A5016150947- Geriatric Care and Nursing Homes
- Palliative Care and End-of-Life Issues
- Dementia and Cognitive Impairment Research
- Mental Health and Patient Involvement
- Healthcare Decision-Making and Restraints
- Interprofessional Education and Collaboration
- Health Systems, Economic Evaluations, Quality of Life
- Chronic Disease Management Strategies
- Grief, Bereavement, and Mental Health
- Psychiatric care and mental health services
- Patient Dignity and Privacy
- Clinical practice guidelines implementation
- Research in Social Sciences
- Aging, Elder Care, and Social Issues
- Migration, Health and Trauma
- Delphi Technique in Research
- Mental Health and Psychiatry
- Team Dynamics and Performance
- Health disparities and outcomes
- Intergenerational Family Dynamics and Caregiving
- Evaluation and Performance Assessment
- Electronic Health Records Systems
- Persona Design and Applications
- Family and Patient Care in Intensive Care Units
- Healthcare innovation and challenges
Newcastle University
2016-2025
University of Manchester
2022-2024
Manchester University
2024
University of Newcastle Australia
2015-2024
Newcastle Hospitals - Campus for Ageing and Vitality
2014-2018
North Tyneside General Hospital
2015
American Geophysical Union
2013
University of Minnesota
2002
Background People with dementia and their families need support in different forms, but currently services are often fragmented variable quality of care. Case management offers a way co-ordinating along the care pathway therefore could provide individualised support; however, evidence effectiveness case for is inconclusive. Objective To adapt intervention used promising project USA test its feasibility acceptability English general practice. Design In work package 1, design group varied...
Ensuring the development and delivery of person-centred care in services providing respite short breaks for people with dementia their carers has a number challenges health social service providers. This article explores role organisational culture barriers facilitators to care. As part mixed-methods study carers, 49 telephone semi-structured interviews, two focus groups (N = 16) five face-to-face in-depth interviews involving front-line staff operational strategic managers were completed...
Background: In recent years, UK policy has increasingly recognised the importance of end-of-life care in dementia. While professional consensus on optimal palliative dementia been reported, little is known about perspectives people with and family carers. Aim: To compare views carers (current recently bereaved) care. Design: Qualitative interviews (32) a focus group were conducted. Data thematically analysed. Setting/participants: Participants comprised early stage dementia, living at home...
People with advanced dementia often experience suboptimal end of life care (EoLC) inadequate pain control, increased hospitalisation, and fewer palliative interventions compared to those cancer. Existing policy, guidance recommendations are based largely on expert opinion because a shortage high quality, empirical research. Previous studies have tended consider the views particular groups. Whilst providing important evidence, they do not take into account diversity perspectives different...
A significant proportion of patients in an acute hospital is made up older people, many whom have cognitive impairment or dementia. Rightly wrongly, if a degree confusion apparent, it often questioned whether the person able to return previous place residence. We wished understand how, on medical wards, judgements about capacity and best interests with respect going home are for people dementia how decision-making around discharge their families might be improved. Our research reflects...
Background Among people living with dementia (PLWD) there is a high prevalence of comorbid medical conditions but little known about the effects comorbidity on processes and quality care patient needs or how services are adapting to address particular this population. Objectives To explore impact access non-dementia identify ways improving integration for Design We undertook scoping review, cross-sectional analysis population cohort database, interviews PLWD their family carers focus groups...
Objectives People living with dementia (PLWD) have a high prevalence of comorbidty. The aim this study was to explore the impact on access non-dementia services and identify ways improving service delivery for population. Design Qualitative involving interviews focus groups. Thematic content analysis informed by theories continuity care care. Setting Primary secondary in South North East England. Participants PLWD who had 1 following comorbidities—diabetes, stroke, vision impairment, their...
We reflect, using a vignette, on conceptual tensions and the value judgements that lie behind difficult decisions about whether or not older person with dementia should return home move into long-term care following hospital admission. The paper seeks, first, to expose some of difficulties arising from assessment residence capacity, particularly around nature evaluative inherent in legal approach capacity. Secondly, we consider best interests place residence, which demonstrates significant...
Case management has been suggested as a way of improving the quality and cost-effectiveness support for people with dementia. In this study we adapted implemented successful United States' model case in primary care England. The results are reported elsewhere, but key finding was that little took place. This paper reports findings process evaluation which used Normalization Process Theory to understand barriers implementation.Ethnographic methods were explore views experiences management....
Background Evidence consistently shows that people with advanced dementia experience suboptimal end of life care compared to those cancer; increased hospitalisation, inadequate pain control and fewer palliative interventions. Understanding the views service managers frontline staff who organise provide is crucial in order develop better for dementia. Methods findings Qualitative interviews focus groups were conducted from 2013 2015 33 54 involved care, including doctors, nurses, nursing home...
