A5002220839- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Geriatric Care and Nursing Homes
- Health Systems, Economic Evaluations, Quality of Life
- Grief, Bereavement, and Mental Health
- Chronic Disease Management Strategies
- Cancer survivorship and care
- Complementary and Alternative Medicine Studies
- Family and Patient Care in Intensive Care Units
- Frailty in Older Adults
- Patient-Provider Communication in Healthcare
- Down syndrome and intellectual disability research
- Healthcare Policy and Management
- Global Cancer Incidence and Screening
- Cervical Cancer and HPV Research
- Patient Dignity and Privacy
- Health Sciences Research and Education
- Healthcare innovation and challenges
- Clinical practice guidelines implementation
- Diabetes Management and Education
- Health Policy Implementation Science
- Gestational Diabetes Research and Management
- Pediatric health and respiratory diseases
- Long-Term Effects of COVID-19
- Financial Literacy, Pension, Retirement Analysis
University of Southampton
2015-2025
Ardent Sound (United States)
2025
University of Exeter
2010-2025
St. Rita's Medical Center
2023-2024
Mercy Health
2023-2024
King's College Hospital NHS Foundation Trust
2019-2023
Newcastle upon Tyne Hospitals NHS Foundation Trust
2022-2023
North Bristol NHS Trust
2018-2021
Southmead Hospital
2015-2019
University of Stirling
2019
In this article we outline Burden of Treatment Theory, a new model the relationship between sick people, their social networks, and healthcare services. Health services face challenge growing populations with long-term life-limiting conditions, they have responded to by delegating people networks routine work aimed at managing symptoms, retarding - sometimes preventing disease progression. This is proactive patient-hood for which patients are increasingly accountable: founded on ideas about...
à la diffusion de documents scientifiques niveau recherche, publiés ou non, émanant des établissements d'enseignement et recherche français étrangers, laboratoires publics privés.
Where people die can influence a number of indicators the quality dying. We aimed to describe place death with cancer and its associations clinical, socio-demographic healthcare supply characteristics in 14 countries. Cross-sectional study using certificate data for all deaths from (ICD-10 codes C00-C97) 2008 Belgium, Canada, Czech Republic, England, France, Hungary, Italy, Mexico, Netherlands, New Zealand, South Korea, Spain (2010), USA (2007) Wales (N=1 355 910). Multivariable logistic...
Abstract Objective To provide the first report on main outcomes from prevalence and incidence rounds of a large pilot routine primary high risk human papillomavirus (hrHPV) testing in England, compared with contemporaneous liquid based cytology screening. Design Observational study. Setting The English Cervical Screening Programme. Participants 578 547 women undergoing cervical screening care between May 2013 December 2014, follow-up until 2017; 183 970 (32%) were screened hrHPV testing....
Background/aim: Health policy places emphasis on enabling patients to die in their place of choice, and increasing the proportion home deaths. In this article, we seek explore reported preferences for death experiences care a population-based sample deaths from all causes. Design: Self-completion post-bereavement survey. Setting/Participants: Census registered two health districts between October 2009 April 2010. Views Informal Carers – Evaluation Services Short Form was sent each informant...
Although in health services survey research we strive for a high response rate, this must be balanced against the need to recruit participants ethically and considerately, particularly surveys with sensitive nature. In there are no established recommendations guide recruitment approach an 'opt-in' system that requires potential request copy of questionnaire by returning reply slip is frequently adopted. However, observational risk lower than clinical so some have used 'opt-out' system. The...
End-of-life care (EOLC) is a key component in of older people. However, evidence suggests that the oldest old (>85 years) are less likely to access specialist EOLC.The study's objective was explore experiences EOLC among and determine their reported preference for place death.The study involved self-completion postbereavement survey.A census taken deaths registered between October 2009 April 2010 two health districts, identified from death certificates. Views Informal Carers-Evalution...
Chronic obstructive pulmonary disease and lung cancer are leading causes of death with comparable symptoms at the end life. Cross-national comparisons place death, as an important outcome terminal care, between people dying from chronic have not been studied before. We collected population certificate data 14 countries (year: 2008), covering underlying cause demographic information. included patients or used descriptive statistics multivariable logistic regressions to describe patterns in...
Background Quality of cancer care may greatly impact on patients’ health-related quality life (HRQoL). Free-text responses to patient-reported outcome measures (PROMs) provide rich data but analysis is time and resource-intensive. This study developed tested a learning-based text-mining approach facilitate experiences develop an explanatory model illustrating HRQoL. Methods Respondents population-based survey colorectal survivors provided free-text comments regarding their experience living...
Abstract Barriers faced by underrepresented groups in academia have increasingly formed the basis of serious discussion, consideration, and policies, recently (in UK) under mantle equality, diversity, inclusivity (EDI). While such recognition has not solved challenges encountered by, for instance, women ethnic minorities, it at least ensured that consideration issues is becoming a normal part policy practice. One group low socioeconomic status (working class) backgrounds, characteristic...
Abstract This article reports research into an area of insurance, personal insurance. is important as some suggests that insurance literacy could be related to the level purchased. To consider this potential relationship a detailed analysis interviews with consumers and financial advisers in Australia about their consideration products. The findings reveal have very low levels literacy, which they believe linked underinsurance. Consumers demonstrated trauma being least understood, may lead...
<h3>Introduction</h3> Disparities in access to quality palliative and end-of-life care continue persist based on ethnicity, disability, poverty, gender sexuality. Work explain or address this health inequity focuses characteristics of the individual experiencing disadvantage structural factors. This has led us overlook role relationships conversations between professionals, patients families. Yet, research with people who are disadvantaged consistently reports frustration distress associated...
Background: There persist disparities in access to quality palliative and end-of-life care, often based on avoidable injustice. Research theory explain this health inequity focuses structural or individual-based factors, overlooking important relational factors between professionals, patients families. Aim: To apply Cognitive Authority Theory care neglected drivers of experience. Methods: Theory, a middle-range power relations individuals authority over knowledge, was developed from...
The National Survey of Bereaved People was conducted by the Office for Statistics on behalf NHS England first time in 2011, and repeated annually thereafter. It is thought to be that nationally representative data have been collected experiences all people who died, regardless cause setting, made publicly available informing palliative end-of-life policy, service provision development, practice. This paper describes development questionnaire used survey, VOICES-SF, a short-form VOICES (Views...