significant retractions guidelines for...
Abstract Background Patient-reported outcome measures (PROMs) are standardized instruments used for assessing patients’ perspectives on their health status at a point in time, including health-related quality of life, symptoms, functionality, and physical, mental, social wellbeing. For people with kidney failure receiving hemodialysis, addressing high symptom burden complexity relies care team members integrating expertise to achieve common management goals. In the context program-wide...
Abstract The overall aim of this qualitative study was to inform recommendations towards Indigenous strength-based approaches for kidney health, prevention disease and failure. Between 2020 2022, during the COVID-19 pandemic, we conducted online interviews teleconferences with 16 participants from North Simcoe in Ontario, Canada. Participants shared their experiences revolving around care within contexts. An advisory committee consisting members a First Nation community personal familial...
Importance Hearing loss is common and may impact health quality of life if not properly managed. It diagnosed following formal audiological assessment, which be available or practical. test software applications (apps) help identify people who might benefit from but their diagnostic accuracy has been incompletely studied. Objective To measure compare the validity reliability 2 commonly recommended apps (hearWHO SHOEBOX) to detect moderately severe greater hearing loss. Secondary objectives...
This article applies a micro-meso-macro analytical framework to understand clinicians’ experiences and perspectives of using patient-reported outcome experience measures (PROMs PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis design implementation project for an electronic tablet-based tool among clinicians assess patients’ their family caregivers’ quality life concerns Our identified three categories practice tensions shaping use...
Kidney failure requiring dialysis is associated with poor health outcomes and health-related quality of life (HRQL). Patient-reported outcome measures (PROMs) capture symptom burden, level functioning other from a patient perspective, can support clinicians to monitor disease progression, address symptoms, facilitate patient-centered care. While evidence suggests the use PROMs in clinical practice lead improved experience some settings, impact on patients' experiences not fully understood,...
To examine stories of spirituality in people living with serious illness.Although knowledge about the experience various chronic illnesses is growing, there little known peoples' beliefs and perspectives relating to where a diagnosis life-limiting illness.A social constructionist approach narrative inquiry was used.In-depth interviews were conducted on one occasion 32 participants. This included 10 cancer, 14 end stage renal disease (ESRD) eight HIV/AIDS. They ranged age from 37-83 18 men...