Introduction Evidence suggests that social prescribing might have a positive impact on identity, control, creativity and quality of life in people with dementia. While evidence the benefits is accumulating, there sparsity research experiences prescribers. This study aims to identify challenges prescribers face when supporting dementia their families strategies address these. Materials methods A qualitative involving 24 from all regions England. Semi-structured interviews investigated...
Background There are 900,000 people with dementia in England and Wales. Existing models of post-diagnostic support unsustainable unaffordable. The PriDem programme developed a new model primary care-based care, whereby Clinical Dementia Lead (CDL) would facilitate systems-level change. Aim To assess barriers facilitators to implementation the intervention. Methods 7 general practices participated qualitative process evaluation, as part mixed-methods feasibility study. Practices were located...
Background Approaching end of life is often a time vulnerability; this particularly so for people with dementia and their families where loss capacity the ability to communicate, make assessment shared decision‐making difficult. Research has consistently shown that improvements in care services are required support better quality more person‐centred towards at life. However, views about what factors contribute high‐quality neglected area. Aim The aim study was identify aspects end‐of‐life...
Objectives To explore the impact of COVID-19 on postdiagnostic dementia care and support provision in England Wales. Design Qualitative research using semistructured interviews, via video or telephone conferencing. Setting Services providing across health, social third sector. Participants 21 professionals previously recruited to an ongoing programme (or colleagues, if unavailable). Results Key themes identified from data were: challenges caused by COVID-19; responses those challenges,...
The study aims to describe people with dementia and informal caregivers' respective experiences of support after diagnosis compares these experiences. Additionally, we determine how caregivers who are satisfied differ from those dissatisfied.A cross-sectional survey in Australia, Canada, the Netherlands, Poland, United Kingdom was carried out examine experience (satisfaction information, access care, health literacy, confidence ability live well dementia). separate surveys contained closed...
Despite the advancements in Patient and Public Involvement Engagement (PPIE), voices of traditionally underserved groups are still poorly reflected dementia research. This study aimed to report on a PPIE partnership between academics members public from communities co-design Forward with Dementia-Social Care, resource information website supporting people receiving diagnosis.
As the ageing population grows globally, need for informal care-usually provided by family and friends-will continue to increase. Numbers of people with dementia also rise, much their care will be relatives. such, more who may themselves older, take on such caring roles. Consequently, carers are likely have education support needs. Amidst government recognition provide good quality, person-centred carers, there tensions between potential provision resource intensive whether existing services...
Background: People of African and Caribbean descent experienced disproportionately high mortality from COVID-19 have poor access to palliative care. Aim: To explore care experiences people during immediately prior the pandemic. Design: Qualitative interview study with thematic analysis. Refinement themes/recommendations in consultation an expert patient public advisory group. Setting/participants: Twenty-six bereaved relatives 13 health/social professionals (cared for descent) throughout...
Journal Article A Relative Safeguard? The Informal Roles that Families and Carers Play when Patients with Dementia are Discharged from Hospital into Care in England Wales Get access Charlotte Emmett, Emmett † **School of Law, Northumbria University, Newcastle upon Tyne, NE1 8ST, UK. †Corresponding author. E-mail: charlotte.emmett@northumbria.ac.uk Search for other works by this author on: Oxford Academic Google Scholar Marie Poole, Poole ****Institute Health Society, NE2 4AX, UK (contributed...
Objectives Provision of personalised care planning is a national priority for people with dementia. Research suggests lack quality and consistency plans reviews. The PriDem model was developed to deliver feasible acceptable primary care-based postdiagnostic dementia care. We aimed increase the adoption dementia, exploring implementation facilitators barriers. Design Mixed-method feasibility study. Setting Seven general practices from four networks (PCNs) in Northeast Southeast England....
Objectives To evaluate the feasibility and acceptability of a primary care-based intervention for improving post-diagnostic dementia care support (PriDem), implementation study procedures. Design A non-randomised, mixed methods, study. Setting Seven general practices from four networks (PCNs) in Northeast Southeast England. Participants We aimed to recruit 80 people with (PWD) 66 carers Intervention Clinical Dementia Leads delivered 12-month participating PCNs, develop systems, build staff...
The Internal Revenue Service (IRS) and the University of Minnesota are conducting a multi-year study GDSS use in small group meetings. paper presents some initial findings on extent types uses that quality teams making IRS Manhattan District Office.< <ETX xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink">></ETX>
Summary This article discusses the importance of residence capacity – an individual's mental to decide where they should live and suggests how it be assessed. People with dementia or intellectual disabilities, as well those other disorders, are sometimes required make this decision. Assessments must conducted considerable care, given implications for individual their human rights. The assessment objective functional: assessor able specifically demonstrate a lack decision-making ability. Yet...