A5076939789- Cancer survivorship and care
- Global Cancer Incidence and Screening
- Palliative Care and End-of-Life Issues
- Health Systems, Economic Evaluations, Quality of Life
- Patient-Provider Communication in Healthcare
- Prostate Cancer Diagnosis and Treatment
- Family Support in Illness
- Childhood Cancer Survivors' Quality of Life
- Head and Neck Cancer Studies
- Healthcare innovation and challenges
- Prostate Cancer Treatment and Research
- Colorectal Cancer Screening and Detection
- Clinical practice guidelines implementation
- Nausea and vomiting management
- Voice and Speech Disorders
- Primary Care and Health Outcomes
- Health Literacy and Information Accessibility
- Bladder and Urothelial Cancer Treatments
- Respiratory and Cough-Related Research
- COVID-19 and healthcare impacts
- Interprofessional Education and Collaboration
- Global Health Workforce Issues
- Geriatric Care and Nursing Homes
- Patient Satisfaction in Healthcare
- Migration, Aging, and Tourism Studies
University of Southampton
2016-2025
Imperial College Healthcare NHS Trust
2019
St James's University Hospital
2015
University of Leeds
2015
Leeds Teaching Hospitals NHS Trust
2015
Richardson Electronics (United Kingdom)
2013
This population-level study was conducted to define the health-related quality of life (HRQL) individuals living with and beyond colorectal cancer (CRC) identify factors associated poor health outcomes.All diagnosed CRC in England 2010 2011 who were alive 12 36 months after diagnosis sent a questionnaire. included questions related treatment, disease status, other long-term conditions (LTCs), generic HRQL (EuroQol-5D), cancer-specific outcomes (Functional Assessment Cancer Therapy Social...
Abstract Background Children with cancer were designated as clinically extremely vulnerable if they to contract SARS‐CoV‐2 due immune suppression in the early phase of COVID‐19 pandemic. Our aim was explore experiences, information and support needs, decision making parents a child response this United Kingdom. Methods Parents completed survey at time when UK moved into period ‘lockdown’. An online developed by research team capture parents’ making, using closed statements open text boxes....
This study examined how free-text comments from cancer survivors could complement formal patient-reported outcome measures (PROMs), as part of the England PROMs survey programme for cancer.A qualitative content analysis was conducted responses to a single open-ended question placed at end cross-sectional population-based postal questionnaire.Individuals were identified through three UK Cancer Registries and questionnaires posted their home addresses.A random sample individuals (n=4992)...
There are an increasing number of qualitative studies which focus on the dyad (couples, families, caregivers-patients, health care professionals-patients). However, there is limited literature regarding methodology for dyadic analysis when members couple have been interviewed separately. The aim this article to share knowledge we gained from undertaking a novel approach analysis. We used adapted version Framework method data gathered in study exploring impact prostate cancer younger men and...
Background Quality of cancer care may greatly impact on patients’ health-related quality life (HRQoL). Free-text responses to patient-reported outcome measures (PROMs) provide rich data but analysis is time and resource-intensive. This study developed tested a learning-based text-mining approach facilitate experiences develop an explanatory model illustrating HRQoL. Methods Respondents population-based survey colorectal survivors provided free-text comments regarding their experience living...
Abstract Objective Clinical options for managing nonmetastatic prostate cancer (PCa) vary. Each option has side effects associated with it, leading to difficulty in decision‐making. This study aimed assess the relationship between patient involvement treatment decision‐making and subsequent decision regret (DR), quantify impact of health‐related quality life (HRQL) outcomes on DR. Methods Men living United Kingdom, 18 42 months after diagnosis PCa, were identified from registration data sent...
ELLIS J., LLOYD WILLIAMS M., WAGLAND R., BAILEY C. & MOLASSIOTIS A. (2013) European Journal of Cancer Care22, 97–106 Coping with and factors impacting upon the experience lung cancer in patients primary carers There is a paucity research exploring patients' their informal carers' coping on experience. This study aims to explore how cope diagnosis describe key that mediate distress this population order they may be better supported future. was qualitative employing semi-structured interviews...
Background Patients with cancer of unknown primary (CUP) have metastatic malignant disease without an identifiable site; it is the fourth most common cause death. Objectives To explore patients’ informal and professional carers’ experiences CUP to inform development evidence-based, patient-centred care. Methods Qualitative study involving multiple exploratory case studies, each comprising a patient nominated carers, contextual data extracted from medical records. Results 17 patients, 14 13...
To explore differences in experiences of care reported the Cancer Patient Experience Survey (CPES) between patients with cancer unknown primary (CUP) and those metastatic disease known (non-CUP); to determine insights pertaining for CUP respondents from free-text comments.Two separate, but related, studies, involving secondary analysis existing data. Using frequency matching non-CUP patients, statistical comparisons responses CPES questions were conducted. Free-text comments analysed...
There are known associations between treatment of prostate cancer (PCa) involving Androgen Deprivation Therapy (ADT) and psychological physical side effects. We investigate the cancer-related symptoms, health-related quality life (HRQL), poor outcomes in men whose for PCa involved ADT.A cross-sectional postal questionnaire was administered to UK 18-42 months post diagnosis PCa. Men completed items on functional using Expanded Prostate Cancer Index Composite (EPIC-26), EuroQol-5D (EQ-5D),...
Background Prostate cancer and its treatment may impact physically, psychologically socially; affecting the health-related quality of life men their partners/spouses. The Life After Cancer Diagnosis (LAPCD) study is a UK-wide patient-reported outcomes which will generate information to improve health well-being with prostate cancer. Methods analysis Postal surveys be sent survivors (18–42 months postdiagnosis) in all 4 UK countries (n=∼70 000). Eligible identified and/or verified through...
To investigate factors associated with job loss and early retirement in men diagnosed prostate cancer (PCa) 18-42 months previously.Men ≤ 60 years at diagnosis who completed the Life After Prostate Cancer Diagnosis (LAPCD) survey were identified. Men moved from employment to unemployment (EtoU) or (EtoR) (18-42 post-diagnosis) compared remaining (EtoE). Sociodemographic, clinical patient-reported analysed univariable multivariable analysis.There 3218 (81.4%) EtoE, 245 (6.2%) EtoU 450 (11.4%)...