A5007452055- Infant Development and Preterm Care
- Cerebral Palsy and Movement Disorders
- Neonatal Respiratory Health Research
- Family and Disability Support Research
- Neonatal and fetal brain pathology
- Congenital Heart Disease Studies
- Traumatic Brain Injury and Neurovascular Disturbances
- Child and Adolescent Health
- Biomedical Ethics and Regulation
- Botulinum Toxin and Related Neurological Disorders
- Cutaneous Melanoma Detection and Management
- Children's Physical and Motor Development
- Health Systems, Economic Evaluations, Quality of Life
- Anesthesia and Neurotoxicity Research
- Pediatric Pain Management Techniques
- Blood Coagulation and Thrombosis Mechanisms
- Cardiac Arrest and Resuscitation
- Traumatic Brain Injury Research
- Melanoma and MAPK Pathways
- Breastfeeding Practices and Influences
- Nerve Injury and Rehabilitation
- Delphi Technique in Research
- Pluripotent Stem Cells Research
- Neonatal Health and Biochemistry
- Family and Patient Care in Intensive Care Units
The University of Sydney
2016-2024
Melanoma Institute Australia
2021-2024
Macquarie University
2024
Children's Hospital at Westmead
2017-2023
Cerebral Palsy Alliance
2016-2023
University of Malta
2018-2022
Sydney Children's Hospital
2022
Grace (United States)
2021
Living with Disability
2019
Alliance University
2019
Aim To investigate trends in birth prevalence of cerebral palsy ( CP ) overall and by gestational age, examine the distribution motor type, spastic topography, severity using Australian Register data from 1995 to 2009. Method Prenatal perinatal were collated state/territory registers. Birth estimates per 1000 live births neonatal survivors NNS calculated five epochs. Data three state registers with population‐level ascertainment used age Poisson regression. Distribution moderate severe...
Introduction: Clinical guidelines recommend using neuroimaging, Prechtls’ General Movements Assessment (GMA), and Hammersmith Infant Neurological Examination (HINE) to diagnose cerebral palsy (CP) in infancy. Previous studies provided excellent sensitivity specificity for each test isolation, but no study has examined the pooled predictive power early diagnosis. Methods: We performed a retrospective case-control of 441 high-risk infants born between 2003 2014, from three Italian hospitals....
Background/aim Approximately, 80% of traumatic brain injuries are considered mild in severity. Mild injury ( mTBI ) may cause temporary or persisting impairments that can adversely affect an individual's ability to participate daily occupations and life roles. This study aimed identify symptoms, factors predicting level symptoms functional psycho‐social outcomes for participants with three months following injury. Method Patients discharged from the Emergency Department a major metropolitan...
To investigate the impact of socio-economic disadvantage on indicators cerebral palsy (CP) severity - motor impairment, intellectual disability, and presence severe comorbidities in children with CP Australia.Data from Australian Cerebral Palsy Register were analysed. Socio-economic was assessed using maternal age, country birth, a measure neighbourhood status (SES) at time child's birth. Descriptive bivariate analysis, trend risk ratios, mediation analysis undertaken to examine severity.A...
The most recent cost estimates of cerebral palsy (CP) in Australia did not include out-of-pocket costs for families. This study aimed to: 1) describe and estimate people with CP their families by age gross motor function classification system (GMFCS) level; 2) measure financial distress. A cross-sectional quantitative survey design was used qualitative approaches to analyse open-ended questions. CP-specific co-designed lived experience. Adults carers were recruited from Australian...
Functional hand splinting is a common therapeutic intervention for children with neurological conditions. The aim of this study was to investigate the effectiveness Cognitive Orientation daily Occupational Performance (CO-OP) approach over and above conventional functional splinting, in combination cerebral palsy or brain injury. A multisite, assessor-blinded, parallel, randomized controlled trial conducted Australia. Participants (n = 45) were randomly allocated one three groups; (1) splint...
Abstract Background Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted build international stakeholder consensus inform decision making trialling technology with people cerebral palsy. Methods A three-round online survey conducted. In Round 1, 126 stakeholders responded questions identified through an Advisory Panel systematic reviews....
We evaluated the outcome of a community-based early intervention and habilitation for children with cerebral palsy (CP) in Bangladesh. Children registered on Bangladesh CP Register (BCPR) were recruited two groups this study: Group A received comprehensive six-month long caregiver-led program at “Shishu Shorgo” (Bengali title, which translates to ‘Children’s Heaven’) Early Intervention Rehabilitation Centres developed support participants from BCPR. B standard care. quasi-experimental study...
Abstract Background The health-related quality of life (HRQoL) adolescents with CP in low and middle-income countries is often poor, as the case Bangladesh. This exploratory study examined what factors predict proxy-reported HRQoL rural Bangladesh, a typical low- country (LMIC). Methods Adolescents (10 to 18y) were identified using Bangladesh Cerebral Palsy Register. was assessed Quality Life-Teens proxy-report questionnaire (CPQoL-Teens), adolescent mental health Strengths Difficulty...
Prior studies indicate high risk of mental health problems among caregivers adolescents with cerebral palsy although limited consideration is given to in low- and middle-income countries. This study aimed compare the burden depression, anxiety stress without disability rural Bangladesh; identify factors unique countries that predict caregiver's health.Observational comparing identified through Bangladesh Cerebral Palsy Register from neighboring dwellings. Caregiver was assessed using...
The inverse care law suggests that those with the greatest need for services are least likely to receive them. Our aim of this study was test in relation use health by children aged 4-5 years Australia who were developmentally vulnerable and socioeconomically disadvantaged.Cross-sectional data collected from Longitudinal Study Australian Children birth cohort when years. grouped according combination developmental vulnerability (yes, no) socioeconomic disadvantage (lower, higher), resulting...
To investigate skincare practices in the first 2 weeks of life extremely premature infants across tertiary neonatal intensive care units (NICUs).A web-based secure survey invite was emailed to medical directors NICUs. The included questions on various aspects (born before 28 gestation). person most familiar with local asked complete and only one response per unit requested. We performed a descriptive analysis.We received responses from 30 out 32 NICUs (response rate 93%). Twenty-five (89%)...
BACKGROUND Red blood cell (RBC) transfusion is a standard treatment for anemia of prematurity. Cerebral tissue oxygenation and flow velocities improve when restrictive threshold followed, but little known about the effect practicing liberal on cerebral oxygenation, velocities, cardiac output measurements. STUDY DESIGN AND METHODS A prospective observational study preterm infants under 32 weeks' gestation who received RBC transfusion. Monitoring was performed immediately before, after, 24...