A5045122396- Language, Discourse, Communication Strategies
- Patient-Provider Communication in Healthcare
- Mental Health and Patient Involvement
- Ethics in Clinical Research
- Health Policy Implementation Science
- Healthcare Decision-Making and Restraints
- Language, Metaphor, and Cognition
- Cancer survivorship and care
- Delphi Technique in Research
- Discourse Analysis in Language Studies
- Schizophrenia research and treatment
- Mental Health and Psychiatry
- Palliative Care and End-of-Life Issues
- Interpreting and Communication in Healthcare
- Language and cultural evolution
- Language Development and Disorders
- Mobile Health and mHealth Applications
- Telemedicine and Telehealth Implementation
- Aging, Elder Care, and Social Issues
- Participatory Visual Research Methods
- Gender Studies in Language
- Mental Health Research Topics
- Counseling, Therapy, and Family Dynamics
- Child and Adolescent Psychosocial and Emotional Development
- Education, Healthcare and Sociology Research
Rutgers, The State University of New Jersey
2015-2024
University of Chicago
2024
Rutgers Sexual and Reproductive Health and Rights
2015-2022
RAND Corporation
2013-2017
Rütgers (Germany)
2015
University of California, Los Angeles
2009-2013
West Los Angeles College
2011
Belmont Report principles focus on the well-being of research subject, yet community-engaged investigators often eschew role subject for that participant. We conducted semistructured interviews with 29 community and academic working 10 studies. Interviews elicited perspectives ethical priorities challenges. Interviewees drew to describe 4 key (embodying action, respecting participants, generalizing beneficence, negotiating justice). However, novel aspects participant were source most...
Endometriosis is a chronic and often painful inflammatory disease affecting one in ten biological females. It has been characterized as enigmatic the average diagnostic delay nearly seven years, time which patients experience tumultuous uncertain. This paper presents responses to final open comment question of large-scale survey documenting patients’ experiences with (mis)diagnosis highlights how perceived healthcare providers (HCPs) barriers facilitators care. Drawing on framework trust, we...
Frontotemporal dementia (FTD) is a difficult to diagnose because, in the early stages, it leaves patients with intact cognitive functioning and range of social deficits. For example, FTD causes changes tactfulness manners, violations interpersonal space, emotional appropriateness (Jagust, Reed, Seab, Kramer, & Budinger, 1989 Jagust, W. J., B. R., J. P., H. T. F. 1989. Clinical-physiologic correlates Alzheimer's disease frontal lobe dementia.. American Journal Physiology Imaging, 4: 89–96....
Abstract Background Endometriosis is an estrogen-dependent disease affecting 10% of females in which endometrial-like tissue grows outside the uterus, resulting pain, infertility, and physical psychosocial dysfunction. Prior research documenting diagnostic error reports a 6.7-year mean delay. This study takes patient-oriented approach aims to complement prior on by examining patient-reported experiences with misdiagnosis. Methods Data were part larger online survey comprising nonrandomly...
We examine I know as a responding action, showing that it claims to accept the grounds of initiating action but either resists unnecessary or endorses it, depending on epistemic environment created by action. First, in actions presume an unknowing addressee (e.g., correcting, advising), speakers deploy resist while accepting its grounds. Second, knowing some assessments), use endorse claiming independently reached agreement (in this way, doing "being same page"). Data are American and...
Abstract Introduction Existing approaches in cancer survivorship care delivery have proven to be insufficient engage primary care. This study aimed identify stakeholder‐informed priorities improve engagement breast Methods Experts U.S. were invited participate a 4‐round online Delphi panel and evaluate for defining fostering care's survivorship. Panelists asked then assess (ratings of 1–9) the importance feasibility priority items support review group results reevaluate each item, aiming...
Frontotemporal dementia (FTD) is a young-onset neurodegenerative that primarily affects social behaviors. This paper examines the use of repetitional responses in FTD discourse, finding patients often repeats to assert agency or epistemic authority (i.e. claim rights knowledge). For example, are used by exert some autonomy when their interlocutors display belief about patients’ lack knowledge basic functioning. has been associated with echolalia, meaningless repetition; however, this...
Implementations of patient centeredness can vary tremendously across settings, yet we know little about how clinicians experience local interpretations centeredness. In this article, investigate nurses’ experiences in a hospital designed to be centered its emphasis on amenities and customer service. This environment altered articulation work by shifting the visibility number nursing tasks; service tasks became more visible whereas many medical caring were obscured. We found that these...
Background. The ecological validity of neurocognitive and functional measures in severe mental illness is poorly understood because a lack validated research methods to study community life-as-lived. We describe the development video ethnography method that naturalistic behaviors with codes called performance indicators (CPIs). could provide strategy test assessments. Methods. gathered up 18.5 hours data on each 9 subjects schizophrenia selected for high or low composite scores MATRICS...
Shared decision making (SDM) interventions aim to improve client autonomy, information sharing, and collaborative making, yet implementation of these has been variably perceived. Using interviews focus groups with clients clinicians from mental health clinics, we explored experiences perceptions about support strategies aimed promote SDM around psychotropic medication treatment. thematic analysis, identified themes regarding beliefs participant involvement, management, participants' broader...
When repairing a problem in their talk, speakers sometimes do more than simply correct an error, extending the self-correction segment to comment on, repeat, apologize, and/or reject error. We call this "over-exposed self-correction." In over-exposing may manage (and reflexively construct) range of attributional troubles that it has raised. discuss how over-exposed can be used to: (a) remediate errors might suggest speaker's incompetence; and (b) redress heard as revealing relational "evils"...
Many challenges exist related to ensuring adolescent privacy with health care providers (HCPs), and the rapid integration of telehealth visits has created additional complexities in organizing for adolescents. Through interviews patients their parents ( n = 34), this qualitative analysis aimed explore complicated relationship balance alone time HCPs, parental presence support, organization order consider how during may contribute adolescents’ healthy development. A framework by Blum et al....
Background: Community-engaged research (CEnR) emphasizes equal participation of academic and community partners in seeks to improve public trust science. Unfortunately, there is a dearth rigorous empirical on as core component ethical conduct CEnR. Drawing data collected from project the ethics CEnR, this paper discusses benefits risks uses concept embeddedness explain how science may be increased. Argument: We argue that developing maintaining trust, must balance scientific rigor with...
How do caregivers repair the faulty contributions to interaction of people with frontotemporal dementia? When person stumbles in a course action that needs be completed promptly (for example, putting away wallet, or reading out some text) then their use high-entitlement/low-contingency (HE/LC) formats (e.g., imperatives). Less-urgent activities elicit slightly mitigated formats, whereas actions seem merely compulsive symptoms person's illness are repaired multiple directives. Analysis shows...