A5029562491- Pharmaceutical studies and practices
- Pharmacovigilance and Adverse Drug Reactions
- Childhood Cancer Survivors' Quality of Life
- Pharmaceutical Practices and Patient Outcomes
- Adolescent and Pediatric Healthcare
- Pediatric Pain Management Techniques
- Family Support in Illness
- Cancer survivorship and care
- Children's Rights and Participation
- Patient-Provider Communication in Healthcare
- Infant Development and Preterm Care
- Child and Adolescent Health
- Computational Drug Discovery Methods
- Cerebral Palsy and Movement Disorders
- Pharmaceutical Economics and Policy
- Participatory Visual Research Methods
- Mental Health and Patient Involvement
- Ethics and Legal Issues in Pediatric Healthcare
- Primary Care and Health Outcomes
- Pharmaceutical industry and healthcare
- Chronic Disease Management Strategies
- Species Distribution and Climate Change
- Pain Management and Opioid Use
- Foreign Body Medical Cases
- Health Systems, Economic Evaluations, Quality of Life
University of Central Lancashire
2013-2022
Alder Hey Children's NHS Foundation Trust
2014-2017
University of Liverpool
2012-2014
University of Manchester
2010
Children can sometimes find it difficult to articulate their experiences if they have rely solely on words. Giving children the opportunity use arts-based research approaches support participation in and create a bridge that enables them express perspectives feelings. This paper focuses ethical practical considerations when using photo elicitation interviews (PEI) with children. The discussion examples provided are drawn from an international study used auto-driven PEI, where photographs...
Children with profound cognitive impairment (PCI) are a heterogenous group who often experience frequent and persistent pain. Those people closest to the child key assessing their This mixed method study aimed explore how parents acquire knowledge skills in managing child’s Eight mothers completed weekly pain diary were interviewed at weeks 1 8. Qualitative data analysed using thematic analysis quantitative descriptive statistics. Mothers talked of learning through system trial error...
There is limited evidence to underpin the assessment and management of pain in children with profound cognitive impairment these are vulnerable poor management. Health professionals working from a single paediatric tertiary referral centre England were interviewed explore how they develop acquire knowledge skills assess manage impairment. The interviews transcribed subjected thematic analysis. Nineteen health representing different professional groups levels experience participated study. A...
Aims To comprehensively investigate the incidence, nature and risk factors of adverse drug reactions (ADRs) in a hospital-based population children, with rigorous assessment causality, severity avoidability, to assess consequent impact on children families. We aimed improve ADRs by development new tools causality minimise families developing better strategies for communication. Review methods Two prospective observational studies, each over 1 year, were conducted associated admission...
To develop and test a new tool to assess the avoidability of adverse drug reactions that is suitable for use in paediatrics but which also applicable variety other settings.The study involved multiple phases. Preliminary work using Hallas scale modification existing scale, two different sets reaction (ADR) case reports. Phase 1 defined, modified refined multidisciplinary teams. 2 assessment 50 ADR reports from prospective paediatric inpatients by individual assessors. 3 compared assessments...
To investigate parents' views and experiences of direct reporting a suspected ADR in their child.We audio-recorded semi-structured qualitative interviews with parents children ADRs. Our sample included (n = 17) without 27) previous experience submitting Yellow Card.Parents both groups described poor awareness the Card Scheme. Parents who had participated Scheme were generally happy to report child's via valued opportunity concerns independently health practitioners. They expressed...
Background There is little research on parents' experiences of suspected adverse drug reactions in their children and hence evidence to guide clinicians when communicating with families about problems associated medicines. Objective To identify any unmet information communication needs described by parents whose child had a reaction. Methods Semi-structured qualitative interviews 44 who reaction identified hospital admission, during in-patient treatment or reported using the Yellow Card...
Most studies of growing up with a long-term condition focus on older children and adolescents are condition-specific. Relatively few address the experiences in middle childhood or consider their experience across range conditions, countries, health settings. This study aimed to explore children's perceptions understandings how lives shaped (or not) by its associated management.A qualitative, participatory methodology using autodriven photoelicitation interviews (PEIs) 45 purposively...
