A5006953010- Palliative Care and End-of-Life Issues
- Grief, Bereavement, and Mental Health
- Ethics and Legal Issues in Pediatric Healthcare
- Dental Health and Care Utilization
- Ethics in medical practice
- Indigenous Health, Education, and Rights
- Patient Dignity and Privacy
- Migration, Health and Trauma
- Childhood Cancer Survivors' Quality of Life
- Occupational Therapy Practice and Research
- Health Policy Implementation Science
- Patient-Provider Communication in Healthcare
- Social Work Education and Practice
- Children's Rights and Participation
- Disability Education and Employment
- Interpreting and Communication in Healthcare
- Homelessness and Social Issues
- Community Health and Development
- Cultural Competency in Health Care
- Ethics in Clinical Research
- Empathy and Medical Education
- HIV/AIDS oral health manifestations
- Indigenous Studies and Ecology
- Cervical Cancer and HPV Research
- Food Security and Health in Diverse Populations
McGill University
2015-2024
Dalhousie University
2001-2024
Pallium India
2024
McGill University Health Centre
2008-2023
Queen Mary University of London
2023
Indigenous Services Canada
2021
Women's Health Initiative
2021
Montreal Children's Hospital
2007-2020
American Dental Education Association
2020
John Wiley & Sons (United States)
2020
The concept of vulnerability has held a central place in research ethics guidance since its introduction the United States Belmont Report 1979. It signals mindfulness for researchers and boards to possibility that some participants may be at higher risk harm or wrong. Despite important intended purpose widespread use, there is considerable disagreement scholarly literature about meaning delineation vulnerability, stemming from perceived lack within standards. aim this study was assess as it...
The compassionate communities movement challenges the notion that death and dying should be housed within clinical institutional contexts, works to normalize conversations about by promoting literacy dialogue in public spaces. Community-based practices grief remain marginal this agenda. We aimed theorize how could better conceptualized operationalized movement. develop concept of Grief Literacy present vignettes illustrate a literate society. augments literacy, thereby further enhancing...
Acts of kindness and commemoration by staff members often follow the death a patient. include attending funerals, sending sympathy cards, cards on birthdays/anniversaries, telephoning/visiting family homes, memorial services. This study explores significance these acts for bereaved parents.Twelve parents whose children died in ICU tertiary care pediatric hospital were interviewed, to explore their experiences death. Investigators reviewed transcripts observational field notes....
The semistructured, open-ended interview has become the gold standard for qualitative health research. Despite its strengths, long is not well suited studying topics that participants find difficult to discuss, or working with those who have limited verbal communication skills. A lack of emotional expression among male research repeatedly been described as a significant and pervasive challenge by researchers in variety different fields. This article explores several prominent theories men’s...
Although the modern pediatric intensive care unit (PICU) has followed general pediatrics and adopted family-centered model, little is known about how families prospectively experience PICU care. The authors' goal was to better understand experiences of whose child hospitalized in a PICU. They conducted 12-month prospective ethnographic study tertiary hospital large North American urban center. Data were obtained via participant-observation formal informal interviews with 18 staff key...
The purpose of this 2-part paper was to describe individuals' health information-seeking behavior (HISB) patterns that emerged from our grounded theory study. Thirty individual interviews and 8 focus groups were conducted with individuals diagnosed cancer. Analysis characterized by constant comparison diagram, an evolving coding scheme, ultimately the generation a HISB patterns. Five identified: (1) intense information seeking-a keen interest in detailed cancer information; (2) complementary...
Our objective was to develop a rich description of how parents experience their grief in the first year after death child, and various bereavement follow-up support services helped them during this time, with aim informing offered bereaved parents. findings situated parents' individual experiences coping within social institutional contexts which they grieved. In regulated intense feelings through loss-oriented, restoration-oriented, and/or meaning reconstruction strategies. Often,...
The participation of patients in making decisions about their care is especially important towards the end life because palliative involve extensive uncertainty and are heavily influenced by personal values. Yet, there a scarcity studies directly observing clinical interactions between health providers. In this study, we aimed to understand how patient constructed through discourse community hospital-based team. This qualitative study combined ethnographic observations team with analysis....
Abstract We describe an ontological approach to childhood studies that we refer as Childhood Ethics . This involves interdisciplinary hermeneutic orientation towards examining the morally meaningful dimensions of matters affect young people. draw on our empirical research with people from 3‐ 17‐years old, their experiences in a diversity contexts and geographical settings. Our investigations challenge dominant binary conceptions along lines decisional in/capacity im/maturity. argue for view...
Qualitative health research is ever growing in sophistication and complexity. While much has been written about many components (e.g. sampling methods) of qualitative design, analysis remains an area still needing advanced reflection. often the most daunting intimidating component endeavor for both teachers learners alike. Working collaboratively with trainees, our team developed SAMMSA (Summary & Analysis coding, Micro themes, Meso Syntheses, Analysis), a 5-step analytic process committed...
Discrepancies between the conclusions of different meta-analyses (quantitative syntheses systematic reviews) are often ascribed to methodological differences. The objective this study was determine discordance in interpretations when meta-analysts presented with identical data.We searched literature for all randomized clinical trials (RCT) and review articles on efficacy intravenous magnesium early post-myocardial infarction period. We organized chronologically grouped them packages. first...
This is the second of a 2-part article describing differential health information-seeking behavior (HISB) patterns within context cancer diagnosis that emerged in our grounded theory study. Data from 30 semistructured interviews and 8 focus groups with individuals diagnosed breast, prostate, or colorectal were analyzed using constant comparison analysis, diagramming, open, axial, selective coding. In part 1, 3 HISB illustrating variation active described: (1) intense information seeking keen...
‘Virtual memorials’ intended to memorialize the lives of children imply significant shifts in conceptualization death, particularly for grieving parents. Created by parents memory their deceased children, on-line memorials constructed using templates reflect strong cultural beliefs about nature childhood deaths, grief and development a kind digital afterlife. Virtual create new social value deceased, shift death bereavement from private into more public experiences. Building upon this work,...
Vulnerability is an important criterion to assess the ethical justification of inclusion participants in research trials. Currently, vulnerability often understood as attribute inherent a participant by nature diagnosed condition. Accordingly, common concern relates participant's decisionmaking capacity and ability provide free informed consent. We propose expanded view that moves beyond focus on consent intrinsic attributes participants. offer specific suggestions for how relational aspects...
The principal aim of this investigation was to help develop ‘Interdisciplinary Studies Childhood Ethics’ as a new field inquiry. We identified: (i) current intra‐disciplinary and interdisciplinary knowledge gaps in childhood ethics; (ii) priorities for future research development. A prominent problem, highlighted within across disciplines, relates how the best interests standard should be reconciled with recognition children agents. This project makes an innovative contribution by promoting...
‘Suffering’ is a central discursive trope for the right-to-die movement. In this article, we ask how proponents of physician-assisted dying (PAD) articulate suffering with role medicine at end life within context decriminalization and legalization debate. We draw upon empirical data from our study Carter v. Canada, landmark court case that decriminalized PAD in Canada 2015. conducted in-depth interviews 42 key participants collected over 4000 pages legal documents generated by case. analysis...