- Obsessive-Compulsive Spectrum Disorders
- Family and Disability Support Research
- Autism Spectrum Disorder Research
- Down syndrome and intellectual disability research
- Genetics and Neurodevelopmental Disorders
- Epilepsy research and treatment
- Psychopathy, Forensic Psychiatry, Sexual Offending
- Elder Abuse and Neglect
- Disability Rights and Representation
- Healthcare innovation and challenges
- Criminal Justice and Corrections Analysis
- Healthcare Decision-Making and Restraints
- Attention Deficit Hyperactivity Disorder
- Genomics and Rare Diseases
- Family Support in Illness
- Patient-Provider Communication in Healthcare
- Youth Substance Use and School Attendance
- Global Cancer Incidence and Screening
- Pharmacological Effects and Toxicity Studies
- Frailty in Older Adults
- Religious Tourism and Spaces
- Children's Physical and Motor Development
- Child Welfare and Adoption
- Infectious Encephalopathies and Encephalitis
- Diversity and Impact of Dance
University of Kent
2015-2025
Leicestershire Partnership NHS Trust
2025
Panteion University
2012
ABSTRACT Healthcare delivery in the United Kingdom is increasingly becoming a challenging issue where demand regularly outstripping availability. This particularly challenge neurology and neuropsychiatry, delays diagnosis treatment are leading to worse health social outcomes. The Darzi report, which focused on three key tenants, has been hailed as future blueprint for National Health Service (NHS) sustainability high‐quality care delivery. These tenants moving from analogue digital...
Research suggests that adults with Tourette's syndrome (TS) may face unique challenges in their everyday life due to condition. To date, however, only a limited number of studies exist relation experiences and conception identity. This study, which we believe be the first its kind, aimed expand literature by 'giving voice' this population, evaluate social personal cost living TS during adulthood. Semi-structured interviews were conducted sixteen focused on how they negotiated identity...
Social media can lead to rejection, cyber-bullying victimisation, and cyber-aggression, these experiences are not fully understood as experienced by autistic adults. To investigate this, 78 adults completed self-report measures of social use, self-esteem. High levels use were found be associated with an increased risk cyber-victimisation; whereas self-esteem was positively correlated feelings belonging online community negatively being ignored on network sites chat rooms. Future studies...
Abstract Background People with intellectual disabilities, if convicted of offences, may be sentenced to prison, but little is known about their life when they are released. Method This study followed up men disabilities who were leaving prisons in England. Results The hard contact, 38 interviewed, on average 10 weeks after prison. living a variety situations and often very under‐occupied, limited social networks. A total 70% above the clinical cut‐off for anxiety, 59.5% depression....
Abstract Tactile defensiveness in autistic individuals is the least investigated sensory modality. The current multi-component, explorative study aimed to understand experiences of ten adults regarding tactile and fabrics, using semi-structured, one-to-one interviews. Participants were asked discuss effects seven provided samples fabrics also bring their ‘favourite’ fabric (s) express thoughts about choices. Using Interpretative Phenomenological Analysis Content Analysis, findings showed...
Little is known about the attitudes and practices of key personnel towards domestic violence experienced by women with intellectual disabilities.An online survey was conducted Police officers health social care professionals. A total 717 other professionals across a wide variety UK sites responded. Research questions were focussed on direct experience, responses.Approximately half all respondents had experience working woman disabilities who been through violence. Professionals more likely...
Nearly a quarter of people with intellectual disability (ID) have epilepsy large numbers experiencing drug-resistant epilepsy, and premature mortality. To mitigate risks the environment social care needs, particularly in professional settings, need to be met.To compare groups as regards their subjective confidence perceived responsibility when managing ID epilepsy.A multi-agency expert panel developed questionnaire embedded case vignettes quantitative qualitative elements understand training...
This study explores the impact of mental capacity in relation to breast screening for women with intellectual disabilities UK. Participation is considerably lower compared general population. Barriers include poor mobility and behavioural difficulties. There currently no research which primarily relationship between this group individuals. paper presents results a cross-sectional survey 131 supported by eight Social Care Providers within England Wales. The data were collected January 2017...
Abstract Background In the UK, little is known about experience of ex‐prisoners with intellectual disabilities. Method A qualitative study was therefore conducted to investigate what life like for ten men disabilities who left prison at least 9 months previously. Semi‐structured interviews were employed explore men's views post‐prison life, including opportunities/challenges and support received from services. Results Through interpretative phenomenological analysis, four over‐arching themes...
Context: Research exploring care relationships between support staff (e.g., workers) and adults with a learning disability in long-term social residential settings the United Kingdom is relatively neglected. This has potential theoretical practice implications. Objectives: study sought to synthesise relevant literature, expand knowledge, identify directions for future research. We investigated five questions about what makes them positive, definitions of relationships, relational practices...
Background: The Draft Mental Health Bill proposes removal of both intellectual disability and autism from Section 3 the Act for England Wales (MHA). This would lead to people with (PwID) and/or could not be detained beyond 28 days, in absence diagnosed co-occurring mental illness. Aim: To obtain views psychiatrists working PwID regarding proposed MHA changes. study focusses specifically on impact PwID. Methods: A cross-sectional online mixed methodology survey Likert free-text response...
Purpose The purpose of this paper is to consider issues around obesity and overweight for people with intellectual disabilities (IDs). Design/methodology/approach A review the literature provided looking at adults IDs. Both prevalence studies intervention were considered. Findings considerably higher IDs when compared general population. Intervention focusing on multiple components seem be most effective. However, future research should focus randomised control trials taking into...