A5015075060- Cerebral Palsy and Movement Disorders
- Infant Development and Preterm Care
- Family and Disability Support Research
- Maternal Mental Health During Pregnancy and Postpartum
- Assistive Technology in Communication and Mobility
- Gestational Diabetes Research and Management
- Autism Spectrum Disorder Research
- Child and Adolescent Psychosocial and Emotional Development
- Attachment and Relationship Dynamics
- Prenatal Substance Exposure Effects
- Birth, Development, and Health
- Respiratory viral infections research
- Viral gastroenteritis research and epidemiology
- Botulinum Toxin and Related Neurological Disorders
- Pregnancy and preeclampsia studies
- Neonatal and fetal brain pathology
- Delphi Technique in Research
- Stroke Rehabilitation and Recovery
- Congenital Heart Disease Studies
- Neurogenetic and Muscular Disorders Research
- Viral Infections and Immunology Research
- Chronic Disease Management Strategies
- Health disparities and outcomes
- Geriatric Care and Nursing Homes
- Disability Rights and Representation
Cerebral Palsy Alliance
2018-2024
The University of Sydney
2018-2024
Children's Hospital at Westmead
2024
UNSW Sydney
2017-2021
The Triple B Pregnancy Cohort Study investigates the effects of parental alcohol, tobacco and other substance use on infant development family functioning. study (also known as: Bumps, Babies Beyond), recruited two sub-samples: (i) a general antenatal clinic sample pregnant women their partners (n = 1534 women; 842 partners); (ii) smaller with diagnosed disorders (SUD; n = 89 only). Participants were through public clinics attached to major hospitals area health services in New South Wales...
Abstract Background Delays in early social and executive function are predictive of later developmental delays eventual neurodevelopmental diagnoses. There is limited research examining such markers the first year life. High-risk infant groups commonly present with a range challenges, including delays, show higher rates autism diagnoses For example, it has been estimated that up to 30% infants diagnosed cerebral palsy (CP) will go on be Methods This article presents protocol prospective...
Abstract Rationale, Aims and Objectives Social challenges are common for young adults with autism spectrum disorder (ASD) and/or mild intellectual impairment, yet few evidence‐based interventions exist to address these challenges. PEERS ®, the Program Education Enrichment of Relational Skills, has been shown be effective in improving social skills ASD; however, it requires a significant time commitment parents adults. As such, this mixed‐methods study aimed investigate experiences adults, ®...
Maternal alcohol consumption in pregnancy may have adverse effects on child gross motor (GM) development. There been few human studies this topic, particularly ones examining low exposure. This study examined the association between prenatal exposure (PAE) and infant GM development at 12-months of age. Participants were 1324 women recruited from antenatal clinics Sydney Perth, Australia. paternal use was assessed via interview; offspring measured with Bayley Scales Infant Development...
Emotion regulation difficulties are associated with many neurological conditions and negatively impact daily function. Yet little is known about emotion in adults cerebral palsy (CP). Our aim was to investigate CP its relationship condition-related and/or socio-demographic factors. In a cross-sectional study of CP, participants completed survey containing the Difficulties Regulation Scale (DERS), Depression Anxiety Stress Scale-21 (DASS-21), questions. Descriptive statistics, chi-squared...
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Despite the importance of knowing cognitive capabilities children with neurodevelopmental conditions, less than one-third cerebral palsy participate in standardized assessments. Globally, approximately 50% people have an intellectual disability and there is significant risk for domain-specific impairments majority palsy. However, assessment tools are not accessible to many palsy, as they require manual manipulation objects, verbal response and/or speeded response. As such, standardised may...
Mindfulness-Based Stress Reduction (MBSR) has not yet been evaluated for people with cerebral palsy (CP). The aims of this randomised control trial were to investigate whether a modified telehealth MBSR program could improve mindfulness and reduce depression, anxiety, emotion regulation difficulties among adults CP elevated anxiety and/or emotional difficulties. Participants (n = 31) no/mild intellectual impairment (90 min weekly, 9 weeks) group or wait-list group. Measurements collected...
Objective To investigate the obesogenic influence of maternal prepregnancy body mass index (BMI) and gestational weight gain (GWG) on infant at birth 12 months postpartum in an Australian general population sample. Methods Data 1,305 pregnant women were collected BMI GWG through interview, hospital records, postbirth direct measurement. Relationships between prepregnancy, exposures, outcomes assessed with without adjustment for potential confounding. Results We observed a 14 to 24 g increase...
Despite the importance of having knowledge about a child's cognitive functioning, less than one-third children with cerebral palsy (CP) are formally assessed. Consequently, strengths many severe CP may be underestimated or go overlooked. This case study aimed to test accommodations assessment administration procedures enable switch access. A 9-year-old boy dyskinetic tested suite assessments for single access and measures user experience. The included: receptive vocabulary; non-verbal...
The interrelationships between maternal bonding, negative affect, and infant social-emotional development were examined using multi-wave perinatal data from an Australian cohort study (N = 1,579). Self-reported bonding affect assessed at each trimester, 8 weeks 12 months postpartum. Bayley-III scale was administered age months. Results revealed strong continuities in across pregnancy Small associations (β -.10 to -.20) existed during poor early bonding. Higher postnatal predicted .17)....