A5084914085- Cerebral Palsy and Movement Disorders
- Family and Disability Support Research
- Infant Development and Preterm Care
- Neonatal Respiratory Health Research
- Childhood Cancer Survivors' Quality of Life
- Botulinum Toxin and Related Neurological Disorders
- Child Nutrition and Feeding Issues
- Pancreatitis Pathology and Treatment
- Urinary Tract Infections Management
- Neonatal and fetal brain pathology
- Primary Care and Health Outcomes
- Connective tissue disorders research
- Dysphagia Assessment and Management
- Intensive Care Unit Cognitive Disorders
- Adolescent and Pediatric Healthcare
- Lysosomal Storage Disorders Research
- Streptococcal Infections and Treatments
- Sleep and related disorders
- Menstrual Health and Disorders
- Cystic Fibrosis Research Advances
- Healthcare Systems and Technology
- Spinal Cord Injury Research
- Hernia repair and management
- Conservation Techniques and Studies
- Neurogenetic and Muscular Disorders Research
Princess Margaret Hospital for Children
2016-2025
Perth Children's Hospital
2019-2024
The Kids Research Institute Australia
2021-2024
The University of Western Australia
2018
Western University
2017
Aim To provide recommendations for interventions to improve physical function children and young people with cerebral palsy. Method An expert panel prioritized questions patient‐important outcomes. Using Grading of Recommendations Assessment, Development Evaluation (GRADE) methods, the assessed certainty evidence made recommendations, international consumer consultation. Results The guideline comprises 13 (informed by three systematic reviews, 30 randomized trials, five before–after...
Likely duration of survival children described as having cerebral palsy is considerable interest to individuals with palsy, their families, carers, health professionals, economists and insurers. The aim this paper describe patterns mortality the sixth decade in a geographically defined population people stratified according clinical description impairments early childhood. Identifiers persons born Western Australia 1956–2011, registered on Australian Register Developmental Anomalies...
Respiratory illness is the leading cause of mortality in children with cerebral palsy (CP). Although risk factors for developing chronic respiratory have been identified, comprehensive clinical care recommendations prevention and management do not currently exist. We invited over 200 clinicians researchers from multiple disciplines expertise CP to develop using a modified Delphi method on basis RAND Corporation–University California Los Angeles Appropriateness Method. These are intended use...
Background: Achondroplasia, the most prevalent skeletal dysplasia, stems from a functional mutation in fibroblast growth factor receptor 3 gene, leading to impairment. This condition presents multifaceted medical, and psychosocial challenges throughout childhood, adolescence adulthood. Current management strategies aim minimise medical complications, optimise capabilities provide comprehensive supportive care. Vosoritide (trade name: VOXZOGO®, BioMarin Pharmaceuticals) is first...
Objective To determine the early predictors of respiratory hospital admissions in young people with cerebral palsy (CP). Design A 3-year prospective cohort study using linked data. Patients Children and CP, aged 1 to 26 years. Main outcome measures Self-reported carer-reported symptoms were (as defined by International Statistical Classification Diseases Related Health Problems 10th Revision codes) during following 3 Results 482 participants (including 289 males) recruited. They years (mean...
ABSTRACT Background Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given high risk chronic conditions. However, there limited research that has collected important insights from on their learnings supporting child's evolving needs. Aim This study focuses parents' experiences managing child disability. It aims to understand what wish they had known earlier, essential knowledge skills needed manage health....
Achondroplasia is the most common form of skeletal dysplasia. In addition to altered growth, children and young people with achondroplasia may experience medical complications, develop function differently others require psychosocial support. International, European American consensus guidelines have been developed for management achondroplasia. The Australian focused presented here are designed complement those existing guidelines. They aim provide core care recommendations families...
Abstract Aim To provide a birds‐eye view of the trends cerebral palsy (CP) for Australian Aboriginal and Torres Strait Islander children young adults. Method Data were obtained this population‐based observational study from Cerebral Palsy Register (ACPR), birth years 1995 to 2014. The Indigenous status was classified by maternal or non‐Indigenous status. Descriptive statistics calculated socio‐demographic clinical characteristics. Prenatal/perinatal post‐neonatal prevalence per 1000 live...
Aims The aims were to identify in‐home concerns about sleep in children and young people with cerebral palsy ( CP ) across age G ross M otor F unction C lassification S cale GMFCS levels. Methods This was a retrospective review of clinical notes 154 , aged 1–18 years = 7.8; standard deviation 5.4) who received home‐based service. Reported synthesised, for analysis according groups (1–5, 6–13, 14–18) Results Sixteen factors concern derived from the assessment reports. Most had multiple...
Objective: To investigate feasibility of aquatic high intensity interval training for adolescents with cerebral palsy, who can ambulate independently but may choose a mobility aid in some circumstances. Design: Pilot randomised controlled trial. Method: Following baseline assessments, participants were to usual care or ten weeks twice weekly training. Each class comprised 10 one-minute exercise intervals separated by rest. High was defined as the attainment ⩾80% peak heart rate measured...
Melioidosis is a rare condition, endemic to northern Australia and south-east Asia, caused by an infection from the bacteria Burkholderia pseudomallei. The largest epidemiological review date describes 540 cases of melioidosis seen at Darwin Hospital, in Australia, over 20-year period. Of these, 14 (less than 3%) presented with neurological manifestation, three deaths. Reports paediatric are rarer. In only eight were identified 10 years. Three these patients melioidosis, whom two died...
The most common cause of morbidity and mortality in children with severe cerebral palsy (CP) is respiratory disease. BREATHE-CP (Better REspiratory Airway Treatment HEalth Cerebral Palsy) a multidisciplinary research team who have conducted on the risk factors associated CP disease, systematic review management Delphi study development consensus for prevention disease CP. These strategies not been investigated; therefore, it known if implementation feasible, they improve patient outcomes or...