A5079981683- Childhood Cancer Survivors' Quality of Life
- Hemoglobinopathies and Related Disorders
- Cancer Treatment and Pharmacology
- Pain Management and Opioid Use
- Erythropoietin and Anemia Treatment
- Iron Metabolism and Disorders
- Cancer survivorship and care
- Acute Lymphoblastic Leukemia research
- Pain Mechanisms and Treatments
- Renal Transplantation Outcomes and Treatments
- Genetics and Neurodevelopmental Disorders
- Parvovirus B19 Infection Studies
- Case Reports on Hematomas
- Nutrition and Health in Aging
- Hematopoietic Stem Cell Transplantation
- Frailty in Older Adults
- Mesenchymal stem cell research
- Family Support in Illness
- Hemophilia Treatment and Research
- Platelet Disorders and Treatments
- Health and Wellbeing Research
- COVID-19 Impact on Reproduction
- Immune Cell Function and Interaction
- Pancreatitis Pathology and Treatment
- Autoimmune and Inflammatory Disorders Research
University of Nebraska Medical Center
2013-2025
Susan Thompson Buffett Foundation
2023
Fred and Pamela Buffett Cancer Center
2023
Children's Hospital & Medical Center
2021-2022
University of South Dakota
2017
Medical College of Wisconsin
2014-2016
Sanford Children's Specialty Clinic
2016
This selection from the NCCN Guidelines for Adolescent and Young Adult (AYA) Oncology focuses on considerations comprehensive care of AYA patients with cancer. Compared older adults cancer, have unique needs regarding treatment, fertility counseling, psychosocial behavioral issues, supportive services. The complete version addresses additional aspects caring patients, including risk factors, screening, diagnosis, survivorship.
Pediatric cancer mortality rates have steadily declined since 2009, but over a thousand deaths still occur annually. While existing research highlights the effects of race/ethnicity and rurality on overall survival, few studies specifically analyzed these factors in relation to early mortality, defined as death within 12 months diagnosis. This study utilized SEER Research Plus Limited-Field Data (2000-2021) examine association between race/ethnicity, rurality, pediatric patients. A cohort...
People with late-stage and metastatic colorectal cancer (CRC) are living longer, rates increasing over time, necessitating a greater understanding of their survivorship experiences. The purpose this study was to explore the quality life (QoL) cancer-related experiences stages III IV CRC survivors inform oncology nursing practice care. This sequential, explanatory mixed-method used cross-sectional Functional Assessment Cancer Therapy-Colorectal survey semistructured interviews QoL survivors....
Abstract AIHA is a rare and serious complication of solid organ transplantation. Herein, we report four cases warm or mixed in pediatric patients following combined liver, small bowel pancreas transplant. The hemolysis was refractory to multiple treatment modalities including steroids, rituximab, IVIG, plasmapheresis, cytoxan, discontinuation prophylactic penicillin, change immunosuppression from tacrolimus cyclosporine. All had resolution marked improvement after maintenance CNI initiation...
Abstract Background Hemophagocytic lymphohistiocytosis (HLH) is a life-threatening condition of immune dysregulation primarily driven by the cytokine interferon gamma. It can be either genetic or acquired disorder associated with infection, malignancy, and rheumatologic disorders. Trisomy 21 express wide range phenotypes which include shares inherent pathophysiology group disorders termed interferonopathies. Knowledge this overlap in seemingly unrelated conditions could provide basis for...
Neuropsychological deficits, including difficulties with attention, are well described in children sickle cell disease (SCD). Very little is known about attention deficit hyperactivity disorder (ADHD) SCD. The objective of this study was to determine the proportion ADHD SCD referred for neuropsychological evaluation. This prospective, cross-sectional included patients (age, 4 18 y) and completion a evaluation between December 2013 March 2016. Patients were because concern regarding school...
Abstract Background Neuropathic pain, a known complication of cancer and its treatments, negatively impacts quality life. There are limited data using screening tools to aid in the diagnosis neuropathic pain patients. Our primary objective was determine proportion adolescent young adult patients reporting on patient‐completed, tool. Procedures This prospective, cohort study enrolled 14–39 years age who were receiving therapy for diagnosis, relapse, or had recently completed treatment. The...
Congenital factor VII (FVII) deficiency is a rare, autosomal recessive bleeding disorder with spectrum of phenotypes ranging from asymptomatic to life-threatening intra-cranial hemorrhage (ICH). Orthotopic liver transplantation has been described for definitive treatment in few patients severe manifestations. We report patient congenital FVII and recurrent ICH, despite twice-weekly prophylaxis recombinant activated FVII. At 17 months age, he underwent an orthotopic transplant. He now 1-year...
BACKGROUND:Two Pediatric Patients with Splanchnic Venous Thrombosis as a Complication of Acute Pancreatitis Successfully Treated Low-Molecular-Weight Heparin and Rivaroxaban CASE REPORT:Case 1: A 13-year-old girl presented second attack acute pancreatitis. She developed non-occlusive splenic vein thrombosis diagnosed by CT scan on the sixth day hospitalization. Injectable low-molecular-weight heparin was started during hospitalization switched to oral rivaroxaban at discharge. Imaging...
(1) Background. Cognitive dysfunction is prevalent among cancer survivors. Inflammation may contribute to impaired cognition, and diet represents a novel strategy mitigate cognitive decline. The purpose was assess the impact of an educational cooking class on survivor eating habits their inflammatory potential (2) determine relationship between function. Methods. This non-randomized interventional study virtual in post-treatment, adult Energy-adjusted Dietary Inflammatory Index (E-DII™)...
10577 Background: Neuropathic pain, a known complication of cancer and its treatments, significantly decreases quality life. pain can be difficult to diagnose. There are limited data on validated, patient-reported screening tools aid in the diagnosis neuropathic oncology patients. Our primary objective was determine prevalence adolescent young adult patients using tool. Methods: This prospective, cohort study enrolled 14-39 years age, from 2/22/13 12/1/15, who were receiving therapy for or...