A5072047099- Dermatology and Skin Diseases
- Psoriasis: Treatment and Pathogenesis
- Body Image and Dysmorphia Studies
- Allergic Rhinitis and Sensitization
- Digital Mental Health Interventions
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Autoimmune and Inflammatory Disorders Research
- Vascular Malformations and Hemangiomas
- Childhood Cancer Survivors' Quality of Life
- Health, psychology, and well-being
- Skin Protection and Aging
- Teratomas and Epidermoid Cysts
- Tumors and Oncological Cases
- Microscopic Colitis
- Burn Injury Management and Outcomes
- Empathy and Medical Education
- Hidradenitis Suppurativa and Treatments
- Child and Adolescent Psychosocial and Emotional Development
- Spinal Dysraphism and Malformations
- Obsessive-Compulsive Spectrum Disorders
- Dermatological diseases and infestations
- Health Policy Implementation Science
- Acne and Rosacea Treatments and Effects
- Asthma and respiratory diseases
- Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
Radboud University Nijmegen
2014-2024
Radboud University Medical Center
2014-2024
University Medical Center
2020-2023
University Hospital and Clinics
2020
John Wiley & Sons (United States)
2019
John Wiley & Sons (United Kingdom)
2019
Oxfam
2019
Hudson Institute
2019
Leiden University
2017
Advanced Dermatology
2016
Body dysmorphic disorder (BDD) is a common psychiatric associated with high costs for healthcare systems as patients may repeatedly ask different, often not effective, interventions. BDD symptoms are more prevalent in dermatological conditions than the general population, but there no large sample studies comparing prevalence of between and healthy skin controls.
Abstract For patients with chronic pain conditions such as rheumatoid arthritis (RA), who experience elevated levels of distress, tailored-guided internet-based cognitive-behavioral treatment may be effective in improving psychological and physical functioning, reducing the impact RA on daily life. A multicenter, randomized controlled trial was conducted for distress assessed by a disease-specific measure. The control group (n = 71) received standard care intervention 62) additionally an...
Itch is a highly prevalent and multidimensional symptom. We aimed to analyze the association between itch mental health in dermatological patients. This multicenter study observational cross-sectional was conducted clinics across 13 European countries. A total of 3,530 patients 1,094 healthy controls were included. Patients examined clinically. Outcome measures (presence, chronicity, intensity), Hospital Anxiety Depression Scale, EQ-5D visual analogue scale, sociodemographics, suicidal...
This paper is organized jointly by the European Academy of Dermatology and Venereology (EADV) Task Force (TF) on Quality Life (QoL) Patient-Oriented Outcomes EADV TF acne, rosacea hidradenitis suppurativa (ARHS). The purpose this was to present current knowledge about QoL assessment in HS, including data HS-specific health-related (HR) instruments HRQoL changes clinical trials, make practical recommendations concerning people with HS. HS results significant quimp that higher than most other...
<b><i>Objective:</i></b> Patients with somatic conditions, such as psoriasis, frequently suffer from high burden of their disease in daily life and might benefit internet-based cognitive behavioral therapy (ICBT) tailored to adjustment problems. The aim this multicenter randomized controlled trial was examine the effects therapist-guided, individually ICBT a clinical sample patients psoriasis. <b><i>Methods:</i></b> A total 131 who were...
A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored potential benefits offered by specialist psychosocial support intervention for those who are negatively affected. However, little is known about availability such in Europe whose appearance any way different to 'the norm'. This survey 116 specialists from 15 European countries, working a range patient groups, shown tendency prioritise...
Background The essential physical role, visibility and social importance of the hands place a major psychological burden on patients with hand eczema. Objectives aim this study was to identify psychological, clinical characteristics eczema, in particular prevalences depression, anxiety, suicidal ideation, comorbidities. Materials methods Data eczema were analysed from large European multicentre conducted dermatology outpatients 13 countries. Groups controls compared analyse Results Female...
Abstract New treatment options may lead to an increased interest in using reliable and sensitive instruments assess health‐related quality of life people with alopecia areata (AA). The purpose this paper is present current knowledge about assessment AA. dermatology‐specific Dermatology Life Quality Index (DLQI) was the most widely reported instrument used Three AA‐specific (Alopecia Areata Symptom Impact Scale, Alopecia Patients' Life) three hair disease‐specific (Hairdex, Scalpdex...
