A5065841054- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Patient Dignity and Privacy
- Palliative and Oncologic Care
- Family and Patient Care in Intensive Care Units
- Childhood Cancer Survivors' Quality of Life
- Parkinson's Disease Mechanisms and Treatments
- Empathy and Medical Education
- Healthcare Decision-Making and Restraints
- Patient-Provider Communication in Healthcare
- Cultural Competency in Health Care
- Nursing care and research
- Global Health Workforce Issues
- Mosquito-borne diseases and control
- Health, Nursing, Elderly Care
- Optimism, Hope, and Well-being
- Chronic Disease Management Strategies
- Family Support in Illness
- Intensive Care Unit Cognitive Disorders
- Aging, Health, and Disability
- Cancer-related cognitive impairment studies
- Traumatic Brain Injury Research
- Ethics in medical practice
- Stress and Burnout Research
- Higher Education Teaching and Evaluation
Universidad de Navarra
2015-2024
Navarre Institute of Health Research
2015-2024
Linnaeus University
2022
Central University of Venezuela
2021
Hospital Clínico Universitario de Caracas
2021
Clinica Universidad de Navarra
2009-2017
Complejo Hospitalario de Navarra
2017
Literature suggests that it is possible to live well with advanced cancer but little known about the process. In this article, we present a secondary analysis of experiences living ( n = 22) refines theory “Living Well Chronic Illness” for different context and population. The refined explains experience illuminating five-phase iterative process: struggling, accepting, cancer, sharing illness experience, reconstructing life. These five phases revolve around core concept Awareness Dying,...
Understanding how a person lives with chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered at clinical community levels paramount. The present study was aimed analyze the psychometric properties of Living Chronic Illness-PD Scale (EC-PC) wide Spanish-speaking population PD. International cross-sectional retest carried out 324 patients from four Latin American countries Spain. Feasibility, acceptability,...
On screening tools for emotional distress, the terms "depression" and "anxiety" are commonly used patients with advanced cancer. However, these could have negative connotations in Spanish such that cultural unexpected differences perception may invalidate or skew results of if best not chosen. The goal this study was to determine expression can be explore anxiety depression Spanish. A prospective 100 Spanish-speaking performed. cancer completed Hospital Anxiety Depression Scale (HADS) six...
Introduction: Fatigue is one of the most frequent symptoms in patients with cancer. No adequate term Spanish has been defined to describe English concept fatigue. Aim: To identify suitable words that define fatigue and check psychometric characteristics. Method: Consensus professional experts on best suit A prospective study oncologic was also undertaken, which included an evaluation intensity through visual numeric scales (VNS) where had previously selected. The subscale Functional...
The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling loss dignity and was designed for patients at end life. aim present work generate a better understanding experiences healthcare staff when using PDI.An exploratory qualitative study is presented about experience 4 professionals who applied PDI 124 advanced-cancer patients. Our consisted an analysis their experiences, taken from information generated in focus group. A thematic performed on that meeting by...
Abstract Introduction The message of palliative care can be promoted using creative thinking and gamification. It an innovative strategy to promote changes in behaviour, thinking, work on skills such as empathy. Aim Design, test evaluate a gamified social intervention enhance awareness among young university students from non-health background. Methods Participatory action research study with mixed methods, Design Thinking the Public Engagement strategy. Forty-three undergraduate...
To be able to provide patients with a chronic illness personalised care, it is necessary know how they live their disorder. Today, there no validated scale that assesses this aspect.To present the pilot study of preliminary version living process (EC-PC, from name in Spanish) carried out Parkinson's disease (PD) Spain.A was produced literature review and participation experts processes PD. Fifteen patients, all different stages PD, answered EC-PC (39 items) questionnaire about EC-PC. The...
Cultural sensibility is an important concept linked to the achievement of cultural competence. Health professionals must first improve their become culturally competent and be able offer care diverse populations. Aim To develop psychometrically test Sensibility Scale for Nursing (CUSNUR), a scale that can used in nursing competencies needed The cross-sectional survey was conducted over two stages. stage involved cross-cultural discipline-specific adaptation existing addressing this field law...
Una cuarta parte de las personas con insuficiencia cardíaca se encuentran en una etapa avanzada la enfermedad durante cual experimentan numerosos síntomas, comunes y angustiantes, que impactan todas esferas persona.En este contexto, valoración el seguimiento clínico los pacientes debe realizar manera frecuente.A través esta revisión, pretende identificar cuáles son instrumentos utilizan enfermos avanzada.Para trabajo ha considerado instrumento a cualquier tipo cuestionario, escala, test o...
Society's understanding of palliative care has room for improvement. Although the World Health Organisation highlighted as a human right, many people still lack access to this crucial form treatment. The paucity and social discussion surrounding has, moreover, negatively impacted its development implementation. This study therefore aims construct strategy that will empower specific community solve their own care-related misunderstandings. Using Participatory Action Research Design Thinking...