Transition services for young people with long-term conditions often fall short. This qualitative study explored perspectives on service features that enable effective transition in epilepsy and juvenile idiopathic arthritis. Patients, parents, clinicians commissioners took part semi-structured interviews ( n = 18). Thematic analysis was used to identify key features, barriers facilitators of across participant groups. Analysis led the development nine sub-themes which mapped overarching...
To describe how individual schools manage medicines and strategies for implementation of guidance, to determine the nature problems perceived by children, parents, teachers healthcare professionals (HCPs) in relation management highlight differences between these perceptions.A cross-sectional survey study which questionnaires were completed their parents carers, groups HCPs head teachers.There 158 respondents this survey. The varies reflects policy guidance is interpreted revealed experience...
<h3>Aim</h3> To explore children's understanding and perception of their chronic illness how this shapes lives. <h3>Methods</h3> A qualitative, participatory methodology that acknowledged the agency underpinned study. We used photo-elicitation (photographs interviews) to build knowledge grounded in experiences. Forty-five children (6–12 years) from different diagnostic groups were recruited hospital-based support group settings England, Tasmania New Zealand. The given digital cameras asked...
<h3>Aims</h3> To explore the experiences and methods used by parents to administer long term medicines their children. <h3>Methods</h3> Semi structured qualitative interviews with of children who are prescribed medication for a chronic condition. Interviews were audio recorded transcribed. Analysis was inductive informed principles grounded theory constant comparison method. <h3>Results</h3> 13 (N = 12) between 5 11 years; female (n 5) male 8). The sample is currently being extending include...
<h3></h3> There is an increase in the number of children with profound cognitive impairments who are cared for at home and require complex interventions. Often parents responsible provision these interventions; amount professional support providing care varies. Many experience pain arising from a range different causes (e.g., positioning, treatment-related, usual pains childhood). This presentation will explore experiences perceptions whose as part everyday life how they manage this home. A...
<h3>Background</h3> Trials have demonstrated that patients benefit from participation in cancer support groups. However, only a minority of join Better understanding factors predicting patients9 intention to groups and their preferred group formats is required aid strategies increase attendance ensure are suited preferences. <h3>Objective</h3> To investigate variables the they would find most useful. <h3>Design</h3> Self-completed questionnaires. Factor analysis perceptions perceived be...
<h3>Aim</h3> The aim of this paper is to present findings on the ways in which health care practitioners who work with children complex needs can support parents assessing and managing their child’s pain. <h3>Methods</h3> data reported here are from semi-structured interviews undertaken based at a tertiary children’s hospital UK. These part larger mixed methods study. Data were analysed using thematic analysis. <h3>Results</h3> Nineteen healthcare variety disciplinary backgrounds (e.g....
<h3>Background</h3> There is currently no standardised method for determining avoidability of adverse drug reactions (ADRs) and many the established tools are not suitable use in paediatrics. We have developed a new tool; Liverpool ADR assessment tool (LAAT). Initial testing showed mixed inter-rater reliability. <h3>Aim</h3> To test hypothesis that group assessments superior to individual assessments. <h3>Methods</h3> Participants were assigned either consensus or individually assess...
<h3>Background and aims</h3> Engaging children in research about their lives is an essential component of providing excellent health care services. Utilising participatory, visual/arts-based approaches such as photo-elicitation (PE) can extend opportunities for to reflect on talk lives. This paper aims explore the use of, benefits issues associated with using PE children. <h3>Methods</h3> a qualitative method that does not rely high levels verbal or written literacy which creates equitable...
<h3>Aim</h3> Researchers and academics face many research imperatives ranging from generating income, undertaking high quality research, writing 5 star papers, developing a national international profile through to research. None of this is easy. This presentation aims explore reflect on the process successes achieved so far by founding members community practice – Circle. <h3>Methods</h3> Although perhaps not an obvious academic setting, Circle was developed whilst walking. Many good ideas...
Aim To pilot a prompt guide to support discussions between clinicians and parents following suspect adverse drug reaction in child. Method We designed the response findings from Adverse Drug Reactions Children: Qualitative study (ADRIC: QUAL) that identified unmet information communication needs suspected ADR their The was developed by ADRIC: QUAL wider ADRIC team; reviewed parent expert advisory groups at Medicines Health care products Regulatory Agency (MHRA) Royal College of Paediatrics...