Psychological stress may alter immune function by activating physiological pathways. Building on our previous study, in which we report that management training led to an altered self-reported and cortisol response psychological patients with rheumatoid arthritis (RA), explored the effects of this intervention a task RA.In 74 RA, who were randomly assigned either control group or received short training, performed Trier Social Stress Test (TSST) 1 week after at 9-week follow-up....
This case study evaluates the COloRectal canceR distrEss reduCTion (CORRECT) intervention, a blended cognitive-behavioral therapy (bCBT) combining face-to-face (F2F) with an interactive self-management website to reduce high distress in colorectal cancer survivors (CRCS). A cognitive-behavior therapist treated 74-year-old male CRCS bCBT for 4 months. At baseline, postintervention, and 7- 14-months follow-up he filled questionnaires assessing psychological (primary outcome Brief Symptom...
To describe and illustrate in a case-study design the development of multidisciplinary training program for outpatient children adolescents with psoriasis their parents.For program, steering group was assembled, systematic semi-structured interviews were held literature reviewed.Aim to strengthen patients parents coping diminishing psoriasis-related problems an setting. The included treatment modules medical information skin care, itch scratch problems, psychological issues psoriasis, sleep...
Hidradenitis suppurativa (HS) can severely affect the quality of life (QoL) and is linked to psychological distress, including anxiety, depression, reduced self-esteem. Stigmatization due physical appearance may significantly contribute burden impact on QoL for HS patients. This study investigates association between stigmatization, health- disease-related variables among patients in Europe.
Chronic somatic conditions, such as psoriasis, arthritis psoriatica and rheumatoid arthritis, have a large impact on patients' lives. Tailored therapist-guided internet-based cognitive-behavioural therapy (ICBT) has been shown to be effective in improving physical psychological well-being these patients. Two cases are presented here, order provide an in-depth illustration of the course content this novel treatment investigate therapeutic alliance online treatment. After face-to-face intakes,...
Paediatric psoriasis can have a profound impact on the lives of patients [1]. For adult patients, multidisciplinary training programmes, as an adjunct to standard dermatological treatment, improve physical and psychosocial wellbeing [2, 3]. However, studies programmes for paediatric are scarce [4].This pilot study aimed assess patient parent satisfaction with previously described outpatient programme children adolescents [...]
Treatment needs of young psoriasis patients and parents are not widely studied could advance patient-centered care.To explore treatment goals preferences pediatric patients, adults, parents.A web-based survey among Dutch aged ≥6 to ≤30 years included multiple-choice, open-ended, 4-point Likert scale questions. characteristic (≤17 years) were compared adults (≥18 parents.195 (20.2 ± 6.3 45 included. The most important 'preventing lesions', 'reducing 'no itch', lesions'. Regarding...
Abstract Background Quality of life (QoL) data are lacking in children with infantile hemangioma ( IH ) and their parents/caregivers. Available conflicting. Objectives To determine QoL (parents of) patients the proliferative phase related to ‐severity activity. Methods Parents 59 ‐patients (≤ 6 months) were asked fill Dutch ‐specific QoL‐questionnaire (D‐ ‐QoL) within 1 month after first visit our tertiary referral center. Hemangioma Severity Scale HSS score Activity Score HAS assessed....
People with a medical condition that leads to visible disfigurement often face significant psychosocial challenges related their disfigurement, such as psychological distress, negative self-esteem and feelings of shame. In addition, they encounter social difficulties including stigmatization, dealing reactions others limitations in personal relationships. The availability evidence-based support tailored these specific patients' needs is limited. aim this study describe the development...
Health-related quality of life (HRQoL) assessment in patients with acne is recommended by several national guidelines. There are acne-specific HRQoL instruments.Participants the European Academy Dermatology and Venereology (EADV) Task Forces (TFs) on QoL Patient Oriented Outcomes (PO) Acne, Rosacea, Hidradenitis Suppurativa (ARHS) agreed to scrutinize aspects existing instruments for their relevance international study.Consensus agreement items related was reached after an independent seven...
<b><i>Introduction:</i></b> Skin cancer is currently the most common type worldwide, and numbers are rapidly increasing. To improve primary prevention, individualised prevention strategies may be of interest as this enhances chance long-term behavioural change. The Sun Exposure Protection Index (SEPI), previously validated in multiple languages, a tool that could help identify individuals with risky behaviour tailor interventions to person’s propensity aim present...