A5075888616- Facial Nerve Paralysis Treatment and Research
- Ear Surgery and Otitis Media
- Trigeminal Neuralgia and Treatments
- Body Image and Dysmorphia Studies
- Voice and Speech Disorders
- Reconstructive Surgery and Microvascular Techniques
- Temporomandibular Joint Disorders
- Burn Injury Management and Outcomes
- Healthcare Systems and Technology
- Research in Social Sciences
- Hemispheric Asymmetry in Neuroscience
- Nerve Injury and Rehabilitation
- Ophthalmology and Eye Disorders
- Musicians’ Health and Performance
- Morphological variations and asymmetry
- Reconstructive Facial Surgery Techniques
- Botulinum Toxin and Related Neurological Disorders
- Leprosy Research and Treatment
- Spatial Neglect and Hemispheric Dysfunction
- Transcranial Magnetic Stimulation Studies
- Pain Management and Treatment
- Facial Trauma and Fracture Management
- Long-Term Effects of COVID-19
Radboud University Medical Center
2016-2024
Radboud University Nijmegen
2016-2024
To assess the psychosocial outcomes of facial weakness in facioscapulohumeral muscular dystrophy (FSHD).A cross-sectional survey study. The severity was assessed by patients (self-reported degree weakness) and physicians (part I FSHD clinical score). Questionnaires on function, well-being, functioning, pain, fatigue were completed. Regression analyses performed to explain variance demographic disease variables.One hundred thirty-eight participated. They reported mild moderate psychological...
This study focuses on the functional and psychosocial consequences of facial weakness patients with facioscapulohumeral muscular dystrophy (FSHD) how they manage their daily lives.We conducted a qualitative study. Sixteen FSHD varying degrees were interviewed using semi-structured interview guide. Data analyzed constant comparison approach based Straussian Grounded Theory.Reduced expression affected different aspects participant's life, which is reinforced by fatigue. Particularly younger...
People with a medical condition that leads to visible disfigurement often face significant psychosocial challenges related their disfigurement, such as psychological distress, negative self-esteem and feelings of shame. In addition, they encounter social difficulties including stigmatization, dealing reactions others limitations in personal relationships. The availability evidence-based support tailored these specific patients' needs is limited. aim this study describe the development...
Quality of life (QoL) in children with facioscapulohumeral dystrophy (FSHD) seems plausible decreased. Little is known about factors influencing QoL FSHD. Our objective to explore contributing the children, adolescents, and young adults FSHD, describe how they experience report their support needs.