A5027792946- Healthcare innovation and challenges
- Retirement, Disability, and Employment
- Family and Disability Support Research
- Geriatric Care and Nursing Homes
- Palliative Care and End-of-Life Issues
- Mental Health and Patient Involvement
- Education Systems and Policy
- Religion, Spirituality, and Psychology
- Homelessness and Social Issues
- Adolescent and Pediatric Healthcare
- Disability Education and Employment
- Intergenerational Family Dynamics and Caregiving
- Disability Rights and Representation
- Chronic Disease Management Strategies
- Obsessive-Compulsive Spectrum Disorders
- Frailty in Older Adults
- Elder Abuse and Neglect
- Down syndrome and intellectual disability research
- Social Policy and Reform Studies
- Autism Spectrum Disorder Research
- Migration, Aging, and Tourism Studies
- Grief, Bereavement, and Mental Health
- Psychiatric care and mental health services
- Employment and Welfare Studies
- Healthcare Decision-Making and Restraints
Western University
2022-2024
University of Bath
2019-2022
Western University of Health Sciences
2021
University of Kent
2010-2020
Malmö University
2018
National Chung Cheng University
2018
University of London
2018
Universidad de Salamanca
2018
Amsterdam UMC Location Vrije Universiteit Amsterdam
2018
La Trobe University
2018
Background The social inclusion of people with intellectual disabilities presents a major challenge to services. As part 12‐year follow up resettled from long‐stay hospitals, the size 213 individuals’ networks and types support they received were investigated, as viewed by themselves. in four different kinds community accommodation compared. Method Individuals interviewed their mapped using Social Network Guide developed for study. Descriptive statistics generated comparisons made...
The Financial Crisis of 2008 resulted in many western economies implementing cuts health and social care. This systematic review provides a holistic picture the impact austerity policy on lives people with learning disabilities (LD) collateral effects who support them. Our suggests that current climate economic austerity, available funding to LD is no longer aligned their care needs. Cuts disability services have adversely affected well-being both informal carers. Individuals lost are...
Research suggests that adults with Tourette's syndrome (TS) may face unique challenges in their everyday life due to condition. To date, however, only a limited number of studies exist relation experiences and conception identity. This study, which we believe be the first its kind, aimed expand literature by 'giving voice' this population, evaluate social personal cost living TS during adulthood. Semi-structured interviews were conducted sixteen focused on how they negotiated identity...
The importance of participative research methodologies is now widely acknowledged. A case study using individualised communication for interviewing people with intellectual disability in outcome and quality life reported. methodology processes employed are described lessons the wider application model identified. In collaboration Somerset Total Communication local speech language therapists, researchers from Tizard Centre developed a flexible strategy involving service users, drawing on...
Background Evidence suggests that social networks mediate functioning, self‐esteem, mental health and quality of life. This paper presents findings concerning changes in the lives, skills, behaviour life experiences a group people with intellectual disabilities ( n = 18), who gained support from an employment agency to find paid work. Method The composition individuals’ were mapped using Social Network Guide. Changes assessed standardized measures. Results network size participants increased...
Background Adults with intellectual disability (ID) experience inequality in access to healthcare that is considered extend end-of-life care. Their experiences of at the end life and how these compare general population are unknown. Aim To describe care outcomes for adults ID living residential UK using VOICES-SF questionnaire population. Design Nationwide population-based postbereavement survey. Participants 38 providers took part study. The supported over 13 000 people ID. Over 18-month...
We report service users' views on three important domains of their quality life in the community 12 years after resettlement for long-stay hospitals. These concerned living environments, daily activities and future aspirations. asked a series open questions as part structured interview with users learning disabilities (n = 196) mental health problems 102). The study is longest reported follow-up deinstitutionalisation UK one anywhere world. most frequently self-reported positive aspects were...
BackgroundWhile community care is now well established in England, the development and maintenance of social networks people with long-term mental illness remains a major challenge to services.AimsTo investigate size types support they receive relation their age accommodation.SampleThirty-nine men 46 women (mean age: 61 years; range: 38–88). Forty nine (60%) were 65 years or under 32 (40%) over 65.MethodsParticipants interviewed using Social Network Guide. Comparisons made generalised linear...
Background The topic of funerals within the life cycle approach to care in UK remains largely absent. This small exploratory study sought investigate how practitioners deal with this sensitive issue and capture views older people without intellectual disabilities about funerals. Methods A semi‐structured questionnaire was administered 40 service managers, five focus groups for 26 were facilitated. Questionnaires subjected thematic content analysis; group data analysed using a grounded theory...