A5021383858- Epilepsy research and treatment
- Pharmacological Effects and Toxicity Studies
- EEG and Brain-Computer Interfaces
- Genomics and Rare Diseases
- Metabolism and Genetic Disorders
- Vagus Nerve Stimulation Research
- Hip disorders and treatments
- Neurological disorders and treatments
- Ethics and Legal Issues in Pediatric Healthcare
- Neuroscience and Neural Engineering
- Drug Transport and Resistance Mechanisms
- Clinical Reasoning and Diagnostic Skills
- Mental Health and Patient Involvement
- Infectious Encephalopathies and Encephalitis
- Cystic Fibrosis Research Advances
- Cognitive Functions and Memory
- Anesthesia and Sedative Agents
- Diet and metabolism studies
- Child Nutrition and Feeding Issues
- Folate and B Vitamins Research
- Cardiac Arrest and Resuscitation
- Health Systems, Economic Evaluations, Quality of Life
- Neonatal and fetal brain pathology
- Reproductive Health and Contraception
- Clinical Nutrition and Gastroenterology
Cornwall Partnership NHS Foundation Trust
2013-2025
Cornwall College
2017
Objectives Intellectual disability (ID) and epilepsy are independent risk factors for osteoporosis. Diverse predisposing influence this, example in ID, genetics poor nutrition epilepsy, anti-seizure medication (ASM). Around 25% people with ID have majority treatment resistant. ASMs polypharmacy is common. However, little known about the bone-related characteristics of this vulnerable group. A prospective observational cohort study bone profile across a community Epilepsy service was...
Introduction: Sudden unexpected death in epilepsy (SUDEP) is possibly the most common cause of as a result complications from epilepsy. The need to educate and regularly review risk for all patients with paramount, but rarely delivered actual clinical practice. Evidence suggests that education around SUDEP modifiable variables translate into better self-management Objective: We aimed develop implement an eHealth solution support risks, Methods: undertook innovation pathways approach,...
Abstract Purpose Clinical risks can be contained through risk management initiatives, and also used to demonstrate effective clinical governance. The purpose of this paper is outline a new assessment tool that monitors the factors sudden unexpected death in epilepsy (SUDEP). Design/methodology/approach A systematic review literature was undertaken determine contributory SUDEP. total 18 were identified, which 11 modifiable therefore have potential influence Findings identified from been...
This quality improvement project was inspired as an answer to a problem that intellectual disability teams have been struggling manage whilst caring for people with epilepsy (PWE). The issue despite guidance discuss the possibility of sudden unexpected death in (SUDEP) be discussed newly diagnosed PWE this is rarely done. Additionally when, how, and what about SUDEP reduce its risk arbitrary, non-person centred, no structured evidence. Prior initiating changes discussion recorded just 10%...
Rohit Shankar and colleagues explain the methods outcomes of an experiment system for gathering information on service users' sleeping habits
The NICE audit of epilepsy related deaths revealed that 1200 occur every year in the UK, with 42% potentially avoidable.[1] Convulsive status epilepticus (SE) is a life-threatening condition over 20% mortality rate, especially if early treatment not initiated.[2] Ten percent all UK emergency department (ED) admissions are due to epilepsy, usually represented by cases SE.[3] Six out seven seen ED admitted into medical care.[4] Patients chronic and/or resistant carry higher risk premature...
Caryn Anne Jory and colleagues review the trial of a device that records service users’ views about learning disability epilepsy clinic
Rohit Shankar and colleagues discuss findings from an audit of how GPs prescribe birth-control pills to women with learning disabilities who also take anti-epileptic drugs
<h3></h3> Sudden unexpected death in epilepsy (SUDEP) is possibly the most common cause of as a result complications from epilepsy. The need to educate and regularly review risk for all patients with paramount, but rarely delivered actual clinical practice. Evidence suggests that education around SUDEP modifiable variables translate into better self-management We developed implement an eHealth solution support risks, undertook innovation pathways approach, including problem identification,...